[VickiParticipant]

Hi Greg and family,

Firstly hope your wife is feeling a little better today and oddly welcome to the site 🙂

This mm can be a real roller coaster, my partner Colin was diagnosed in October 2011 and had an sct in October 2012. There want a month went by during his induction treatment of revlimid, cyclophos and dex where we didn't have to visit the hospital or he was in for a week at a time, full if antibiotics, like your wife. He had his treatments delayed too because his neutrophils were so low. It is a real blow when that happens but he got through it, and so will your wife with your support. It's not easy though and mentally this is a tough nut to crack, for all concerned. Hopefully you will be able to refocus and crack on soon

With best wishes, and ask away any questions, Vicki and Colin xx

[VickiParticipant]

Hi Christine,

Please don't look too far forward. Look forward a day at a time. The medical teams were great with Colin, and me when I was blubbing outside the door as I was so scared too but couldn't show it :-). The team were so attentive, medically aware, check after check was taken, no stone left unturned. You can do it, you've got this far 🙂

Vicki and Colin xx

[VickiParticipant]

Tina

Like my Colin you have been through something huge. I agre with the others , it has been a massive challenge to get this far. Dai, Tom and eve hit the nails on the head. I get sad, and angry sometimes for our lot and that's only me the supporter, so why not you. Crying is a great release to tension and emotion, I don't blame you and glad to hear you have seen the psychologist too :-). Tina you need time to,adjust, it has only been a short time and the hill to climb was steep. Try to find and enjoy some good times. Grab life with both hands and wring the best out of it you can. That's what we are trying to do with a few blips on the way. Sorry if this sounds preachy….not meant too just want to be encouraging 🙂 🙂

Vicki and Colin xx

[VickiParticipant]

Dai

You make,treatment sound hilarious. You have a real knack of putting things into,context. Just at the right time when things sometimes get on top of you. Hope this Olympic speed injection is doing you some good 🙂

Vicki and Colin xx

[VickiParticipant]

Hey marina

Well done, it is so hard isn't it but so glad hubby is making a bit of progress…..onwards and upwards as Tom would say 🙂

Vicki and Colin xx

[VickiParticipant]

Hi Jill

My partner Colin had light chains of 31,000 when he started this journey. He thankfully had no kidney damage and only one damaged vertebrae and given what I know now I can't understand how he didn't have worse if I can say worse effects! The consultant said it was because he was fit and strong so may be your mum is strong which is a good start!

Colin's light chains went down by at least half after the first cycle of treatment and they had to check it to make sure it was right!, so it is doable. We so hope your mum makes good progress. It's a tough ol road for sufferer and supporter but be strong and whip this mm into shape 🙂

Vicki and Colin x

[VickiParticipant]

Scott

Just tuning in to say hope you are feeling reasonable ….that's pretty good on sct territory I believe! Keep you chin up, be strong and focus on one day at a time xxx

Hope the other (better half!) is keep her chin up. From one supporter to another it's bloody hard 😉 but lights at the end of the tunnel

Vicki and Colin x

[VickiParticipant]

Hi there

I am a supporter too. My partner Colin was diagnosed in 2011 October 3rd to be exact. He has been a marvel, 7 cycles of crd and a sct in November 2012. He is doing quite well over all but the bone pain it has left him with us awful. As the supporter, same as you, I feel so useless and get upset when I can't sort it…..I'm a sorter and this one is beyond me!

I know how you feel but hey as the partner it's so I portent to keep strong for them…..not easy and it feels like life's unfair but what can you do but get on with it.just focus on getting your wife through it, you can do it but there s no doubt it's hard for all of you…..been there and got the t shirt sadly, however ther e are great treatments coming on line. Steroids are a nightmare but you do get used to it!!, 🙂

Good luck

Vicki and Colin xx

[VickiParticipant]

Hey Tom

Glad you are doing ok…well done, I think Colin had a cough too but it's gone now. He did have a very dry throat and there was like a dry patch on it, or so he thought. It seems to have cleared now though.

Vicki and Colin x

[VickiParticipant]

Hi Scott

Best of luck with your forth coming sct. It's not something anyone would look forward too, try to think beyond that and your recovery. Best of luck and hope you sail through it

Vicki and Colin x

[VickiParticipant]

Hey well done tony that's great news, so glad things are still oh the even keel. We like the even keel!

Vicki and Colin xx

[VickiParticipant]

Blimey sue,

I don't want to sound patronising but you are taking all of this so well. You are amazingly positive. My partner Colin was diagnosed in October 2011 and it was a bloody nightmare. He came through to sct in November 2012 and is in full remission now. That said we don't have young children or other pressures of divorce and you are self employed….wow 🙂

From your husbands point of view it's hard being a supporter cos you feel helpless, scared and basically all over the place. For you though it's a complete life changer! This forum is wonderful and such a support. Would your husband benefit from talking on here too?

Ask away, someone is guaranteed to know something of help! With regard to support for you and the children, money or emotional what about speaking to a Macmillan nurse?

Just a thought

Vicki and Colin x

[VickiParticipant]

Peter,

Good luck to you. It's important that your partner talks as well. My partner Colin who has mm (in remission 🙂 :-)), hears about all the posts and what I put on, but I'm the one doing the posting. Being the supporter is a tough job too….it can be lonely, frustrating and scary as you want to make it all ok…..

Good luck to you both x

Vicki and Colin x

[VickiParticipant]

David

We've not ventured much further than our gate so far so can't help with the post, although I'd take some time of back up to ensure customs know what it is and why you've got it. Letter, prescriptions, box it's in etc.

Have a great, safe and enjoyable holiday x

Vicki and Colin xx

[VickiParticipant]

Dai

That's great news. It must feel even better to have a choice!. The figures look good to me so hopefully that's good news 🙂

Crack on Dai you are an inspiration :-), along with Janet who is playing the quiet support role:-)

Vicki and Colin x

[Author]

Posts