[VickiParticipant]

Hi Helen, and all,

Sorry not tuned in for a while. Been trying to have a bit of normal life…..I thought not tuning in would make the myeloma bubble disappear but it’s always there in the background. Helen I’m so sorry to read that you have relapsed again. This blinking disease has no respect for anyone or anything. I keep reading about progress but it can easily lead to despondency…..but no, onwards and upwards it is! Damn it.

Colin and I had a great holiday in mauritius. It’s hard to believe we actually did it, me with a cold and Colin ending up with a chest infection…..the antibiotics and lemon grass tea did the trick though. When it’s a great sunny day like today it’s hard to believe the shadows of mm is behind there lurking. Andy right every day is a gift so trying to treat it like it! Scared to say that Colin (touchwood) seems to be doing ok.

Although not tuned in (and the signing in process is a nightmare)! I have been thinking of you all. Best of luck with whatever the next treatment is bel 🙂

Vicki and Colin

[VickiParticipant]

David well done you! That’s great news, your positive attitude is definitely the extra boost that follows the drugs. I truly believe the success stories are the inspiration we all need to keep going …..perhaps also a little vodka? 🙂

Vicki and Colin xx

[VickiParticipant]

Hi Andrea

Just wishing you all the best with your treatment , positive thought is so important, hard to do but keeps your chin up. Hope all goes well for you

Vicki and Colin xx

[VickiParticipant]

Oh Andy,
Sorry to hear you are going through the mill a bit. This myeloma is such a bugger…..affecting the blood is one thing but when it affects the bones ic completely another and that’s the real low baller of this damn disease. Hope things are starting to improve a but now. How come they didn’t spot the collapse coming?

Hope stephs ok too 🙂

Vicki and Colin xx

[VickiParticipant]

Hey Tom,

Just picked up on the thread, glad you are doing well and feeling ok, there is no doubt about it, you are an inspiration. I will never forget the support that you gave Colin and I when we joined the site and continue to do, for us and all of the fellow cyber friends. Any idea when the next sct is? I might have missed it because I still can’t get the hang of this,forum !

Vicki and colin xxx

[VickiParticipant]

Hi all

Jus to chip in on the travel insurance. We insured with nowicantravel. They were great, very sensitive with the questioning and covered the myeloma! We have been back a week now, following two weeks in mauritius. I felt secure as we had good cover for us both! That said I can definitely confirm take the thermometer and antibiotics when you go abroad, I got a cold and cough when we got there, closely followed by coil catching it!….I was worried for a bit but the antibiotics did the trick followed by lemongrass and honey tea. The thermometer was the comfort blanket as well.

Happy holidays if you can manage it 🙂

[VickiParticipant]

Hi Jo and eve,

Sorry to hear you both (and slim) are having a rough time.myelomas hard but when there are kidney issues as well it must be a real burden! It’s funny how we all float on in life until this Big Bang myeloma rears it’s ugly head…..don’t know bout you but I’ve forgotten what life was like without it!

Hoping that things improve for you all

Vicki and Colin x

[VickiParticipant]

Hi there

Sorry I have never heard of this either. Good news though that they caught your dad early and they can monitor him 🙂

Vicki and Colin x

[VickiParticipant]

Hi both

Just tuned into this thread. Good luck to you both and keep positve. My partner had his sct in November 2012, we were scared witless before it started but we took each day as it came. He had good and bad days but achieved an full remission so keep your chins up. Did you have ice lollies when you had melphalan? It helps with the sores.

Best of luck both

Vicki and Colin xx

[VickiParticipant]

Helen

That’s great blood results and glad to hear you are getting away on holiday. Have a great time and be frugal as you have a wedding to pay for, lol x

Vicki and Colin x

[VickiParticipant]

Carol that’s great brilliant news, well done you

Vicki and Colin x

[VickiParticipant]

Hi jean and frank,

Hope the consultant visit went ok today and franks continuing to improve with the shingles. Colin told me it was very painful when he had it! Calomine lotion is meant to be good for it too.

We are going to mauritius next week for two weeks. Weird considering we haven’t been anywhere and now we are going long haul. Lord knows what it will do for Colin sitting around all that time…..we are hoping for an upgrade at the airport. air mauritius only do economy or business class. There no in between and if we had upgraded when we booked it would have put an extra £4000 on the holiday! Keep your fingers crossed for us. Mine crossed as well

Best of health to you both

Vicki and colin x

[VickiParticipant]

Hi Andy and steph,

Glad to hear you’re getting the chance to travel, even with the hospital interruptions! I didn’t mean to sound like I was saying we need to lighten up….it’s a v serious subject! It’s just that sometimes it scary and we all need someone to throw a lifeline in here and there 🙂

Glad you got to the pub for tea and some beer. That’s the one thing Colin hadn’t gone off….in fact he seems able to drink most things again now. We have some friends who are well into real ale….we went to the Falmouth beer festival with them….except I don’t like beer so my first words to the real ale experts was….do the do wine here! 🙂

Have you finished your house renovations? We’ve finished ours and it’s nice to have the house to ourselves again….no builders

We hope your next phase of treatment proves effective Andy, you deserve it! Interesting article in the myeloma newsletter about a research discovery in terms of clonal/ cell grouping that talks about some common trends that might assist with tailoring treatments to individual needs and reduce the situation of myeloma cells becoming resistant to treatment. I think I’ve got this summary right, that’s the way I read it anyway.

Keep well all

Vicki and Colin x

[VickiParticipant]

Hi Alison

Lovely to hear from you how is your mum doing? We aren’t on face book! We need to get with the programme as they say! Yes we have finally bitten the bullet we are going to mauritius for 2 weeks! Really looking forward to it, I got told off last night for being paranoid as I want to take the thermometer with us! I have managed to get Colin to agree to take some antibiotics just in case!

We still have peaks and troughs of tiredness but touchwood all of so far…..

Vicki and Colin xx

[VickiParticipant]

Hi Carole

Just wanted to wish you all the best and that you are on the mend a bit. Fatigue has always been a problem for Colin. Hope you throat is feeling better. That was a real problem for Colin too x

Every day is a day closer to full health

Best of luck

Vicki and Colin x

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