Yes Tom, I echo all of the thoughts above. I read that staging is not used any more!

No one mentioned staging to us and as far as I'm concerned I don't want to know. Just treat the mm and get it out of the body! Lots of effort but let's keep it going! I do understand how it's worrying though as I do enough worrying for the both so us…[Read more]

Jean and frank,

Is frank not going for the sct now? It's a really blow when you have to wait so long in between because it gives us all time to think!

Vicki and Colin x

John

I echo toms thoughts, wow doing all that by yourself and back to work. I know what you mean about the bills but aren't there any interim benefits that you could claim so that you give yourself time to recover a bit more? You must get so tired? My partner Colin has myeloma.

Are you asking about the randomisation because you will be…[Read more]

Hi ozzy

Yes my partner had a husky voice when he was on dexamethasone. We weren't sure whether that was due to that or the chemo drugs. It soon went though. His voice also seemed a bit higher than his normal tone.

Hope things work out well for you. Hope the snows not too bad where you are!

Vicki and Colin

Hi Tina,

Colin had the rash early on in his induction treatment. He was also prescribed anti histamine, he take a 10mg tablet of cetirizine every day even now. I'm convinced that stopped some of the itchy rashes as potential during sct. Perhaps you might mention this to your consultant, see what they think?

Best of luck

Vicki and Colin x

Hi Lisa

My partner Colin has just had an sct. I am always checking him temperature, whether he wants to or not ha ha! 🙂 Colin tells me he knows wye he needs it done but like the others if something is hanging about like infection I'd take it at least once a day. With regard to acts there are some schools of thought to say they aren't…[Read more]

Good luck Tom, hope the dex doesn't keep you awake too much!

It is always a blow when the reality of mdedication strikes but its the hammer that cracks the mm condition on the head 🙂

Keep going 🙂

Vicki and Colin 🙂

Oh great liz, glad to hear things are on the move. We aren't, the snows bad 🙂

Hopefully we can get to the hospital tomorrow for Colin's bone marrow assessment, yuk v painful for him. Hopefully they will have some good news for us. Its just the waiting!

Hope all goes well, keep yourselves warm and safe

Vicki and Colin x

Hi Susan

My partner Colin was diagnosed in October 2011, culminating in a transplant in October, early nov 2012. We were scared from the start, read all things scary on the Internet and then found this site, a godsend. It has helped me as Colin's supporter, and Colin, although I'm the one that does all the posting!

It is very daunting, no…[Read more]

Hello tebebe

Sorry you've had to join this happy band but hey now you are here you will find lots of support! My partner Colin was diagnosed in October 2011 and had a stem cell transplant in 2012 (October-November). I am not familiar with amyloid but never mind, if there are any questions we can help you with please ask. It must be very hard to…[Read more]

Dai

Just wanted to say hi and hope you are feeling good and the treatment working. Failure not an option. Colin has his 100 days bone marrow assessment next Thursday to see how well we are doing. Fingers crossed for us 🙂

Vicki and Colin x

Hi kev and liz

Sorry to hear about the infection…..time to bin it into touch and get those ribs sorted. Not good weather to be out and about anyway, we are snowed in here! Slowly but surely the medical team and kev will back this mm into a corner. Go for it and take care 🙂

Vicki and Colin x

Andy

Glad to hear you are feeling well and yet again those pps have dropped…..doesn't matter 2 a cycle is good. Maybe this mm is giving up the ghost as you and the treatment continue to battle it. Another Greek holiday and that sunshine should just about finish it off I reckon!

Keep going and take care

Vicki and Colin 🙂

Hi Peter

Was thinking about you……good luck with your sct. Keep us posted. You are in the best place….weather rubbish here in the Forest of Dean. Snowed in 🙂

You know what the benchmark is but we all know Tom is super human 🙂

Vicki and Colin x

Hey Tina

Well done you!

Keep this going and may you have a long long long remission

Vicki and Colin

Sarah Jane

Good luck with you sct…..do and thread it's easier so that we can be supportive. I know when Colin was going through his it was a godsend to us both.

Take care

Vicki and Colin x

Hi David,
Sorry to hear you are relapsing, could it be a blip? I hear this velcade injection can do wonders. Someone my mum knows got a 10 year remission from sct then velcade whacked it into touch again after two injections…..maybe the velcade in ejection is just the job.

Keep warm and well….snowed in here in the Forest of Dean…[Read more]

Hi all,

Helen, thanks all went well and at least Colin was able to go! Sorry to hear you've been feeling so rough on and off. It's the time of year for it. I read one of your other posts about being angry you have this mm….it's hard not too isn't it as life seems a constant battle. Still as long as we are battling, we are here so that's good…[Read more]

Hello Lesley,

My partner Colin is on the myeloma x1 trial. He took revlimid, dexamethasone and cyclophosmahide for 7 cycles and that took him into remission. He then had a stem cell transplant in early November 2012 and is recovering. Over those 7 cycles it was hard sometimes and Colin felt unwell sometimes, with a few infections inter…[Read more]

Hi jacqui,

I see that you said Sean Macpherson is leaving, well that's a surprise. New Zealand eh! Certainly a long way from Gloucester! Glad geoffs pps have got down to 2.5, who knows a couple more cycles and he could be zero!. Colin went to see the sct nurse today. Bloods all ok, he is due for a bone marrow assessment on 24th January to see…[Read more]