Hi Tony

Sorry but you are way ahead of me so cant add anything apart from saying good luck in the treatment you get?

Tom

Hi Liz

I can say that when i was in and had my transplant I found it hard to drink enough and they put me on a drip also (it was easier)gosh its hard work to drink that much when you aint feeling too good as it is:-S the drip was the best for me plus I drunk when i could ((water Pamela Lol))

Me I think i had two bloods and two platlets in…[Read more]

Hi Liz

Hey you take no notice of "Tinkerbell" as she is a little tinker ha ha, I have nearly stopped drinking these days only a bttle of vodka a week now 😎

So you dont have to rush to catch up he he.

Love Tom xxx

Hi Liz

Your both more than welcome, and it wont be long before he is up and about, and there is no rush one day at a time and it will work out, I must have been 8/12 before I felt better and trust me the wait is worth it 🙂

Tell Kev to keep on the "Upwards and Onwards"

Tom xx

Hi Liz

It sounds like its looking good and on the way up now, still one step at a time though, give my best regards to Kev and tell him its an "Onwards and Upwards" that he will now be having.

Good Luck and hugs to you Both

Tom xx

Hi Liz and Kev

I also had to have platlets too, two lots but it made me beter faster :-).
When I had my SCT I also slept that much in the last 6 days that I misse who came to visit ha ha, sleep is what Kev needs at the moment (and for a feww weeks after) it will all fall into place 😎 I would say about three months and Kev will be saying Wot…[Read more]

Hi Liz and Kev

So sorry you had to join this site, but it is one of the best.

I had my SCT december 2009 so it is 16 months post transplant and honest I have never looked back, up hill for a few months then WALLA better 😀

Since I had SCT I and my young bride (Elaine) have just got back from Great Yarmouth, and had two fly away holls…[Read more]

Hi Keith

Pleased it is going good for you 🙂 as formeav got to grips with it on Good days:-D and am not having any treatment Cept Zometa infusion:-S

and Debs as for the feet mine also but thankfully no pain some time they just feel fatter:-/ or that I have something under my toes like wool:-0

And Gill ur comment ::::::::Stephen…[Read more]

Dear Susan

I am so sorry you lost a brother to this dreaded MM, and also give you my condolances on the loss of your elder brother, Life is so cruel.

I see you have just joined us, please stay with us am sure we can all rally round and help you in your hour of need.

Love Hugs and aslo Prayers sent to you and your Family.

Tom x

Hi Ozzy

I was told I had MM in Jan 2009 had 5 sets of CTD, went on sick at the start of 3rd cycle, (manual job) had SCT 3rd December 2009 out by the 16th December, still not feeling too good for the Xmas, but felt 100% better 2nd week in Feb :-D, I still went out for walks and the pub when feeling Ok,went back to work may 2010 had about a year…[Read more]

Oh Gaye
You have just made an old (ish) man very happy, you put a smile on my face that before reading your post didn't know I could smile that wide Ha ha.

As for My Dr well he is normal and I have met him while out shopping and he pats my shoulder and asks if its all going Ok, he once put both his hands on my fat belly and shook it saying…[Read more]

Hi Amanda, and sister

Sorry you have to join this band of MM'ers, but to be honest they are a great bunch of folks.

I have MM and was told in Jan 2009 and started CTD in Feb leading up to a succefull Stem Cell Transplan and Yes am with you Re the Carer? it aint for me, dont know what I would choose?.

And as for the "Lack" of treatment yes…[Read more]

Hi Tracey

May I be the first to welcome you to this great group, I know its one that we didn't want to join 🙁

I also started on CTD then moved on to my Stem Cell Transplant, now 15 months post sct and doing bloomin good.

Good Luck on your treatment.

Tom "Onwards and Upwards" xxx

Hi Roz
And you are more than wlcome, and am pleased it/I make you smile 🙂
So sorry you are having a bad day but you know what they say so its no good me saying it again is there?.

Just give a few thoughts from the Good Times and try and push the times when Michael wasn't himself.

Hugs and Love sent your way keep strong Roz

Tom xxxx

Hi Nigel

And a warm welcome to our little band.

I was diagnosed Jan 2009, and since then I have had 5 courses of CTD,stem cell harvest and now am at the 15 month post stem cell transplant and am back at work (light duties)

All through my treatment it has been "Pain Free" :-)and am now still in remission 😎

As you know or will find…[Read more]

Good Morning Roz

Am pleased you never left this site so no reason to say you have come back 😀

Am pleased you are getting through all this and it is a bloomin bugger all the stuff that needs to be done whilst trying to get to terms with losing your partner.

Am sure the Goverment could link it all together and all that needs to be done…[Read more]

Morning Tanya

Well sounds like your dads doing well 😀 and its amazing where we find the strenth to cope with these things:-S but it always comes to the forefront.

Good Luck on Monday and I hope he gets the OK for the infusion's.

Tom "Onwards and Upwards" xx

Hi Eve

When you say its a bit complicated well dont i know it, and am sure she would want to know? but you know her better than I.

The main thing is for you Both to stay strong and fight this bloomin MM and try not to "Store Problems" I know its not as easy as that :-/

And the comment you made bout cheering you up has left me feeling…[Read more]

Hi Henry
Well a warm welcome to you 🙂

Sorry you had to join though, but seen as you/I or we need something when we have MM cant get a better support group 🙂

I was Diagnosed in January 2009, and since then I have had stem cell harvest and transplant, and now back at work (light dutie's)

All went well but as we all know we have our Off…[Read more]

Hi Eve
I also know how well this site feels to me Its like putting on an old pair of shoes 🙂 you know the tatty ones we just wont throw away 🙂

And as for worrying? well I worry about not worrying ha ha.

Does your partner not want to tell his daughter? or is he just waiting till he grasps the MM facts?

As for it changing our lives?…[Read more]