adamsp41 started the topic 7 Years ago Today in the forum General 6 years, 9 months ago
I had my Stem Cell Transplant when I got my little friends back….still in remission and apart from the usual ups and downs ( cough/cold/blood readings variable but safe) I am in good health and only now visit my Myeloma clinic every 4 months instead of monthly…my thoughts are with all who are dealing with MM…best wishes to all …keep strong…[Read more]
adamsp41 replied to the topic Mucositis after Stem Cell Transplant in the forum Treatment 7 years, 4 months ago
Hellos Avril…I had my SCT in Jan2011 and suffered badly with mucositis( worst part of the whole treatment) and I tried everything to ease the problem …mouthwashes …ice lollys…gargles…toothpaste…cold yoghurts…etc etc etc…to no avail…but my eldest daughter came in one day and asked if I have tried using cool coca-cola as a…[Read more]
adamsp41 started the topic 6 Years ago today in the forum General 7 years, 9 months ago
I had my SCT ( 1350 to be exact haha) and I am still in remission….not been on for quite some time but no great dramas over the last year….flu/coughs/delibelly…fortunately nothing serious… best wishes to everyone dealing with this bag of poo whatever stage your journey is at …good luck and never give up…stay safe…Phil
adamsp41 started the topic 5 Years Ago Today in the forum General 8 years, 9 months ago
I had my SCT and am still in Remission…the time has flown and has not been without it’s ups and downs… might treat ourselves to a celebratory meal this evening…huge thanks to Haematology Team @ St James’s Hospital Leeds …best wishes to all other MMr’s…stay strong guys …Phil and Jan
adamsp41 replied to the topic Colin in the forum General 9 years, 2 months ago
So sorry to hear such sad news…our thoughts are with you…Phil and Jan
adamsp41 replied to the topic Ian home after SCT in the forum General 9 years, 5 months ago
Good luck to Ian on his post SCT recovery…hope there are more ups than downs…Phil
adamsp41 replied to the topic Paraproteins at a new low! in the forum Treatment 9 years, 9 months ago
Hi Andy…fantastic news to start 2015 with…keep up with the hand gel to reduce chance of infection in public places ( I remember going through gallons of it ) and keep on the good work getting the PP’s down to a big fat 0…well done…Phil
adamsp41 started the topic It's 4 years ago today… in the forum General 9 years, 9 months ago
that my Stem Cells were given back to me and am still in stringent complete remission…just like to take this opportunity to thank certain groups…Myeloma UK and Macmillan..for advice/help and understanding when needed….but mainly to my Haematology Team at St James’s Hospital..Bexley Wing.. Leeds…1st class team…thanks guys…Phil
adamsp41 started the topic Happy Anniversary…It's 4 years ago today in the forum General 9 years, 9 months ago
that my Stem Cells were given back to me and am still in stringent complete remission…just like to take this opportunity to thank certain groups…Myeloma UK and Macmillan..for advice/help and understanding when needed….but mainly to my Haematology Team at St James’s Hospital..Bexley Wing.. Leeds…1st class team…thanks guys…Phil
adamsp41 changed their profile picture 9 years, 9 months ago
adamsp41 replied to the topic I need encouragment in the forum Treatment 10 years ago
Hi Susie..I too suffer from cramps especially in my rib areas ( on the site of old lesions caused by MM ) and was also given Quinine tablets and I must say ” touching wood ” they seem to have done the job…good luck in your decision making…Phil
adamsp41 replied to the topic Help needed! in the forum General 10 years ago
Signed… good luck
adamsp41 replied to the topic Three Years! in the forum General 10 years ago
Hi Andy…well done and here’s to more anniversaries…Phil
adamsp41 replied to the topic Travel Insurance for "Smoulderers…" in the forum General 10 years, 1 month ago
Hi Robert…I have been an mm patient since 2009…Had an SCT in 2011 and am still in remission…I have just taken out insurance for a weeks holiday in Lanzarote for myself wife and son aged 17…when you fill the request form in on a comparison website you will be guided through as to the extent and problems incurred during your illness…the…[Read more]
adamsp41 started the topic 3 Years ago today…. in the forum General 10 years, 9 months ago
since my SCT and my 12 bags of stem cells were returned to me (1020 to be precise)…can’t say it’s been an easy journey…but as all other mmer’s know that’s the nature of the beast…to all out there keep positive and stay safe…Phil
adamsp41 replied to the topic It's Back in the forum Treatment 10 years, 11 months ago
Hi Tom…so sorry to read your sad news…but I am sure you will keep as positive as ever…and give it another damn good go with whatever the consultants decide upon and get another 4 years out of the next batch of treatment…stay safe…Phil
adamsp41 replied to the topic Keith Hindmarch in the forum End of Life and Grief 11 years, 6 months ago
Dear Sue…such a very sad time and hope the support of your family is as good as the support Keith gave his fellow mm er's…our thoughts are with you Phil and Jan x
adamsp41 replied to the topic Question…..maintenance treatment in the forum General 11 years, 6 months ago
Hi Vicki and Colin…I had SCT in Jan 2011 and was selected for the maintenance programme (myeloma X1)…I have been taking Revlimid for just over 2 years…in decreasing amounts starting at 25mg and now have ended up on 5mg on a 21/28 day cycle…like everything with this s..t disease there are no parameters to be guidelined by….you go on the…[Read more]
adamsp41 replied to the topic Date for SCT in the forum Treatment 11 years, 6 months ago
Hi Jacqui and Geoff….good luck with Geoff's SCT…stay positive and take it one step at a time…stay safe …Phil
adamsp41 replied to the topic ANOTHER SCT JOURNEY ABOUT TO START in the forum General 11 years, 6 months ago
Hi Scott…good luck with your SCT…everyone reacts differently (as you will know)to the process and some have a bumpy ride and some not so bumpy…stay positive and as Jo says it is doable…hope your collection goes smooth…my collection was 3 days at 5hrs plus a day ( little buggers didn't want to leave :-)stay safe…Phil