Hello Susan and welcome to the discussion board… I was diagnosed with MM (asymptomatic) in Jul 2009 which became symptomatic in Jul 2010 resulting in acute kidney failure …like you…I was put on CTD for 5 cycles and had an SCT in Jan 2011…and have been in Stringent Complete Remission since…I too was told that basically I had no…[Read more]

Hi Suzy…hope hubby is doing well see my previous post

http://www.myeloma.org.uk/patient-services/discussion-board/side-effects/red-itchy-eyes-post-sct/re-red-itchy-eyes-post-sct1/

As you say my consultant too was not at all concerned with the damn itching …but good luck and stay safe hope hubby copes well with post SCT ..Phil Jan and Sam

Hi Keith…can sympathise see my post reply

http://www.myeloma.org.uk/patient-services/discussion-board/side-effects/red-itchy-eyes-post-sct/re-red-itchy-eyes-post-sct1/

hope you find a solution…Phil Jan and Sam

Michele…great news… well done… sure we will all have a tipple or two to celebrate…keep it up and have a great Christmas..Phil Jan and Sam 🙂

Hello Dai… just caught up on this post…don't know too much about the Bendamustine regime …all I can say is I hope it works well for you …I am sure the consultants have your best interests at heart…I too am on the Revlimid path ( X1 trial ) and so far so good…stay positive and once again " kick it between the legs"…Phil Jan and…

Great news Tom…hope the next 3 years are as successful for you and your little mates….well done old boy…keep it going …Phil Jan and Sam 🙂 🙂

Hi Carol…so sorry to hear that the damn thing is back…I have never heard of PAD but I'm sure your consultants will have your best interests at heart with the next course of treatment…and you will soon be back on the road to remission…stay safe…love Phil

Hi Chris and Lena..don't despair too much…I remember my neut's got "stuck" for a while and then they took off like a missile ( or so it seemed at the time )keep positve and enjoying the tv …I had loads of Dvd's to watch…ended up with square eyes 🙂 stay safe…Phil and Jan

Hi Vicky and Colin…good news on the neutrofil no's increasing …not long now before you will all be home ( hopefully)…I remember being sent home when mine reached 0.5 and I felt really really ill…but after week at home I felt somewhat better and the corner had turned…good luck to you both…stay safe…Phil and Jan

Hi Chris…looks like you have turned the corner and hopefully be sent home very shortly…soon as my neutrofils hit 0.5 I was gone…although I was still fairly poorly I felt better being in my own environment…I agree with Tom get some anti-sicky tablets for your return to normality…good luck and stay safe…Phil

Hi Helen…don't really know if it was whooping cough or not …my recollection is that none of the consultants or my GP were not too concerned once my scans …tests etc had come back clear…mine was a tickly irritating cough…not a chesty one…hope this helps…stay safe…Phil

Hi all …Ibiza was shut…beaches empty..most of the bars closed..pool shut…my 16 year old son nearly lost his mind with boredom we coped though…in our eyes there is no such thing a bad holiday…stay safe…Phil

Hi Vicky and Colin… sorry to hear that Colin's SCT is going rough…believe me Vicky I can associate…I chose not to allow any of my family to come and see me ( only the wife )as I did not want them coming in to see me as poorly as I was…but…I always recall one particular nurse who on every shift she was on duty came in and said "always…[Read more]

Hi Helen…might sound daft but have you had your flu jab ? just a thought…stay safe…Phil

Hi Mary and Charlie…well the wife seemed to cope reasonably well…seemed to rise to the challenge I suppose…looking back it all seems a blur to me as I was at the hospital every day for months for either Mum or me and really as I said in my 1st post we basically had to do it…this is what I meant by coping with stress by adapting our lives…[Read more]

Hi Helen…I too like you suffer from infections and it looks like now you seem to be getting on top of the whooping cough…great news…I had a cough for 4 months (damn nuisance) post SCT and had all tests scans etc from the clinic(all clear) and it did eventually ease off and just cleared up on it's own basically…good luck in planning another…[Read more]

Hi Trish and Peter …absolutely ace news have a blinding time and many more to come I'm sure…Phil

Hi Keith…just to to re-iterate Eva's comment …I started on 25mg Revlimid as part of the X1 trial..but this knocked my Neutrofils for six and was close to if not neutropenic all the time…they have now managed my Revlimid down to 5mg and my Neuts are now 1.73…good luck with finding a solution…Phil

Hi all….just to say that I feel dealing with stress is a very personal matter… at the time of my SCT Jan 2011…my Mum was taken ill with early signs of dementia and suffering from COPD (she was a heavy smoker )…post SCT I had the daunting task of getting her officially diagnosed with dementia and put into care (100% nightmare)whilst still…[Read more]