Yes I think that’s right….he has had the steroid dose lowered and I think this has helped, also we have had a good chat about things and again this has helped too.  Onwards and upwards!

Thank you Sarah

It helped me to have a little offload….I think your story shows how very difficult this cancer (or indeed any other cancer) is for everyone involved.  Families, partners and most importantly, the patient.

The range of emotions we all have to deal with takes its toll.  I truly believe that communication and understanding is th…[Read more]

Oh Maureen,  I am so sorry to hear this.  Sending you and your husband our very warm wishes.

it all seems so unfair.  x

Hi Pat

MY husband has just finished 2 cycles of the carfilzomib, it has been problematic as the drug was attacking the red blood cells and platelets, but not making any difference to the myeloma levels.  Anyway after some difficult weeks with many days at the hospital having fluids, blood transfusions and platelets, we have finally had a bet…[Read more]

Hi Teresa

Thanks for your reply.  We have had a better week this week and some family time today, which has cheered us up no end!  It’s a hard slog and as you say, not always easy to do things when he’s feeling so tired.  But we will cope.

Hope your husband gets to a remission before too long.

Take care

x

Hi Kevin

thanks for the reply…my husband and I read it and he feels much like you do, that myeloma is an unwelcome intrusion to his, and my life!

We feel we have to just take the advice from the medical team as to what and when treatment may become necessary.  Meanwhile we intend to get on with our lives.

wish you…[Read more]

Hi Mojo

So far so good…my husband had a paraprotein of 0.8 just before the SCT…he had a successful harvest and then 3 weeks in hospital for the chemo and transplant.  He is now 6 months post transplant with most recent bloods having unmeasurable paraprotein.  Really good news.  It’s not been an easy 11 months, but we are in a better place no…[Read more]

Thanks Annlynn and Maureen,

its good to hear some positive news…long may the remissions continue.

xxx

Hi Mervyn

I think everyone will have a different experience of the transplant, but it wasn’t too terrible for my husband.  he responded well to the initial chemo tablets, steroid and thalidomide and was feeling really well in the month leading up to it.  harvest was done in one session,  5 hours lying on a bed watching daytime TV….it was go…[Read more]

Very true!  Thanks

Time for an update…my husband is in hospital day 11 from transplant.  He has been doing really well….unfortunately now he has an infection so is on IV antibiotics, which we were told would probably happen.  He is completely off his food, but is eating a little and still wants his coffee!  He is being such a model patient, very calm and pos…[Read more]