Hi Sue. Thanks for your reply. Were your paraproteins measurable when you started taking Turmeric and if so have they dropped as a result. Also what dose did you take. ?

Best Wishes

susie

That sounds just what the Dr ordered, lots of distractions and lots of positive focus on the future. There is no doubt he will get through it but it is inevitably a long and winding road – he is young and fit – one of the greatest assets going into treatment but it is small consolation for having it so young. At 50 – and very fit – I wished I had…[Read more]

Hi – So sorry to hear your news – I was 50 when diagnosed has velcadd n dex followed by an SCT and remain in remission to date and physically life is back to normal. It is no comfort but is age is a very good factor in treatment/options. If you choose to look at survival stats beat in mind the average age of diagnosis is around 70 where there are…[Read more]

Hi Ann – thanks for asking I am doing good – in a week I will be celebrating 5 years since diagnosis and 4 years post SCT – still in remission and drug free! Must admit as time goes by I get tetchy thinking when will my run of luck will end – as always with MM mind games when you relapse and mind games when in remission(tut) but I’ll take it! I a…[Read more]

Hi Peter

Thanks so much for your reply. I was in a panic about the pain but luckily it gradually wore off by the end of the weekend.

I’m sorry you are still experiencing problems and I hope it settles soon. Take care

susie

My hairdresser will not colour my hair either when I’m on treatment or for a long time after finishing.

Hi Maureen, so sorry to hear of Ian’s passing. You helped him throughout it all and right up to the end and no-one can ask for more from a partner. I hope the rest of your life is filled with happiness, laughter, adventures and peace. I already get the feeling you realise living is a privilege that musn’t be wasted so I know you’ll be okay.
Rebecca

Maureen,

I was so sad to hear your news that Ian has lost his fight. My thoughts are are with you and your family.

susie

Thanks for your reply Michael. I so agree it has to change but haven’t a clue how to achieve it. I get angry when I think about NICE, who are interested only in the financial cost in, it appears, the short term. For example in the case of ixazomib, an oral drug, do they consider the monies saved in reduced hospital appointments.

All beyond me.

susie

Hi Sara – my biggest coping mechanism during treatment was trying to control my mind and stop pondering on “what ifs” Andrey and take it Day to day. I started saving motivational quotes that became my mantra throughout in controlling my mind to “not go there” and stay in the moment. The main one I used was

“Worry does not empty tomorrow…[Read more]

Hi Sara – Mm is very individual together with your health to start off with/fitness/robustness. One week it can look bleak take a treatment that suits your MM and you can pick up and rally very quickly. What may appear very aggressive MM is only like that if you can’t quickly find the chemo that will work for you and yours. At 50, I was told a l…[Read more]

Tony – You are an inspiration – carry on carrying on!
Rebecca

Hi Richard – sorry to hear about the Rev but let’s hope the next one is even better – will be interested to hear of option availability in Germany. Never ceases to amaze me how individual it all is as we started at the same time – we are all heading in the same direction but going along different routes/twists n turns – here’s hoping we enjoy a l…[Read more]

Test only

Hi Emma – I am conscious now that I haven’t offered any practical advice on how to get through it easily – perhaps because I see MM more of a mental battle than a physical one. When you don’t feel like eating much – but know you need to keep your strength up – take in some little jelly, custard and rice pudding pots. They slither down and also in…[Read more]

Hi Emma, So sorry to hear you are going through this at such s young age. I suspect because of your age you will sail through the transplant- it sounds really scary but it is just abit more than the treatments you have had and sounds scarier Han it actually is. All being well you’ll be home in around 16 days – I had a count down calendar from 16 a…[Read more]

Hi really sorry to hear about Wendy. I followed her blog and was acutely aware she hadn’t posted for a while. One helluva strong vibrant lady…and one more reason for us all to grasp life and live it large.
Take care
Rebecca