Funny thing is that I may be 10 months ahead of you, but I’ve not had the GVHD yet. That’s the bit I’m really worried about. Where did you get the GVHD and how long after the allo was it?

I had the allo in May 2015 and 7 DLIs down the line, I’m still waking up each day hoping for a rash. They say that the donor I had may actually be too…[Read more]

You’ll get there fella. It’s a long old journey and you’ll have ups & downs along the way, but one day you will look back and be sat here like I am now. My consultants were very cautious about me thinking too far ahead. I was impatient and would have had the auto & allo both in one day if I could, but I was told to take it one step at…[Read more]

I’m able to do everything I used to in the gym, but it takes me longer to get over it. Whereas I used to go to the gym 4 times a week, I now go twice and do the Parkrun on a Saturday. I feel like I’ve aged physically 20 years, I’m slower and not as strong, but I’m just so grateful to get back into it and will work hard to improve. You…[Read more]

I’ve never written or responded to posts in the past, but having read this thread this evening, I just wanted to offer all of you some hope.

Three years ago I was diagnosed with MM, at the age of 38.  I would say it was at the forefront of my mind for the first two years. One of the hardest things was dealing with the logistics of…[Read more]