Hi Ali,

Hope your mum is ok….has she been on the cruise yet? Lost track!. Colin and I read early on the issues of revlimid and the secondary cancers…..it was a concern but during maintenance treatment we were just glad it seemed to be doing the trick!. However when it got to maintenance treatment Colin had other ideas about taking it as…[Read more]

Hi there,

So hope that you are able to progress this with the nhs. Colin's story of diagnosis was much more different and efficient. He went for a blood test on a Monday, phone call Thursday, follow up test flowing Monday, 24 hr urine test in the same week. A leaflet from the Gp following Colin's insistence suggested mm and then2 weeks on he…[Read more]

Hello Nicky

So sorry to hear of your loss. Mm is a very unpredictable condition and your brother so young. Our thoughts are with you.

Vicki and Colin x

Hey Tom,

Thanks, glad you are still feeling good. You are a great support to all of us. Colin been good again today….did gardening! :-). Me running about after him fussing…..no change there! We did enjoy the sun and we did have some wine :-), after the yard arm.

Hope you and young bride Elaine had great weekend too 🙂

Vicki and Colin xxx

Oh dear

I have thought about Keith every day since Ellen's post…..we are both so sorry, condolences to sue. This illness is a b.

Cyber hugs to all

Vicki and Colin x

Hi Sarah Jane,

Try not to worry this is what happened to Colin too. First harvest failed miserably, second one even worse! Third go he had to have plerixafor injections as well as gcsfs! He just got the 2 million! It is distressing as we didn't know it could fail until the first one bombed 🙁

By the way the same thing happened with Colin's…[Read more]

Hi Dai

Well a bit of a rocky road…..but the gcsfs at last are a welcome boost and let's hope rockets those neutrophils. Your new consultant sounds very proactive, so lets hope she can come up with a cast iron plan. I can't understand why they don't just let you have another go at revlimid. You were hampered last time due to the c diff so I…[Read more]

Hi there,
Sorry to hear about your mum….I wonder if its to do with platelets? The medical teams are great and checking out what the cause is and we hope she will be on the straight and narrow soon 🙂

Vicki and colin x

Hi Clare

Don't have any experience of brats but my partner had sct last November 2012. He was very poorly no doubt and it isn't pleasant, but he got through it. He is still recovering and gets very tired however we were scared before hand. We went for it because it was Colin's final decision and I supported him. I wouldn't say it's easy but any…[Read more]

Blimey

I'm exhausted just thinking about it liz….medication, injections, thermometers….clacton on sea sounds good (no offence to clacton :-)). You have a great time, all the usual precautions and a bit extra from the consultant 🙂

Enjoy

Vicki and Colin x

Hi Helen

So pleased to hear that your back is no mm, those slipped discs are painful too though! Glad to hear you've got a solution with the hair. Have you considered different colour….again but with less peroxide in. I am sure there are Eco bleaches cos there was that scare about pregnant women dying hair? Not seen my hairdresser friend but…[Read more]

Hi jean and frank,

Frank happy birthday to you 🙂 🙂 🙂 and so glad you and your family were able to enjoy a meal. Great! Hope you are ok too jean and hopefully settling into a bit of normality…..whatever that is 🙂

Onwards and upwards as Tom would say 🙂

Vicki and colinxx

Jacqui and Geoff,

Last lap now before the getting better bit, slowly and surely. Not an easy ride but get the hard bit over and you can start looking to the future. If brother in law has any worries or questions he can post on geoffs behalf….and I old stagers can help where we can 🙂

Who says onwards and upwards 🙂

Vicki and Colin x

Keith and sue

Thoughts and prayers are with you….you are a fighter Keith, one last go! Whatever is best for you

Vicki and Colin x

Good luck with the harvest and sct Scott. Have you had a sct before or your first go? We hope you will sail through it….no pain no gain 🙂 easy for me to say.

All the best

Colin and Vicki xx

Good luck with your operation Mandy….think nice thoughts. You have the support and thoughts of your friends and family….and we cyber friends. It's a long haul but be stubborn…..Mandy 1 myeloma 0 …..:-)

Vicki and Colin xxx

Hi Helen,

Re the hair…..can't you have a colour on it that has less bleach in it? There must be Eco friendly blonde colours out there as some people are allergic to the bleach. I will ask my friend hair dresser and see what she says….worth spending even more money on the hair and shoes etc if it makes you feel better. Get your daughter to…[Read more]

Hi Emma,

So glad to hear you mum is out of hospital and treatment has been effective 🙂 I can understand your mum needing to build her confidence but she has done so well, I also understand your worry about when is it going to come back 🙁 I am the same for Colin but trying so hard to push it from my mind so that we can enjoy ourselves…[Read more]

Good luck with the velcade Helen!,

If its caught early maybe it can damn well stay down down down 🙂 very thoughtful you are about your boots for your daughter!! You'll need to get Another pair as you'll wear these out damn it 🙂

Vicki and Colin x

Hi sandie

Sorry cant help with the zometa query but hope your mum is feeling better soooon 🙂

Vicki and Colin x