https://forum.myeloma.org.uk/members/alanjamesbyrne/activity/ Activity feed for alanjamesbyrne. Sat, 04 Apr 2026 03:32:30 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 8cde63b024bd0cc15eb7d53b518548ae http://www.myeloma.org.uk/forums/topic/3-months-after-treatment/ Sun, 31 May 2015 16:00:05 +0100 hi all I had my treatment in the beginning of March at Southampton general ,chemotherapy,and stem cell replacement ,( my own stem cells ) after a 3 week stay in hospital ,which I must say was difficult but staff were excellent,still on numerous drugs taste buds nearly back to normal ,still get tired ,appetite is getting a lot better ,oncology this…[Read more]

]]> f97cd60b260b3839286181611b7d7d94 http://www.myeloma.org.uk/forums/topic/help-needed-for-market-research-study/#post-121426 Wed, 25 Mar 2015 08:30:48 +0000 Not to sure what to expect now ,I’ve had chemo and stem cell replacement ,3 weeks in hospital ,and I’ve been home 5 days ,I get very tired ,I’m not really eating ,just don’t have an appetite ,taste buds are shot ,and I drink like a fish ,lol went back to hospital  yesterday,for blood test and every thing is moving along nicely ,got oncoligy next…[Read more]

]]> 471dea08527bb17ca99085ff35e68c16 http://www.myeloma.org.uk/forums/topic/day-5-of-treatment-chemo-and-stem-cell-replacement-done/#post-121329 Thu, 19 Mar 2015 08:52:40 +0000 Sorry I missed one very important bit the staff on C6L  at Southampton genral hospital have been fantastic ,and nothing was or is to much trouble ,I could not have asked for better treatment or care ,thank you one and all

]]> 495b5ac75de768e7836be47d1f66abfe http://www.myeloma.org.uk/forums/topic/day-5-of-treatment-chemo-and-stem-cell-replacement-done/#post-121328 Thu, 19 Mar 2015 08:48:51 +0000 Well through the worst now hopefully. Will be allowed home tomorrow ,can’t wait ,after nearly 3 weeks so fingers crossed when the Drs do there rounds ,it’s been a long hard struggle at times ,but don’t regret anything of it ,it’s fantastic what they can do ,and very greatfull for the chance ,to prolong my life ,I could not have done it without the…[Read more]

]]> 3e8086df56061b39745fbe24d4aa800a http://www.myeloma.org.uk/forums/topic/day-5-of-treatment-chemo-and-stem-cell-replacement-done/#post-121177 Sat, 07 Mar 2015 11:49:25 +0000 Thanks Matt ,the boredom bit is the worse ,but doesn’t seem like I’ve been here a week tomorrow ,so fingers crossed that every thing stays or progresses and only a week to go ,I think it seems harder as it’s the weekend ,not much football to watch today ,to break the monotony ,onwards and upwards

]]> e06bea44357ca831c9a76a19f14d9c80 http://www.myeloma.org.uk/forums/topic/day-5-of-treatment-chemo-and-stem-cell-replacement-done/ Fri, 06 Mar 2015 07:55:06 +0000 Morning every body day 5 for me and doing fine ,I had the DR round yesterday and he said they are looking to kick me out a week Sunday ,yessssss,so only a 2 week stay instead of 4 ,,that’s if nothing crops up so fingers crossed on that one ,I realise that this treatment effects every body differently ,and so far I’ve sort of breezed it ,little…[Read more]

]]> a8d5ef0231f9f895bfebad9d56b875fa http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-complete/ Mon, 23 Feb 2015 16:03:17 +0000 finally managed to get enough stem cells after 3 goes,back to oncoligest tomorrow to see when we start stem cell replacement ,starting to get a little worried now ,not looking forward to the high dose of chemo

]]> 28ac1d675d1f805d1b669712350fc27b http://www.myeloma.org.uk/forums/topic/getting-ready-for-stem-cell-harvest/#post-120719 Tue, 10 Feb 2015 12:57:45 +0000 Thanks Ron ,I’ve been on chemo tablets 2 types for 4 months now ,just had the medium dose chemo by drip with no ill effects with any of it ,apart from my taste buds ,which drives me mad,I do know that the next one is the biggie and effects every body differently ,hoping that I get an easy run with that one as well ,with no ill effects ,I also had…[Read more]

