hi Tom, I havent been on here for a while so u might not remember me:-D just an update on John my other half. He had his SCT and came out of hosp in March feeling really rough and weak after it of course. After a pretty short while, he picked up, and he started back in work – he's self employed – everything seemed ok at all his checkups in both…[Read more]

Hi Jean,
Nice to hear from you, thank u for the info, and it's great that u are doing some research on cardamon – I wonder what the consultant will say?! 🙂 Very often the USA and Germany are far in advance of us, so it is a good thing to keep on top of what they are doing over there. I can remeber reading about tomatoes containing lypocene and…[Read more]

Hi Ian, glad to hear the sedation worked well for u with your BMBs – I remember having something of that sort when I was a teenager and had to have a lot of work done at the dentists! Cor, I thought I was flying!! It's good to know that it is available to you if you need it.
Also very good news about your test results, that is wonderful and long…[Read more]

Hello Tom and thanks for yr message.
John has had lots of BMBs previously, like u he'd grit his teeth while he was having it done:-( but he was then able to drive home from the hosp, and was straight back into work (he's self employed, he's got a garage business for diesel/commercial vehicle repairs, and he's a total workaholic) 🙂 but this last…[Read more]

Hi Carole, thanks for yr reply:-) what u say is extremely interesting – your husb Roger sounds exactly like John's more or less.. John is 14 yrs older than me, so he's 69 this yr, so he worked in the "heavy haulage" industry of Robert Wynns of Newport since a young lad, and goodness knows what they came into contact with half the time – John was a…[Read more]

Hi all, just reading yr earlier posts about cardamom – has anyone tried this yet, or is it something to steer clear of? I have just read the myeloma beacon info on Jean's link (I'd never heard of the beacon info site and wondered what it was):-)
Thanks for the info xxx

Hi Mavis, thanks v much for yr reply and good wishes for John, it is something that I am very grateful for, to be able to confide all that is going on here to lovely ladies and gentlemen who understand. 🙂 You have been through the mill too, Mavis, with the medical problems that u have had..I think it's good if u have family around to help you…[Read more]

Hi Ian, thks for yr message, John didn't have any maintenance drugs for his prostate cancer, once he had gone thru all the radiotherapy at the Velindre hosp, that was it, the hosp just had him going back for checkups for yrs, & he was doing ok – in fact he was doing v well, until this MM popped up. There is a sort of connection between both you &…[Read more]

Hi Tom, Thanks very much for yr reply – I haven't been online till now, so I've only just found it. I am very grateful indeed for yr best wishes – u are all so very kind..we've had a bit of a setback with John, he was given a provisional date for his SCT of Feb 5th, but was told that if someone dropped out due to an infection, it could be earlier…[Read more]

Hello Ozzy, thanks for replying back. Yes, I think u may be right regarding the chemicals factor and myeloma – not sure, of course – but John has had to use sheep dip yrs ago with the animals; and he also had to work with powerful chemicals in his job in the haulage industry as a mechanic. Of course, yrs ago, there was never any thought about…[Read more]

Thank you Jenny, for yr information, which was gratefully received here. Nice to know that we are not on our own here in Wales, thanks to lovely people like you..I'll have a look at the details of yr support group, as u have very kindly suggested – you will have to excuse my lack of knowledge regarding this website, as I am a newbie here, u see. 😀

Hello Jenny, just received yr reply to my message, and thanks for the invitation to the support group, where in Cardiff is it held? As u can see from my reply to Bridget, we are quite a way from Cardiff itself, but John has to go to UHW hosp, as it's the only place with the machine for SCT treatment. Do u know if any of yr members have been to…[Read more]

Hi Bridget, thanks for replying, and it was nice to hear from you! Yes, John has been through the mill, you are right. I can appreciate that there may not be a link between the prostate cancer/radiotherapy treatment and myeloma, but it just seems so strange & uncanny, for it to happen to him. Neither disease is in his family either, as far as we…[Read more]