Hellos Avril…I had my SCT in Jan2011 and suffered badly with mucositis( worst part of the whole treatment) and I tried everything to ease the problem …mouthwashes …ice lollys…gargles…toothpaste…cold yoghurts…etc etc etc…to no avail…but my eldest daughter came in one day and asked if I have tried using cool coca-cola as a…[Read more]

So sorry to hear such sad news…our thoughts are with you…Phil and Jan

Good luck to Ian on his post SCT recovery…hope there are more ups than downs…Phil

Hi Andy…fantastic news to start 2015 with…keep up with the hand gel to reduce chance of infection in public places ( I remember going through gallons of it ) and keep on the good work getting the PP’s down to a big fat 0…well done…Phil

Hi Susie..I too suffer from cramps especially in my rib areas ( on the site of old lesions caused by MM ) and was also given Quinine tablets and I must say ” touching wood ” they seem to have done the job…good luck in your decision making…Phil

Signed… good luck

Hi Andy…well done and here’s to more anniversaries…Phil

Hi Robert…I have been an mm patient since 2009…Had an SCT in 2011 and am still in remission…I have just taken out insurance for a weeks holiday in Lanzarote for myself wife and son aged 17…when you fill the request form in on a comparison website you will be guided through as to the extent and problems incurred during your illness…the…[Read more]

Hi Tom…so sorry to read your sad news…but I am sure you will keep as positive as ever…and give it another damn good go with whatever the consultants decide upon and get another 4 years out of the next batch of treatment…stay safe…Phil

Dear Sue…such a very sad time and hope the support of your family is as good as the support Keith gave his fellow mm er's…our thoughts are with you Phil and Jan x

Hi Vicki and Colin…I had SCT in Jan 2011 and was selected for the maintenance programme (myeloma X1)…I have been taking Revlimid for just over 2 years…in decreasing amounts starting at 25mg and now have ended up on 5mg on a 21/28 day cycle…like everything with this s..t disease there are no parameters to be guidelined by….you go on the…[Read more]

Hi Jacqui and Geoff….good luck with Geoff's SCT…stay positive and take it one step at a time…stay safe …Phil

Hi Scott…good luck with your SCT…everyone reacts differently (as you will know)to the process and some have a bumpy ride and some not so bumpy…stay positive and as Jo says it is doable…hope your collection goes smooth…my collection was 3 days at 5hrs plus a day ( little buggers didn't want to leave :-)stay safe…Phil