I'm playing catch up too! So sorry to hear that you have not been well and the Velcade does not work for you. Thalidomide didn't work for me but Velcade did, we are all different! Hopefully Revlamid will be good for you, and as Eva says combinations often work where something on its own doesn't. Hope you managed to have a great Christmas…[Read more]

Hi Amelie, I think it is great that you are making this speech! Don't forget though that Myeloma is such a varied illness. I have never had back pain or any other bone problem and my illness was discovered, eventually, after months and months of anaemia and lots of serious infections. They kept treating the infections but nobody tried to find…[Read more]

Dear Roz, I am so very sorry that Michael has lost his fight. You have been a tower of strength for him in the last year. He is at peace now and your world has changed forever but your love for him will never change. My thoughts and prayers are with you at this very sad time. Vicky xxxx

Your room sounds wonderful! Much better than mine, I'm jealous! It's sweetcorn day today, you are doing really well and have the necessary positive attitude. Thinking of you.

ps Sorry I haven't been in touch before but I have only just worked out this site!
Vicky