[acParticipant]

I would just like to thank everyone here for their support to me. Helping me to make the decision to have my Stem Cell Transplant. I feel I was very lucky and didn’t suffer from too many side effects. I took the advice of sucking lots of ice, that really helped. my mouth wasn’t too bad at all. I had some diarhea and also sickness. But managed it quite well with the anti sickness meds. I did end up with a bit of a rash, I think this was due to the anti sickness meds being given by a syringe drive, however as soon as this was removed within a few days the rash cleared up. I was very lucky to be allowed home on the 17th day. Continuing to improve at home and trying to build up my fitness levels again. Keeping away from most people due to the risk of covid or other winter ailments until my immune system gets back to normal. Hope this helps anyone waiting to go through this procedure.

[acParticipant]

Thank you Tony for your reply. I have heard about the mucositis, I was told by the hospital that I should have an ice pole to suck, lets hope they don’t forget, I’ve had mouth ulcers in the past, they are really difficult, also a biopsy on my tongue, which meant I couldn’t speak properly for a few days. So hopefully as you say the ice will help.
Will keep you posted.

[acParticipant]

Hi lillib

I hope all goes well with your husband and it is good that you got to speak to him on the phone. It is a very stressful time I feel, not just for the patient but also for family. I hope you will manage to stay positive and it is good you are on the end of the phone for him. I wish you both all the best.
regards ac

[acParticipant]

Hi Tony642

Thank you for your reply, it is good to know that you came through the SCT ok and are still in good health. After the initial fear factor set in after reading the leaflets from the hospital and being told all the things that could happen. I have now decided after reading comments on here, that it is the best option with a better outcome. So i have now decided to go ahead with my SCT at the end of this month. I will try to keep you all posted.
Many thanks for your support. It was just what I needed at my most vulnerable time.

[acParticipant]

Reply To: Father recently diagnosed at 60. Looking for some help.

Thank you so much for your reply, glad to know I’m not alone, as it sometimes feels that way. I am so pleased that your dad had a long remission period. That is the aim of all this. I am in quite a good frame of mind at present, lets hope it stays that way, although when I’m in hospital I’m sure I will have times when I feel pretty low.
Take care and once again Thank You

[acParticipant]

Reply To: Stem Cell Transplant

Thank you so much for your reply Mulberry, I feel much better mentally now that I have read of your experience and also that of your friends. Although it is very daunting, I feel more able to face it now. I think it was just overwhelming to me. So thank you once again. Good luck for the future.

[Author]

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