.

Hi Clare

I have decided not to have a SCT just yet. I have been in Complete response to CTD for 2 years now – no PPs and light chains in normal range. I do have some stem cells on ice, but I was only able to harvest enough for one transplant.

Good luck to you and your mum whatever happens.

Tracey

Hi Rebecca

I was diagnosed just over 2 years ago, aged 42. My consultant recently told me that 'generally' as 'with all cancers', the younger you are, the more aggressive it tends to be. In my case, I had 6 cycles of CTD and achieved a complete response early on and have remained so ever since. I've had my stem cells harvested, but I am…[Read more]

Hi Jacqui

I don't post much on here. But, I'm on my own tonight and have had a glass or two of wine and in my maudlin moments, often look on the site. Having done so tonight, I came across your post. I too have IgA myeloma. Actually, I have IgA lambda light chain myeloma. I also have Amyloidosis. Because of the Amyloidosis, SCT was not…[Read more]

*plerixafor* – sorry for the typo!

Hi Michele

I went gluten free when I started CTD in March 2011. I have myeloma and Amyloidosis, which affects my kidneys. Before I was diagnosed when I thought I had just a kidney problem, I had read how a gluten free diet could help. After being diagnosed with myeloma, I googled 'myeloma' and 'gluten' and found some articles which link the…[Read more]

Msg deleted

Great news Jo! You must be soooo relieved. I see from an earlier post that you are at Lister. Same here. I chuckled at 'nice chap not good at paperwork unless you chase him'. I very much suspect that you have the same consultant as me – the lovely Dr K! Tracey x

Lovely photo Debs! You've got a bit of a Kate Middleton look about you!

Tracey xx

Hiya Debs

I haven't had a SCT, but finished CTD back in August. Around July time, I started experiencing night sweats. I also started noticing hair thinning. I mentioned both issues to my Haematologist at my September clinic and he dismissed the idea of an early menopause, but did say the night sweats were due to hormones. He also said the hair…[Read more]

Hi Clara

You don't say whether your Dad's FLC readings are still within normal range. You may remember that I am in a very similar position to your Dad – MM with Amyloidosis with not too dissimilar FLC readings at the start of treatment. I started CTD at the beginning of March, achieved complete response by the end of April (ie. Lambda light…[Read more]

Dear Min

Thinking of you and Peter and what must be such difficult time for you both. I'm so glad that Peter is at least feeling well – that puts him in a positive position for the further treatment planned. I'm keeping everything crossed for you both.

Tracey x