]]> 532b88e4c46ba21560e3ba9b925c2655 http://www.myeloma.org.uk/forums/topic/getting-ready-for-stem-cell-harvest/ Tue, 10 Feb 2015 08:54:02 +0000 Hi all ,had the the medium dose of chemo yesterday in preparation for stem cell harvest, feeling ok at the moment ,loads of drugs and start a course of injections today ,stem cell harvest next Monday ,/ tues/weds depending on how much we get ,they said my yield is likely to be low as ive had radiotherapy,so might night get it in one go ,following…[Read more]

]]> b182472ea2869808560dbdb0f3880bbd http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120682 Sun, 08 Feb 2015 09:30:46 +0000 Hi Angela and graham I am very pleased for you and graham have a great birthday and holiday ,can’t wait until I can have a holiday again ,getting fed up with being prodded and poked about ,I’m lucky that I don’t have much hair anyway ,and have shaved my head for a few years now ,start chemo priming tomorrow and the injections and  other drugs…[Read more]

]]> a352840f8b4dd790c3b37a4e89c77adf http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120665 Fri, 06 Feb 2015 22:42:21 +0000 I had a few words with the oncoligest today ,when I saw him last week he said I would have the big dose of chemo next Monday ,and then stem cell harvest a week later ,and then two weeks later stem cell replacement,I thought it does not sound right,my sister agreed with me that was what he said ,turns outi have a medium dose of chemo Monday ,and…[Read more]

]]> 80207da367480c7171c201153e47ee19 http://www.myeloma.org.uk/forums/topic/treatment-and-chemo/#post-120636 Wed, 04 Feb 2015 16:07:56 +0000 Thank you Stanley ,much appreciated

]]> 54b043575b563a1657c0b6de078952a8 http://www.myeloma.org.uk/forums/topic/treatment-and-chemo/ Wed, 04 Feb 2015 08:21:31 +0000 hi all ,due to start stem cell next week ,can any body tell me why ,I am having chemo and then the stem cell harvest on a day visit to hospital ,I thought when I had chemo they would keep me in as your immune system is non existent,seems strange that I have the chemo and then go back after a week for stem cell harvest ,and then wait another week…[Read more]

]]> 093be63b2bf9faa28edc77da0facefa0 http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120614 Tue, 03 Feb 2015 19:13:06 +0000 Hi and thank you Nicky ,I wish you well on your treatment,and hope you have a speedy recovery,I am still a bit scared ,it’s all about the unknown ,I’ve been fine with all of it so far apart from bone marrow biopsy ,which bleeding hurts,and the other bit I hate is my taste buds ,which go to pieces when I am on chemo ,everything I eat or drink…[Read more]

]]> 2526cea87dea77b9e0a50d641c721540 http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/page/2/#post-120612 Tue, 03 Feb 2015 17:55:05 +0000 Hi all back from oncoligest today ,I have to have calcium drip tomorrow,then on Thursday I have to have a longline insertion fitted to my chest . Ready for stem cell harvest ,next Monday I have the chemo which will be on a day visit,and I start the GCSF injections on tues ,back again on 16 th for stem cell harvest,,then a small break till the 24th…[Read more]

]]> fb0db7f98836c58a4bb95c7874ddbeab http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-and-replacement/#post-120233 Thu, 08 Jan 2015 14:39:38 +0000 Wife is fine ,I didn’t jump down her throat that much, lol just been talking to the hospital about a general  anasetyic they said they could not do it as my blood was to thin after chemo,but would give me gas and a sedative,to help ,what a load of rubbish ,my blood would be the same if I have a local ,or a general ,I just think it’s to much…[Read more]

]]> c60e7e383ef522f7e1dd9e9204e188d5 http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-and-replacement/#post-120227 Thu, 08 Jan 2015 01:31:51 +0000 Sorry Keith ,one other thing I hate is my taste buds everything I eat and drink is terrible ,been back on chemo for a week after 2 weeks off ,and taste buds are crap again ,I’m lucky I live half a mile from the hospital so nice and easy for the wife ,Alan

]]> 90381ae7dae6854e451832baeb1c25fb http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-and-replacement/#post-120226 Wed, 07 Jan 2015 23:42:00 +0000 Hi Keith ,and thankyou you have help put my mind at rest ,I’m not worried about the injections ,it’s the pain from the bone marrow biopsy,got an idea this one won’t be the last ,next time I will ask for sedation ,I’ve been positive all the way through ,but just lately dobut has crept in ,I know it’s the fear of the unknown ,the other thing I hate…[Read more]

