TinaP replied to the topic Day one of CTD in the forum Treatment 13 years ago
Hi Wendy,
Thanks for the advice on laxatives. I have some already here, and took a dose last night.
Day 2 and I have no appetite. But still trying to drink loads.
Take care
Tina
TinaP replied to the topic Day one of CTD in the forum Treatment 13 years ago
Hi Tom,
Thanks for your support, it seems a long road at the moment and I'm only on day 2!!
Thanks for the hugs.
Love
Tina
TinaP replied to the topic Day one of CTD in the forum Treatment 13 years ago
Hi Eva,
Day 2 and the only side effect in loss of appetite. I feel very tired and have a sleep in the afternoon. But I have been doing that for a while now.
It is a bit daunting faced with all the tablets! My haemotologist gave me a spread sheet to use. I find it very helpful. Expect I will get used to it soon.
Take care
Tina
TinaP replied to the topic POSTBONED in the forum End of Life and Grief 13 years ago
Hello Eve,
Iam so very sorry to hear your sad news.
Thoughts and prayers are with you both.
TinaP started the topic Day one of CTD. in the forum Treatment 13 years ago
Hi all,
Well eventually I have started on the long road. Had another bone marrow sample taken yesterday and my first Zometa infusion. All ok so far although my hip is still a bit sore.
Started the day with 40 tablets!
Any advice from you 'old hands' who are further down the road would be helpful.
Thanks for your support
Tina
TinaP started the topic Another delay. in the forum Treatment 13 years ago
Hi all,
Bit of a letdown at the hospital this morning. I had to do all the paperwork necessary for me to go on the clinical trial.
Got to go back on Wednesday for another bone marrow sample to be taken, and an infusion of something to protect my bones.
Then on Thursday I will start on the chemo tablets.
Another delay, but I will get…[Read more]
TinaP replied to the topic Newcomer… in the forum Newcomers 13 years ago
Hi Tony,
I am 63 and starting my treatment on Friday 20th. I have also been accepted on the Myeloma X1 trial.
You will be a couple of days ahead of me, so I will watch your progress on here. I will let you know how I get on too
Tina
TinaP started the topic Tiredness. in the forum Related conditions 13 years, 1 month ago
Hi,
I don't know if anyone else feels like this. I am starting chemo in 3 weeks. But for a few months now, when I have a sleep in the daytime, I wake up feeling rotten. Once I am up and had a coffee, I seem to wake up and feel ok again.
Tina
TinaP replied to the topic Delay in Chemo in the forum Treatment 13 years, 1 month ago
Hi Dai,
I have been offered a place on the Myelom X1 trial. The plan is I go for the intensive pathway. Starting with chemo for 3 cycles, then stem cell harvest. This will be followed be radiotherapy on my spine. Then I will have the SCT.
It all sounds very daunting, and I just want to get on with it. My back is causing me a lot of pain.
Tina
TinaP replied to the topic Delay in Chemo in the forum Treatment 13 years, 1 month ago
Hi,
To quote Victor Meldrew – I don't believe it – been postponed again till 20th April! I know its only 2 days, but I feel the goal posts are moving all the time.
Sorry to moan – just want to get started and feel I'm fighting back.
Tina
TinaP replied to the topic Delay in Chemo in the forum Treatment 13 years, 1 month ago
Yet another delay. Haematologist rang this morning to delay my appointment by another week! The clinical trials nurse is on holiday. I just want to get on with it.
Tina
TinaP replied to the topic Delay in Chemo in the forum Treatment 13 years, 2 months ago
Hi Bridget,
I have got good pain relief. Co-codamol 30/500 also oramorph to top up.
So far I can only stand for a short while, but the pain subsides when I sit.I have a mobility scooter to use when shopping.
Take care
Tina
TinaP replied to the topic Delay in Chemo in the forum Treatment 13 years, 2 months ago
We certainly are all different. I want to get started as I have a lesion in my lower spine, which is causing a lot of pain. If it gets much bigger, it could compress my spinal cord and cause all sorts of problems.
Love
Tina
TinaP started the topic Delay in Chemo. in the forum Treatment 13 years, 2 months ago
Hi,
Went to see haematologist this morning, fully expecting to start on the treatment next week. But as my shoulder needs to heal some more, he has given me the 11th April as a start date.
I am a bit disappointed, as I just want to get on with it!
Thanks for your support,
Tina
TinaP replied to the topic Starting CDT in the forum Treatment 13 years, 2 months ago
Hi
I'm due to start next week. We can keep each other 'company' on the journey. Its good to have this forum. I am down for stem cell transplant when the chemo is finished.
Keep us all updated.
Good Luck
Tina
TinaP replied to the topic Water in the forum General 13 years, 2 months ago
I like Guiness, so looks like it will become my favourite 'tipple'.
Thanks for all the support.
Should be starting on the MyelomaX1 trial in a couple of weeks.
TinaP started the topic Water. in the forum General 13 years, 2 months ago
Hi All,
I've been told that I must try and drink 2 litres of water a day. I'm finding this difficult. I know I must protect my kidneys, but 2 litres is a struggle.
Anyone having the same problem???
TinaP replied to the topic Just to frighten you all!! in the forum General 13 years, 2 months ago
Hi,
Like you, I have only just worked out how to put a photo on here.
TinaP replied to the topic Starting Chemo in the forum Treatment 13 years, 2 months ago
Thanks Eve,
Do you get a break between cycles? I forgot to ask. There was so much to take in!
Tina
TinaP started the topic Starting Chemo. in the forum Treatment 13 years, 2 months ago
Hi.
Went to see consultant yesterday, and have been given the 15th March as the date my chemo will start. I am taking part in the MyelomaX1 trial.
I will be on the intensive pathway, culminating in stem cell transplant.It all sounds very daunting at the moment.
Any advice would be helpful.
Thanks
Tina
