Roz,

Interesting to read ecoli was found as the last time pat was in admitted (about 6 weeks ago)with neutropenic sepsis the culprit was ecoli.We thought the contamination could have been transmitted via fish pond water. Initially I was horrified as ecoli can be put down to poor hygiene but I new that was not the case.
Roz, Patrick has had…[Read more]

Hi Roz

The only salts I can think of are mineral salts e.g.calcium, magnesium, potassium. These minerals have to be carefully balanced in the body – maybe Michael had a mineral imbalance of some sort. Calcium is a common one in MM. What does the consultant say?
If your GP is no use what about seeing the Macmillan nurse, they are specifically…[Read more]

Hi Gaye – We were told that the bendamustine was accessed as part of a clinical trial however he was not part of a group of people taking part just on his own? Access to pomalidomide is through special circumstancesas he has exhausted all other recognised treatments.
Similar to you Pat's counts have been low sometimes critically low which became…[Read more]

Hi,

My husband Patrick has the myeloma – even though he is in his 50's he still has Jet black hair and hasn't lost any either during or after his SCT or since with all the chemo he has endured!…and still looks younger than me

Best wishes
Tina X