]]> 542e271df84774168c43a13ac412b643 http://www.myeloma.org.uk/forums/topic/stem-cell-harvest-and-replacement/ Tue, 06 Jan 2015 16:24:42 +0000 hi all ,sorry if this is in the wrong place ,I’m due to start tests for stem cell harvest 20/1/15 ,and my pet hate bone marrow biopsy on the 28/1 ,hate that one oncoligy 3/2 to discuss results of tests and the next plan of attack,,I know I have to have a big dose of chemo, and a 3 week stay in hospital isolation ,not looking forward to it,but…[Read more]

]]> bd6d2190580494f221d59207babc920f http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/#post-120122 Tue, 30 Dec 2014 09:49:14 +0000 Thank you LEGAL ,happy new year

]]> faf732b0b902218b94eacadf00d28019 http://www.myeloma.org.uk/forums/topic/post-stem-cell-transplant/#post-120120 Tue, 30 Dec 2014 07:46:31 +0000 Hi all .i was diagnosed with myeloma 2 yrs ago ,I’ve had radiotherapy on my shoulder ,I am currently having chemopherpy,I’m on the 4th ,cycle of 4 ,next stage is SCT ,I’ve got to go in for tests in 3 weeks time ,ive also got to have a bone biopsie on my back ,which I am dreading ,I’ve already had two ,then we start SCT ,I’m lucky in some ways I…[Read more]

]]> 24187cc43f59e74c5fb1305ddc09fbc7 http://www.myeloma.org.uk/forums/topic/rib-pain-after-cyclophosphamide/#post-118940 Mon, 20 Oct 2014 12:13:48 +0100 Thank you ladies you were both very helpfull ,I will wait until next week when I return to hospital ,a week tomorrow ,and if they don’t come and see me ,I shall complain ,just feel that I’m on my own a bit with it all ,went to mcmillian about a year ago ,when first diagnosed ,the lady said your going on a journey ,talking about dieing,I stood up…[Read more]

]]> 00853b168e27a5ffd78018ff65cd48da http://www.myeloma.org.uk/forums/topic/rib-pain-after-cyclophosphamide/#post-118911 Mon, 20 Oct 2014 08:58:59 +0100 Hi all I’m on week 3 of chemo and on the same chemo tablets ,I to have sore ribs ,if I cough or sneeze it feels like my chest is going to explode and it’s really painful ,I’ve had to stop chemo and steroids now as I have a chest infection so now on antibiotics ,but chest still hurts it even gives me a sore neck and I struggle to turn my head ,I am…[Read more]

]]> 36efbad73960c5cb8b7c9c6f30497854 http://www.myeloma.org.uk/forums/topic/remission-no-1-is-over/#post-118655 Tue, 07 Oct 2014 03:42:57 +0100 One week today ,I’ve not been to bad bad on the my first week of chemo,,apart from back,neck ,chest ,and shoulders ache,had my worse night so far on day 6 ,couldn’t get out of bed,but the wife massaged me last night,and slept a straight 6 hrs so that was good,I also took a tramadol tablet but something helped ,I’ve been getting very tired,and lose…[Read more]

]]> 57cf4c71cb189a5db29b89c64f14a122 http://www.myeloma.org.uk/forums/topic/hi-just-starting-chemo/#post-118621 Mon, 06 Oct 2014 13:11:37 +0100 Hi botope ,I struggled last night ,now the steroids have stopped until 12 th neck ,back,chest ,shoulders very stiff ,had a job to get out of bed ,but I suppose you have to adjust yourself  as you go ,it was never going to be easy ,I’m sorry that your struggling ,I can’t say that I’m impressed with the support you receive from hospital it seems…[Read more]

]]> 7240ed002f9af8245c93cdca0e90af80 http://www.myeloma.org.uk/forums/topic/hi-just-starting-chemo/#post-118554 Fri, 03 Oct 2014 08:36:55 +0100 Hi Martin how long ago were you diagnosed mine was two years ago nov next ,started with a funny shoulder ,then one day I was lifting a ladder on my crv and something went in my shoulder turns out the collar bone snapped a bit pain full, then after scans x Rays biopsies ,you name it they came up with this ,I’ve had to stop working which is the…[Read more]

]]> 0e16e896bfe3c2b6bc3c58cd35366f08 http://www.myeloma.org.uk/forums/topic/hi-just-starting-chemo/ Fri, 03 Oct 2014 02:42:34 +0100 hi all I am Alan I’m on day 3 of my treatment I don’t feel  any different as yet a small tummy ache and pains so times in my side,it hurts my chest when I cough or sneeze but apart from this I am fine so far the coughing and sneezing bit I’ve had awhile just a bit tender, I am 59 years old and live in Southampton ,aim married to Jill for over41…[Read more]

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