Hi Gill,

I too do not look at the site very much these days. My darling husband died in May 2011 and I remenber every last detail of his last few days alive just as if it was last week. Pat is definately looking over my shoulder I can hear him telling me off only too often?
I always wondered what you were giggling about in your photograph, now I…[Read more]

Hi,

My late husband Pat did very well on Bendamustine in 2010 for over a year with very little side effects. Unfortunately he was a long way down the treatment road before he started it, who knows, it could have worked for longer if he had started earlier.

Good Luck

Tina

Hi Gill,
I have a kitchen thing going on too. My dear husband Pat died in May 2011, seems like yesterday. Pat and I had been together for 35 yrs and had moved house a number of times, I guess many people move items with them that they should really throw away. Well we had a really old tea towel that Pat had when I first met him when he was living…[Read more]

Hi Gill,
I have a kitchen thing going on too. My dear husband Pat died in May 2011, seems like yesterday. Pat and I had been together for 35 yrs and had moved house a number of times, I guess many people move items with them that they should really throw away. Well we had a really old tea towel that Pat had when I first met him when he was living…[Read more]

Hi Rosie,

I too don’t visit the site too often now since my dear husband passed away in May 2011.

So sorry to hear your news. I hope you get the support you need from family and friends.

Take Care

Tina XX

Dear Eve,
I am sure you had many funny stories to tell and listen to today as you were celebrating Slim’s life. As you leave one “club” you are joining me and other cyber friends in another.
Best wishes to you in your new life.

Tina xx

Dear Eve,
Although I haven’t posted for a while I have been following both Slim’s and your journey with MM.I felt his time was close and truly dreaded the pain that will be with you now.
I am thinking of you and although I know you have the strength to cope I hope you have family and friends to help you through.

Tina XX

Hi Charlie and Mary,

If you are referring to the area of Buckinghamshire I can certainly recommend it. My husband had very good treatment in both High Wycombe and Stoke Mandeville Hospitals. There never appeared to be an issue with trying new treatments or spending money on treatment.

Hoipe this helps

Best Wishes

Tina

Hi Dai,

Unfortunately low platelet and neuts are the biggest drawback of Bendamustine treatment. Hope you get your neuts up and you can continue with treatment soon.

Best Wishes
Tina X

Thankyou Ellen for breaking this expected but nonetheless very sad news.

Dear Sue,

Please accept my heartfelt condolences. I am so glad that you have your family and friends around you to offer love and support. Keith sounded like a wonderful man, he gave an awful lot of advice and comfort to many of us on the forum and we are so grateful…[Read more]

Thankyou Ellen for passing on such sad information. I remember Keith from the old site giving so much comfort and information to us all. Keith I am sure you knew your time was limited and hope you are comfortable and can leave this world in peace.
Sue I wish you both much strength and my very best wishes, my thoughts are with you.

God Bless

Tina X

Gill,

What a great find. Michael comes across as a very kind man.

Take care

Tina X

Hi Sue,

I had most of Patrick's ashes interned at a beautiful woodland burial park with his brother, I kept back a small amount which I keep at home with me. Maybe you could think about doing this too?

Best Wishes to you

Tina x

Thankyou Andy,

Having "been there" with Patrick on numerous occasions I know how easily these things can turn nasty, hopefully he will pull through and be up and chatting to us soon.
Dai, I was thinking the same too, I do hope he has someone to share with.

Best Wishes to you Keith

Tina

David,

Just wanted to wish you all the best with Velcade.Make sure you keep posing as it would be very dull without you!:-D

Hi Gill,

I am glad to hear you are moving forward with your new life it still is very early days so don't put any pressure on yourself to be or act in a certain way.
Well Gill, that's both of that's silly, I still talk to Patrick everyday even though it will be two years since he died on May 13th. I find a comfort in talking to him although…[Read more]

Hi Mohammed,

Sorry your mother is suffering with painful neuropathy. As Tom says it is a well known side effect and one that is difficult to treat successfully. Reducing your mothers drug dose is definately the recommended option especially as she is on both Velcade and thalidomide which both cause PN.

Sorry I cannot give you any more…[Read more]

Dear Sue,

I gave up work three months before Patrick died to look after him at home. I am so glad we had that precious time, nothing was left un-said.
I have taken to reading a book when I go to bed until I am really tired to take my mind off flashbacks which I am still suffering.

Oh by the way I am scared of heights too! You are probably…[Read more]