There have been lots of responses to your original post; but I will add my bit if I may.
On my first chemo regime, after diagnosis, I was on CTDa but had to come off it after 41/2 months as I was so ill that I waas spending most days in bed and feeling like death.
My consultant said that there was no poine continuing if the treatmen was worse than…[Read more]

For the nausea, try Gin Gin Chews from Holland and Barrett (and elsewhere) I found/find this much better than the Metoclopramide.
I am now on Velcade + Dex and still have problems with a sore mouth (rather than a bad taste)
You never can tell with these side effects, we MM sufferers must suffer more side effects than any other people.

@ Sue
I am on Velcade + Dex (dont like to abbreviate to VD!)
I must say that on this cycle (2) I have very few side effects thank goodness; bit depressed at times and the PN soesn’y get any better, but all in all not too bad.
On the plus side, I do NOT have back pain for the first time in more than 2 years, I cant tell you howe good that is 🙂

Sue
Dont worry about Velcade side effects, not nearly as bad as CDT in my experience and they seem to get less as you get into the treatment. I am midway through se3cond cycle and the main side effects remaining are the PN in my feet, and like Ian I have some loss of feeling around my knees, also I have difficulty sleeping for the 2 nights…[Read more]

I am currently on my 2nd cycle of Velcade + Dex after my first relapse of MM.
I seem to be on a cycle of constipation and diarrhoea, nothing normal with this disease is there.
I take Laxido regularly for other stomach problems and find that after 2 days of constipation I need to up the doses of Laxido from 2 a day to perhaps 3 or 4 – that usually…[Read more]

My MM was diagnosed after a visit to my optician with badly blurred vision. He sent me directly to local hospital eye clinic who admitted me on the spot and 10 days later I was home with MM.
My first round of CTDa largely cleared up the vision but I recently relapsed with the first indication being blurred vision again. This is continuing in my…[Read more]

Great idea; we do feel alone at times and people who do not use this forum must feel even worse.
Having completed (almost) the intial CTDa treatment I am in my 5th month of ‘remission.’
The worst thing for me is that I often feel very depressed that I have lost the ‘me’ that I knew and will never get him back.
I feel unwell for most of the time…[Read more]

Like many others I suffer from PN in m y feet with the same feelings as others have described. I do find that bed socks help at night.
I also suffer from very cold hands which I suspect is also PN.
All not very pleasant but better than some side effects.

I have read on another MM Forum about the side effects from Zometa and it appears that patients in USA get more information and warnings about these than I did.
I have been on Zometa for 7 months now and have only received the Macmillan leaflet which seems to me to treat the dangers lightly.
I have told my dentist that I am on Zometa and will…[Read more]