I have just been given the good news that on day 14 they are sending me home. It has been a trial at times with all the usual problems particularly trying to eat when feeling sick all the time.Had no mouth problems. Stayed rigidly to the anti fungal regime laid out . Ambrosia Devon custards seemed to settle my tummy a bit . Hospital food is quite…[Read more]

Hi Peter
Thanks for your reply. Going to see specialist today to ask to go on myloma X1 trial. Hopefully starting with first course of chemo from today. Will be doing another bone marrow biopsy so that they can freeze it for future reference. Presumably will also check /confirm I have IgM melanova. Apparently it is quite rare. Hope you are still…[Read more]

Hi Peter,
Thank you for replying to my daughter Louise. My pp is 47. I am seeing my consultant this wednesday regarding wether to go on the standard treatment or the myloma X1 trial. Haven't made my mind up yet. Any comments re this? Have yet to make contact with local support group. My wife and I live in east Yorkshire. Was originally diagnosed…[Read more]