Hi Carol

I kept my hair all through 6 rounds of chemo, I still had a good head of hair after SCT however on day 15 after stem cells went back in it came out in big chunks. I had the rest shaved off on day 15 post SCT. It isn’t growing very fast although I am only now 38 days post op, however there is a tiny stubble on top of my head which looks…[Read more]

Hi Jane

Good to hear your story, I am in the process of getting my stem cells harvested this week and was beginning to wonder if I was doing the right thing. I am 49 and all I want to do is have some normality in my life and be strong for my husband and three children. My daughter got married in May 2013 and it was one of the happiest times of…[Read more]

Dear all

Thank you for your feedback, it’s really helpful to finally speak to people who know what you are actually going through. I forgot about putting my age but I am 49yrs young. I have taken up some hobbies that I haven’t done in many years just to try and keep my mind off things & because there is only so much TV that you can watch. Once…[Read more]

I was newly diagnosed in June 2013, I work in NHS and it was really hard telling my colleagues. When I was diagnosed the first thing I wanted to know was how long I had left and the Consultant told me worse case scenario was 4-4 1/2 years. When I spoke to the Clinical Lead where I work I was very surprised that her aunt had been living with…[Read more]