[VickiParticipant]

Hi David

Quick touch base to say great result for the pps, hope you sailed through the radiotherapy and that the Sunday dinner went well 🙂

Onwards and upwards….I must think of my own catchphrase!

Vicki and Colin xx

[VickiParticipant]

Oh Dai

Sorry to hear you have a hospital stay and gourmet food! Hope they can get your temperature and bloods on an even keel. There's no place like home, so fingers crossed for you

Vicki and Colin xx

[VickiParticipant]

Oh flipping eck!

We do hope that the next op is quick, you two deserve some luck

Fingers crossed for you both

Vicki and colinxx

[VickiParticipant]

Hi Angela and graham,

My partner Colin was diagnosed in October 2011, and like graham had terrible back pain. Thankfully Colin's doctor was on the ball as he'd had a stint in oncology and had an inkling that something wasn't right. Within a month we had been referred to a haematologist and was on treatment by the end of October 2011.

It is a hard road, and as the supporter it was very difficult at times, however we got through it and Colin had an sct in November 2012, so a year ago about now and he is in complete remission, so fingers crossed! It isn't easy as the treatment can make you feel quite poorly, understatement! But it did reduce the pps. Colin was on myeloma 11 trial taking revlimid, cyclophosmahide and dexamethasone. The worst with the dex was the emotional roller coaster, up at night and sometimes very emotional. It was hard but it is doable.

This forum is a godsend and I found it so helpful when Colin was going through sct.

Good luck to you both with the treatment

Vicki and Colin x

[VickiParticipant]

Hi Chrissy,

My partner Colin had radiotherapy on a bone in his back. When he was diagnosed we were petrified and even more so of the treatment. The radiotherapy, as Tom says was over very quickly, he had one massive dose that latest minutes. It left him with a mark on his back, like a square, and he had to have cream on it to make the skin smooth again. The radiographers explained everything. Sometimes people are sick but they give you tablets for that, and it did make him a bit breathless at times for a while but overall he got through that ok.

With regard to the X-rays/MRI, Colin had a whole body scan and they look for mm in the long bones, like your spine, legs, etc. Colin had mm in back and a little bit on leg, but they didn't give any treatment for that. He went on m11 trial and had sct in November 2012, in fact it's a year now :-). It was challenging, and very upsetting a times but you can do it. With the help of the forum, friends and if you have family it is the ideal combination, along with the medical teams who are great.

Good luck with your treatment

Vicki and colinxx

[VickiParticipant]

Hi Dai

Wishing you all the best with your new treatment…..good old ( well less if the old!) Janet for spotting the signs, old hand by now but none the less glad you are feeling better.

Keep,it up

Vicki and Colin 🙂

[VickiParticipant]

Firstly Andy,

Can I say you and steph are amazing….coping and doing so much enjoying! Well done you guys. It's so good to hear that you have that positive outlook as it could so easily slip the other way….well done you guys you are a lesson to us all 🙂 🙂

It's a bugger that those pps have gone up a bit…..clearly not enough beer and sunshine, so you must do something about it!!,!

Wishing you and steph all the very best. Also looking forward to the dex rambles as and when they arise!

Onwards and upwards, every days a gift……I really must think of something for myself 🙂

Vicki and Colin xx

[VickiParticipant]

Hey good luck alpenator and well done Mavis!,

It's a funny old game isn't it…..so many questions, sometimes worry and sometimes damn relief. So pleased you have reached a point where you can have a break in the treatment and long many your re missions continue x

Vicki and Colin xx

[VickiParticipant]

Hi John

My partner Colin also injured his back as part of the myeloma challenge! He fractured a vertebrae and they did radiotherapy. Then he was on the myeloma x1 trial which was cyclophosmahide, dexamethasone and revlimid. He did that for 7 months then he had two goes at getting the stem cells out, third time lucky and then sct in November 2012. It was sometimes a rocky road and we had a few visits to hospital with infections but the medical teams are great, they know what they are doing. Have faith, fight on and as eve said, ask lots of questions….I did that for the both so us…..still do 🙂

Best of luck

Vicki and colin xx

[VickiParticipant]

Hi Dai,

No departure speeches please! You've got a new drug to contend with and am sure when you are well enough Janet has a list of jobs for you to do LOL!!,

Try to keep those sugars under control, do I recall Janet is an excellent cook? If so it's hard then with all the nice goodies. Onwards and upwards as our friend says!

How's your mum Ali?

Vicki and Colin x

[VickiParticipant]

Hi jean and frank

Yes it's funny isn't it….Colin has real up days and does loads then bang, shattered for a couple! Still guess that's the cycle! Hope frank continues on the upward trend! At least you two had a get away! You both looked great anyway!

Vicki and Colin xx

[VickiParticipant]

Hey all

I can't help with any of the questions but just wanted to say thanks for the inspiration debs and hi Helen hope you are doing ok.

We live an existing life here….me on the forum and Colin is looking at the instructions on how to use and electric planer as he's planning g to shave off some doors tomorrow! Who needs a jet set life style!. Loving every minute of normal 🙂 🙂

Stay well all

Vicki and mr DIY!

[VickiParticipant]

Hey

Well done Dai, you need some good luck, fancy that major eye improvements. Keep battering the mm and all is well 🙂

Vicki and Colin x

[VickiParticipant]

Hi Marie and chris

Can sympathise with the bombshell effect. My Colin was diagnosed in 2011 after going to the doctors with a bad back! It would be wrong to say that life is totally normal as I'm not sure it can be after a diagnosis like this, however….life can still be good and we thank our lucky stars every day. Colin had his sct at end of October 2012. We are trying very hard to enjo every moment, and we are!

Every now and again it does get a but much whe you think too deeply, but hey just enjoy life best you can. It's not been an easy road getting here, as others will know but we are here and trying to be as positive as heck 🙂

Hey jean and frank, you look posh on photo , was that the cruise, hope all went well!

Hefty Tom great to hear from you and showing off, getting up so early 🙂

Best of luck and keep well all

Vicki and Colin xx

[VickiParticipant]

Hi Rosie and Iona,

My partner Colin was diagnosed in 2011 age 55 followed by sct in 2012. It was a tough old road and its hard to be normal, as for a while we forgot what normal was. We are trying our best to keep going. You guys keep going too, it's hard for the supporter but with a team spirit it can be done. Colin started with light chains of 31000 and it halved after the first session. Be patient, ask lots of questions. You can do it. Rosie it might be tough with 7 kids at home and the hubby 45!

Best of luck with it

Vicki and Colin x

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