Hi Mke

Sorry to hear you have recently been diagnosed with Myeloma. My partner Geoff is 54 and has recently been diagnosed, we also live in Gloucester and attend the EJU outpatients. Was wondering if you would like to meet Geoff and perhaps you can help each other through the treatment.

Jacquie

Hello Dai

Neutrophyls 0 for 11th to 15th. 0.03 on 16th, 0.38 on 17th, and 2.22 on 18th.

I guess you win your bet. I win being home!

Best wishes and keep well

Stephen

This will be my last entry on this discussion as, yesterday, I was discharged from hospital and allowed to come home. 16 nights is hardly a record but certainly below the norm.

During my isolation I was provided prints of my blood tests on a daily basis. It was fascinating to watch them deteriorate due to the melphalan but even more amazing…[Read more]

It's probably worth me providing a brief update: Today is day 12 since I was admitted and I should now be in the "low point". Yes my neutrophils and platelets have gone right down but I'm coping quite well. I got a brief temperature "spike" which prompted the medical team to give me anti-biotics and now my platelet count at 5 will result in me…[Read more]

Thank you so much to everyone for your kind words and (importantly) for the humour. It is most encouraging to know that others have had similar experiences to mine and that I can communicate with you as needed.

I encourage anyone embarking on such treatment to similarly use the forum.

Thanks everyone and keep well

Stephen

Thanks for everyone's kind words. I you wish to follow my progress I have started another discussion "Bristol SCT"

Keep well

Stephen

Liz

Many thanks for your post. One of the benefits of the forum is the realisation that we are not alone with this disease. I've sent you a personal message with my email address. You are most welcome to contact me direct if you wish. I note Vicki's post above and wonder whether you might consider posting details of your experiences.

I…[Read more]

Hello Vicki and Colin

Reading both this post and the discussion you?ve also started, you are going through something of a roller coaster and clearly feeling anxious. I won?t repeat the very good advice you?ve received from your discussion. The key, certainly for me, is the gathering and interpretation of information. I quickly found that I…[Read more]

Hello Dai

Many thanks for your post. I was sorry to learn that you had something of a struggle to harvest your stem cells.

I was phoned earlier today and have been scheduled for admission for HDT&SCT starting Monday 2nd July. I can?t beat your world record ? it seems that I have only 13 bags which will be infused on two consecutive days…[Read more]

Dear Mari

Thank you for your most encouraging post. It is perhaps a shame that Stephen relapsed as soon as he did but he and you will be relieved that he has responded to the Velcade. Please do keep in contact; I would be most interested to hear how the next mobilisation and collection goes.

The very best of wishes to you both.

Stephen

When I wrote my post dated 14th June, I thought that my yield of 2.16 was the number of doses. I?m keen to ensure that I don?t misinform anyone. Yesterday I saw my consultant at Bristol who clarified the matter. My collection yielded 2.16 million stems cells per kilogram of my body weight. Since 2 million are required for one course of…[Read more]

Hello Eve

Many thanks for your comments. Looking back on your posts, you?ve obviously had mixed experiences; very different to my own. I find myself so often saying how fortunate I am ? especially when compare to other patients I read about and meet in clinic. I am especially fortunate to have encountered excellent support ever since I was…[Read more]

Many thanks for your response Scott. Looking at your past posts, you've certainly been through the mill.

It was because I was in the Myeloma XI trial that I was first randomised onto Revlimid. At first it worked OK but the 4th cycle indicated lack of response. The trial then randomised me onto Velcade but my paraprotein did not go down,…[Read more]

In my second post dated 30th April, I promised to provide an update. It took until my appointment on Tuesday to get my paraprotein result for the start of consolidation cycle 2. When I saw my consultant Dr Jenny Bird, the result was not on my notes and she had to contact the lab in order to make a valid decision. The news was not as hoped. My…[Read more]

Thanks to far to Tom, Eve, Andy and Debs. Since I was diagnosed I?ve discovered so many positive things. The value of Myeloma UK especially in terms of the information it provides and the friendliness and support of its Forum. This has been my first post and the speed of reply has been remarkable and most supportive. Tom responded in minutes…[Read more]