MicheleWaters

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  • #106244

    Zikomo48
    Participant

    Thanks, Eve. The differences in each Myeloma patient make decision making and planning very difficult. My husband has just reached his second bout of remission, the first lasted just over a year. Sadly he was never well enough to go through SCT at the first remission. I don't think he will choose to go through it this time either. We still have a couple of weeks to make the decision, I say we, but it is really he who must make the decision. He has one more velcade treatment to end this last cycle, which is "to be sure, to be sure", then a two week break and an appointment with the consultant to finally decide on SCT, or not, or what?
    One can only hope. Thanks again for your encouragement, I think of all the sufferers and especially their carers!
    Love
    Michele

    #106242

    Zikomo48
    Participant

    Thank you so much, Mari, for your reply. We do have a MacMillan nurse assigned to us. My husband is very self-contained, if you know what I mean 🙂 and finds it difficult to express his feelings. But this "thing" is bigger than both of us and I could happily hang onto any comfort! I will certainly make an extra (above the monthly visit) appointment with the Macmillan nurse, as you suggest.
    xx
    Michele

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