[VickiParticipant]

Hi there,

My tip is be positive, think positive and try to only read sites like this. The rest scare you. I know it’s hard to be positive sometimes as it can look bleak, however try to as it will make you and hopefully your dad feel better. Remember 70 is the new 60 🙂

Good luck with the treatment.

Vicki and Colin

[VickiParticipant]

Hello all

A happy Christmas to you all, enjoy every moment. Life is for living. Take care and enjoy xx

[VickiParticipant]

Dear Janet and family,

I’ve had trouble logging in and have only just read this very sad news. To you all I send our condolences. Dai’s ability to paint a picture of his circumstances, even when they were some what messy….cdiff stories, could always inject a sense of humour. He was so encouraging and enormously knowledgeable. These words don’t articulate the high regard in which I held Dai and the gratitude for the support he wrote when Colin was going through his treatments.

Our thoughts are with you

Vicki and Colin x

[VickiParticipant]

Ohno dammit I can’t believe this! I’ve not been able to log on and have only just got the hang of this. Oh bugger, i feel really upset….what happened. Dai was an absolute inspiration, and poor Janet. I feel sad for Dai. He was a huge encourager. I am sorry sorry. A great guy, poetic and so descriptive. Who could forget the cdiff stories.

I am so sad and gutted that I missed this.

Vicki and Colin x

[VickiParticipant]

Hey graham,

Good luck with your treatment. It has taken me a long time to get the hang of the new forum and even longer to work out how to login! Wishing you all the best

Vicki and Colin x

[VickiParticipant]

Hi there

I too was convinced that my Colin had been exposed to radiation. He had shingles then was just getting over it and went somewhere where I think he was exposed. He won’t have it but I’m not sure. However with caution I am the sort that I need a reason for something and I won’t ever make sense of this mm!

Vicki

[VickiParticipant]

Hi all

It is very difficult to not be negative at times, this has all been a real shocker and there's no doubt with that……but Eve's right. Live a lot and enjoy each day 🙂

Vicki and Colin xx

[VickiParticipant]

Hey that's great news about the pps,

Colin still gets very tired too, the cycle seems to be he does a lot then is totally whacked for a while. Hope you are ok too megan

Best wishes to all

Vicki and Colin 🙂

[VickiParticipant]

Hi there,

My partner Colin had several blood test, a skeletal survey and also a 24 hour urine sample test to count the bence jones light chains which is a symptom too. Like the others he had 7cycles of induction treatment andnthenna stem cell transplant of his own cells in November last year. It was a real roller coaster of a ride as he had lots of infections and we had a few visits to hospital during the induction treatment but it was ok in the end 🙂

Ref myeloma we are told its not curable but it is eminently treatable, so good luck

Vicki and Colin x

[VickiParticipant]

Hey

Well done you, there will be ups and downs but you can do it. This forum has been a godsend to me as the supporter and Colin as the sufferer! Make sure you keep talking its most important 🙂

Vicki and colin

[VickiParticipant]

Hi Christine

Just to add my twopenneth, my partner Colin was diagnosed age 56, like you very fit and healthy and absolute shocker. We felt like we'd been hit by a bus!. But we got there, Colin had 7months of initial treatment and then an sct. He has been in complete remission since sct in November 2012.

Yes it's a nightmare but the medical teams are knowledgeable, skilled and work to make the condition under control. Eve's right, life's not over, just different. It is hard I know because I worry when it will come back but try to live life to the full. There will be down days but whatever you do don't give up! Enjoy your children, life is not over until its over 🙂

Best of luck with your treatment x

Vicki and Colin x

[VickiParticipant]

Hi all

Re the maintenance Colin was offered it and said no….we try not to think about it and hope for the best at all times.

Jean, Colin goes through some real tired times still. There will be times when he is full ish of energy and does loads (like this afternoon he was up a ladder oh oh and cutting the top off a tree in our garden…..then tonight he is falling asleep ad snoring so loud I need to turn the telly up LOL! It's such a roller coaster, at times I think Colin was better before sct but on reflection I doubt it…..we just forget. Colin's recipie for well being is whiskey, however I do wonder whether the vodka is really the wonder drug. Jean we too have a new consultant, at our last appointment he kept saying fingers crossed…..not what you want to hear, doesn't fill with confidence, hoping he is relying on medical knowledge not luck!

Toms right, there are some real peaks and throughs with the energy, running etc but try to go with the flow…..easy to say, hard to do, I know! 🙂

Hope you guys are all ok 🙂
Take care all

Vicki and Colin x

[VickiParticipant]

Gosh Maureen and Ian

You guys are having such a rough ride. Lets hope that things start to smooth out a bit soon. You must be shattered Maureen!

Vicki and Colin.

[VickiParticipant]

Babs

Thanks for this post it does lift the spirits, the thing is I sometimes wonder as the supporter if I should lock the mm ghost in the cupboard so that Colin and I crack on and make the most of it, but I've And we have felt so supported on here that I want to keep it up for others, even if it does remind me of this thing that follows us around every day, good days and bad

You keep up with your travels and enjoy that remission 🙂

Vicki and Colin xxx

[VickiParticipant]

Hi there

Just chipping in to wish you and your mum well on this rocky road we are all travelling!! Sheis very young to opt for no treatment, Re the medical team happy to watch and wait at the moment?

Either way best of luck

Vicki and colinxx

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