[WhamsterParticipant]

Thank you all very much for your welcoming messages it makes me feel that we are not as isolated as we feel, my partner Janine is going to be using my profile as well to try and help make head or tail of what we have just been told.
It is very early in the process for us having been told at about 11.30 last Friday and released from the hospital renal ward about 2 hours later armed with boxes of dex and some information sheets! So please bear with us if we seem very ignorant about the treatments and outcomes.
I have my assessment with the cancer and renal team on Friday 2nd August from which I hope to gain a lot more insight into what it is I am trying to bring under control.
I am going to see my Mum and Dad today in County Durham, it's also the last day of dex 40 mg a day seems like a hell of a lot and 20 tablets after breakfast is a challenge but I am following the instructions to the letter!
Thanks again for your time and patience in giving me your experiences with this horrible disease.
Peter & Janine.

[WhamsterParticipant]

Thank you all for all your insights and advice, I am trying to take all the different info in and I still have not had my first treatment meeting(Friday 2nd) I am on my 3rd day of 40 mg of dex which I was told could be quite a downer so keeping an eye on my emotions.
Going to County Durham tomorrow to see my Mam & Dad face to face, they are both in their 80's so they have taken it hard, but I so need to be with them if only for a few hours.
My wife Janine is looking after me like a gold watch, and god only knows what I would be like without her support and love.
As for the journey ahead I am going to give it all I can to try and bring some control back into my life.
Thanks again for your advice and info.
Peter.

[WhamsterParticipant]

Thanks Johnandjune,
Will try and follow as much advice as I am given, from all sources, it just seems a big help to be able to speak to people who are going through or have gone through the same thing as myself and all this within 3 days of been told I have an illness I had never heard of before. Life has a way of standing up and slapping you in the face just when you thought you were the one in control!!!!

Thanks again for all your replies.
Peter.

[WhamsterParticipant]

Thanks very much for the information, I will try and get my head around things, I am finding it a very emotional time as of course is my partner Janine who is a lot younger than me (14 years). Goodness only knows what I would be like if the boot was on the other foot.
I think it is going to be a long slow process and unfortunately I am not the best patient( hate hospitals, Im actually diagnosed with white coat syndrome, that should be fun)
I do realise I am being offered the best possible treatment for the condition and I will follow all instructions to the letter and try and take in as much information as I can.
I watched a video on you tube saying no two people are the same when it comes to Myeloma so I understand we can all have different symptoms, the video on the home page for newcomers is very good and quite upbeat about the advances in treatment and I am taking this all on board bit by bit.
Thanks everyone for taking the time to reply with all your advice
Peter.

[WhamsterParticipant]

Hi eve,
Thanks for your reply, I have been in hospital for nearly two weeks as I was admitted with kidney problems on Monday 15th and was given the diagnosis for Myeloma on Friday 26th. And i was discharged from the renal unit on this date.I am in Leeds which has a very good cancer unit and I do not have my first appointment until Friday 2nd August but it just seems a lot to get my head around and as you can guess I am pretty hyper at the moment, I am on day 3 of steroids of a four day course and I just felt the more people I could speak to the more I might understand the process so thank you for any information, I also have booklets which I am trying to get my head around, seems like they have a lot of contact information which I will use.

Thanks again for your reply.
Peter.

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