[TinaPParticipant]

Fingers crosssed, but I'm starting to eat a bit more, this is giving me more strength.
I think I feel a bit better, but not shouting it from the rooftops yet.

Love
Tina P

[TinaPParticipant]

Hi everybody..

Thannks so much for your love and continued support. ITS certanly a long and difficult ride

I never thouht it would be so very tough.

it is humbling that to many people have taken time to mot not only read, but but give me the help I needed.

Thanks afain

Tina p

[TinaPParticipant]

Hi all,

Just a progress report on my treatment:

6th Sept had Hickman Line fitted

7 ? 9 In Walsgrave for chemo. Had 14hrs of drips on the Saturday!

12th Sept: Started growth hormone injections to release the stem cells into my blood stream

17th Blood Count at Walsgrave.If this is ok, then straight over to Warwick Hospital for the Stem Cell Harvest.

24th ? 28th Radiotherapy. 1 session per day. This is to shrink the leisions on my spine.

Then I get three weeks break to get my strength back before the transplant.

So hopefully, by the end of October I will be finished.

Oh, and my hair will start falling out in a week or so from today! But have ordered 2 lovely wigs.

Thanks for all your support and prayers.

Love
Tina

[TinaPParticipant]

Hi all,

Line in ok. Slept ok, although I had a dragging sensation when I got out of bed.
Just rang the ward and my bed will be ready for 1.00. Then at 3.00 I'm seeing radiotherapy people to plan my course of treatment inbetween harvesting and SCT.

Wish me luck

Love
Tina

[TinaPParticipant]

Hi Amanda,

Iam on Myeloma X1 too. After finding a fractured vertebrae in December, I was put on 4 cycles of CDT. I'm having my Hickman line inserted tomorrow, then back to hospital for a couple of nights for the dose of cyclo….

Then I will have have my stem cells harvested.

All the staff at Coventry Univercity Hospital have been so helpful and friendly. I hope you have the same treatment at your hospital.

Good luck

Love
Tina

[TinaPParticipant]

Hi Michele,

I am off to the Great Dorset Steam Fair, at Tarrant Hinton. We go every year. As we are in the Motorhome, behind our marquee, I will not be mixing with crowds of people. I will probably sleep a lot in the motorhome, as I am still very tired all the time.

But it is a break from the same four walls.

I will try and put the next stage of treatment out of my mind for 10 days,
and come back feeling stronger.

Take care all of you,
Love
Tina

[TinaPParticipant]

Hi,

I think most people have problems coming off the steriods after 4 days. I call them my 'douvet days'. I just wanted to sleep all the time. It's a really good drug, but the side effects are not good.

Hang on in there.

Tina

[TinaPParticipant]

WE are off down to Dorset for 10 days.

Will try to forget about the next stage while I am away!!

Love Tina

[TinaPParticipant]

Hi,

I was diagnosed with smouldering myleloma in 2010 after a routine blood test showed something not quite right with my red blood cells.

I went on being monitored ever 3 months till Jan of this year. I had an MRI which showed I had fractured a vertebrae and had 3 lesions on my lower spine. This was the start of my active treatment.

But some people smoulder for longer, and I don't know how long I had had MM before it was diagnosed.

Keep on smouldering, and ask all the questions you want. I have found the people on this site very supportive.

Take care

Tina

[TinaPParticipant]

Hi Mavis,
I'm on cycle 4 of CDT (hopefully my last before SCT) My pp dropped from 33 to 3 in 2 cycles.

Hope you get a long remision and start to enjoy life again. It's a long road.

Love
Tina

[TinaPParticipant]

Great News.

Enjoy your drinks, and have a good time, both of you

Tina

[TinaPParticipant]

I love your term localised flooding. But it works well, thanks.
The only problem is I have to go upstairs to the loo! I am so weak, it feels like climbing Everest!!

On a better note, after 2 cycles of CDT my pp level has dropped from 33 to 3. So hopefully 4 cycles will be enough.

Take care
Tina

[TinaPParticipant]

Hi,
I am on cycle 3 of 5 CDT and my taste buds are not working either. Also I have not felt hungry, but am eating well. I find drinking 3 litres a day a bit hard, But am managing it.
Tina

[TinaPParticipant]

Hi Alison,

I agree about the mood swings. Tuesday and Wednesday will be douvet days i guess. But I am sleeping very well, due to the Thalidomide and anti sickness tablets at night. But my husband says I snore!!!!

Keep fighting,
Love
Tina

[TinaPParticipant]

Hi
Just reading your post gives me the encouragement I need. I'm on day 20 of the first 21 course. Still seems a long way to go, especially when I'm feeling 'down' after the Dex.

I hope you continue to feel good.

Love
Tina

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