Thanks for the welcome Andy. I am kinda familiar with your journey so far….I have been lurking for a couple of months!?
One of the things my consultant and his team stressed to me when MM kicked off, was to try not to worry too much about the level of your paraproteins. Easy to say I know, 'cos don't know about you, but when I was first diagnosed I worried about everything. They told me that the level of pptns was only one aspect that they measured, and, that it wasn't nearly as accurate an indicator as some people might think.
I went to a 'information awayday' for MM sufferers down in sunny Bournemouth, well let's say my husband almost dragged me (I was in ostrich mode – sometimes I still am!). The speakers down there re-iterated what my medics had said about pptns, and I started to understand more clearly from then on.
We all have differing levels, and what's 'normal' for one person is not the same for others, yada yada yada…… you know the score. Please don't stress yourself out, over them. My pptns never went completely away before I had my SCT. I am sure that your team will get them to a level that they are happy with. And if they are higher than anyone else's… it's because your [b]special[/b], rejoice in that.
Rosie
