TerryMG replied to the topic Advice on Velcade please in the forum Treatment 12 years, 5 months ago
Hi Mari,
I think my situation is very similar to Steve. However, as I learnt from the Infoday in London, Myeloma is a very individual condition. Therefore current treatments are ?are one size fits all? do not work for everyone. The good news is that the work being done on DNA sequencing and where in the DNA helix the Protein has attached to…[Read more]
TerryMG replied to the topic Velcade induced Neuropathy in the forum Side-effects 12 years, 7 months ago
Hi Debs, (and thank you everyone on this thread as this has been very useful to me)
[b]General[/b]
Terry MG here?.learning to navigate around the site. Does anyone know the difference it ?clinking in the reply? after someone?s post and the one at the bottom of the page.. brown line??
I have tried to contact [b]Gill[/b] (& Stephen) off line via…[Read more]
TerryMG replied to the topic Hi I am new Help – Now that I have relapsed in the forum Newcomers 12 years, 7 months ago
Hi Dai,
Thank you for your nice email and to know the path you have been on. You reply was very structured and phased which was a great help. 🙂 I knew of the web site some 6 months ago but have not contributed for now although we have raised money for M_UK. My chin is always up but our partners go through a lot as well!! It was our 40th…[Read more]
TerryMG replied to the topic New to Forum in the forum Newcomers 12 years, 7 months ago
Hi Etta & Husband,
First like you I have only just joined the Forum at the weekend. What has been written before me is very sound advice but I would like to add a few things.
1 My GP told Margaret and I not to look on the internet as a lot that comes up is way out of date. We only looked up Myeloma UK after 6 months on the advice of Proff…[Read more]
TerryMG replied to the topic Hi I am new Help – Now that I have relapsed in the forum Newcomers 12 years, 7 months ago
Hi Tom,
I was hoping to be where you are now just on Zometa. I think all my doctors are genuinely disappointed at what has happened as everything was looking like great and going according to plan.
Hi Brigit,
Thank you for your very useful advice. 🙂 When I was first diagnosed I was told that my bones were too weak to have any surgery as…[Read more]
TerryMG replied to the topic Hi I am new Help – Now that I have relapsed in the forum Newcomers 12 years, 7 months ago
Hi Joe,
Sorry to hear about your Kidney failure what a bummer. 😛 I was aware this could happen when I was first ill so I have been very conscious to drink gallons and gallons. As the lower back tumour made be semi paralysed from the waist down, learning walk again to go to the loo was one of my priorities!! 🙂 🙂 🙂
Hi Eve,
I tried to…[Read more]
TerryMG started the topic Hi I am new Help – Now that I have relapsed. in the forum Newcomers 12 years, 7 months ago
Hi, I am Terry and this is my first post. Sorry if it is a bit long but I want to take you down the path I have been so that I can seek guidance from these who have been before me?
In June 2010, I was diagnosed with MM and during further tests I was put into an MRI scanner in a position that really hurt my back. When I came out of the…[Read more]
