Hi ann and Peter,

Good luck with the appointment on Tuesday, SCT looming fingers crossed!. Sorry about the cough and cold there is a lot of it about!.

Well all I am worried! :-(. Bloods (neutrophils 1.4 ish), he needs some platelets I'm told but that was Colin telling me and he's a bit drugged up!. Generally he is eating better and drinking…[Read more]

Chris,

That is wonderful news, so so pleased for you!. I'm glad that you have recovered so well, but remember as everyone has warned you must take it easy and not get over doing it!. I bet Lena and the family are thrilled to bits….:-). You won the race! Colin is definitely going to be in over the weekend. His neutrophils are fine, I think he…[Read more]

Hi chris and Lena,

I love the home DIY shows too! That's what I watch when colins asleep as he is now. Sorry your blood has got stuck but I bet by now it's on the move. Colin has had the opposite, bloods shot up like a rocket and the gcsfs have made him feel in agony and he is drugged up to the eyeballs and won't be allowed home this weekend…[Read more]

Hi all,

What twists and turns this myeloma, SCT lark brings! Here we are again. The last couple of days have been hell. Colins bloods have recovered very well it seems. Last neutrophil count 1.4!. That's great and as far as I know hasn't had platelets for a couple of days. The both ends issue that Ali mentioned has not been too bad. What's the…[Read more]

Hi chris,

Just tuning in to you and Lena, hoping that things are going well for you. Colin has been pretty rough last 2.5 days but picking up a bit now, however struggling with food and drink!. Hope your tummy is starting to settle down after coming off the antibiotics. Wish Colin could eat a bit more,like you! Colins neutrophils are 0.45 we…[Read more]

Hi all,

Well the last 2.5 days have been absolutely awful, Colin seemed so I'll, sick, tummy troubles and looked absolutely awful. Even this morning he sounded so awful. There are problems with eating, drinking,stomach feeling awful, rash however, seen the consultant this afternoon…..neutrophils back up to 0.45 which they are very pleased…[Read more]

Hi all,

Thanks…. You're right it's a slow thing. No worries. Helen you must know colin, he is grumpy already! 🙂 and some of those meds, whatever they are he is talking garbage sometimes! Still they seem to be doing the trick! Hope you are feeling better Helen with that pesky cough.

Ann and Peter, hope you are both well and Peter is…[Read more]

Chris,

That's wonderful. You keep going! Sounds from what you and the others have said you are well on the up!. Colin is looking like a bag of spanners and his hair has started to come out, for the second time!. They are ploughing anti bios in like a rate of knots! So glad you are on the up, pending release at the end of the week eh 🙂

Well…[Read more]

Hi both

We feel for you guys and wow feel very inadequate about what can be said that doesn't sound patronising. To be honest it's hard enough to cope with the diagnosis, without the disability that can come with it. You guys are absolutely wonderful about the way you are managing. The pps have come down in a big chunk haven't they. So that's a…[Read more]

Hi Phil and family,

Sorry ibliza was shut……I thought it was a rave place?

Update on Colin, the rough weekend. Consultant tells us he will start to recover, likely Monday, roll on. He doesn't look great and I'm just waiting for that hair to start coming out. He has eaten a very small amount but I reckon he's a bit like his elderly…[Read more]

Hi chris,

Just wanted to tune in to say hi to you and Lena and hope you are feeling a bit better. Pleased to hear that you are eating a bit because it's so difficult with that mouth and throat isn't it!. Colin is sleeping at the moment. He has a bit of a temperature so trying to sleep it off . Keep going and hope you are making…[Read more]

Tina,

That's an absolute pleasure. I feel humbled by all you guys! I'm sat here with Colin in hospital. He's on the bad weekend before the neutrophils start to recover. He has a bit of a temperature so sleeping at minute. I'm sorry there's not much advice I can give you…..will probably be looking to you for advice when Colin comes home:-).…[Read more]

Hi Debbie,

Colin drove most of the time through his treatment, but like the others it varied depending on whether he felt okish or not. In terms of holidays we did not bother with any when he was diagnosed, mainly because we were too scared because he was in and out of hospital like a yo yo!. We did go to friends in cornwall for 2 days when…[Read more]

All,

Thanks so much for the encouragement, both for Colin the major player, and me the minor part 🙂

Colin was ghastly yesterday, but today to my amazement he sounded a bit better and actually phoned me from hospital this morning for a bit of a chat!. I understand what you mean about those special people, well they all are, but there are…[Read more]

Hi chris,

Glad you are able to be eating a bit more x. And also glad that you are managing to tolerate montezumas!. Slowly but surely on the blood counts. They say they start going up and then boom they are off. Keep enjoying Tesco's finest, at least you are eating, which is more than Colin!

Colins mouth is really bad at the moment, so it's…[Read more]

Hi all,

Helen thanks for your advice, sorry you've still got the cough, blimey it's been going on. The wet weather in Cornwall won't help but hey we don't go to Cornwall for the weather, just the beautiful,scenery etc. We love it there. It seems like a long way away at the minute! I meant to bring coke in today Helen but was in a rush and…[Read more]

Hey Tom,

What a charming picture you paint! :-). I am sure that fills you with glee chris!. Sorry you've got the montezumas, however I seem to recall from dais post he had it for 2 days only, fingers crossed!

As for Colin they've got the sick feeling under control but the mouth is starting to play up so got this gel like mouthwash. He's…[Read more]

Mavis,

Great news and wishing you a lifetime remission 🙂 🙂 🙂

Well done and best of luck. Hooray!

Vicki and Colin xx

Hi both

Have a great holiday, if ever there is one deserved, it's now! 🙂

Vicki and Colin x

Hi chris,

Hope you are feeling ok, and montezumas revenge, if arrived is not too bad. Bet Lena will be glad to have you home :-). Hope you're enjoying the west wing. Hope the antibiotics are doing their job, best of luck. Nearly there for the upwards trend now. Your post made me laugh about the loo roll. At least I've got a sense of…[Read more]