[WebsterParticipant]

I have just been given the good news that on day 14 they are sending me home. It has been a trial at times with all the usual problems particularly trying to eat when feeling sick all the time.Had no mouth problems. Stayed rigidly to the anti fungal regime laid out . Ambrosia Devon custards seemed to settle my tummy a bit . Hospital food is quite bland because they tend to overcook it to remove all the bugs.. My neuts are now 0.88. It is most important to stay positive throughout the journey . Obviously still a long way to go yet to get up to speed. As Tom says "onwards and upwards"
Thank you all so much for your contributions on my journey which has been documented by my dear daughter Louise.
Garry

[WebsterParticipant]

Hi Peter
Thanks for your reply. Going to see specialist today to ask to go on myloma X1 trial. Hopefully starting with first course of chemo from today. Will be doing another bone marrow biopsy so that they can freeze it for future reference. Presumably will also check /confirm I have IgM melanova. Apparently it is quite rare. Hope you are still going well . Key thing is to be positive !
Regards
Garry

[WebsterParticipant]

Hi Peter,
Thank you for replying to my daughter Louise. My pp is 47. I am seeing my consultant this wednesday regarding wether to go on the standard treatment or the myloma X1 trial. Haven't made my mind up yet. Any comments re this? Have yet to make contact with local support group. My wife and I live in east Yorkshire. Was originally diagnosed with non hodgkinsons lymphoma but the bone marrow biopsy confirmed myloma IgM.Dont yet know what stage I am but have no bone pain, just night sweats. Feel a bit tired and still a bit in shock. Intend to keep a positive approach to everything.

Regards
Garry

[Author]

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