https://forum.myeloma.org.uk/members/alpenator/activity/ Activity feed for AnthonyPetitt. Sun, 05 Apr 2026 20:30:08 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 03917f9c9855a0a44f685740f98229c5 http://www.myeloma.org.uk/forums/topic/remission-no-2/ Tue, 24 Feb 2015 18:57:23 +0000 Remission no 2 ended before it started!
I was on Velcade + Dex and starting cycle 6 when haematologist gave me the bad news that para protein had shot up to 39 having been on a downward trend last month. The MM had come back ‘very aggressively’ and Velcade not working any more.
So now on to Revlimid + Dex.
Any similar experiences?

]]> 9a4bedaa6dd99c5a6554b6cce800bcf6 http://www.myeloma.org.uk/forums/topic/dexamethason-debilitating-side-effects-2week-break-after-only2-cycles-of-vcd/#post-119222 Sat, 01 Nov 2014 12:06:52 +0000 There have been lots of responses to your original post; but I will add my bit if I may.
On my first chemo regime, after diagnosis, I was on CTDa but had to come off it after 41/2 months as I was so ill that I waas spending most days in bed and feeling like death.
My consultant said that there was no poine continuing if the treatmen was worse than…[Read more]

]]> d2c2c5b22bc7cc90a0f4d11748ee7f6e http://www.myeloma.org.uk/forums/topic/dex-and-weight-gain/ Wed, 29 Oct 2014 13:17:21 +0000 Just finished my second cycle of Velcade + Dex with very few side effects. However during the last week (after my last injection and pills) I have put on 12lb.
No other changes in lifestyle to explain this.
Anyone else had such rapid weight gain? My GP says that it is down to the Dex

]]> 2f59587c355ec08dabfdb969fd55096d http://www.myeloma.org.uk/forums/topic/dex-and-weight-gain/ Wed, 29 Oct 2014 13:17:21 +0000 Just finished my second cycle of Velcade + Dex with very few side effects. However during the last week (after my last injection and pills) I have put on 12lb.
No other changes in lifestyle to explain this.
Anyone else had such rfapid weight gain? My GP says that it is down to the Dex

]]> 847062b2c96cd2d2fac0f1b834cd087c http://www.myeloma.org.uk/forums/topic/dry-unpleasant-mouth/#post-119001 Wed, 22 Oct 2014 10:44:12 +0100 For the nausea, try Gin Gin Chews from Holland and Barrett (and elsewhere) I found/find this much better than the Metoclopramide.
I am now on Velcade + Dex and still have problems with a sore mouth (rather than a bad taste)
You never can tell with these side effects, we MM sufferers must suffer more side effects than any other people.

]]> bb9b48555bc0ada37b173352a80da029 http://www.myeloma.org.uk/forums/topic/good-news-on-velcade-dex/#post-118999 Wed, 22 Oct 2014 10:38:34 +0100 @ Sue
I am on Velcade + Dex (dont like to abbreviate to VD!)
I must say that on this cycle (2) I have very few side effects thank goodness; bit depressed at times and the PN soesn’y get any better, but all in all not too bad.
On the plus side, I do NOT have back pain for the first time in more than 2 years, I cant tell you howe good that is 🙂

]]> 5edc3d32c55ad7195111755cd7381f33 http://www.myeloma.org.uk/forums/topic/good-news-on-velcade-dex/#post-118897 Sun, 19 Oct 2014 13:03:23 +0100 Sue
Dont worry about Velcade side effects, not nearly as bad as CDT in my experience and they seem to get less as you get into the treatment. I am midway through se3cond cycle and the main side effects remaining are the PN in my feet, and like Ian I have some loss of feeling around my knees, also I have difficulty sleeping for the 2 nights…[Read more]

]]> dbb87a47fc0df1ba15403fa3cff7bcce http://www.myeloma.org.uk/forums/topic/good-news-on-velcade-dex/ Sat, 18 Oct 2014 13:27:48 +0100 Had my second injection in the second cycle yesterday and apart from an interrupted night’s sleep have had no negative reactions this time around. It looks as if, as some of you have said, this treatment does get better as far as side effects are concerned.
Take the good news and go forward into battle!

]]> 63a5d9181d42a2741597062642f4fdf5 http://www.myeloma.org.uk/forums/topic/light-chain-measurement/ Sat, 18 Oct 2014 13:24:35 +0100 I read lots of posts referring to ‘light chains’ and have read the info sheet on them; but it is something never mentioned by my haematologist (I intend to ask him at our next meeting.)
How common is this measurement amongst my fellow MMers?

]]> 4231ef33402f658df726ba6bbc523fc2 http://www.myeloma.org.uk/forums/topic/constipation-2/#post-118558 Fri, 03 Oct 2014 12:08:39 +0100 I am currently on my 2nd cycle of Velcade + Dex after my first relapse of MM.
I seem to be on a cycle of constipation and diarrhoea, nothing normal with this disease is there.
I take Laxido regularly for other stomach problems and find that after 2 days of constipation I need to up the doses of Laxido from 2 a day to perhaps 3 or 4 – that usually…[Read more]

]]> 9ba836a0fb3f86f21b97f92d07ad2907 http://www.myeloma.org.uk/forums/topic/eye-problems-3/#post-118133 Tue, 16 Sep 2014 10:59:40 +0100 My MM was diagnosed after a visit to my optician with badly blurred vision. He sent me directly to local hospital eye clinic who admitted me on the spot and 10 days later I was home with MM.
My first round of CTDa largely cleared up the vision but I recently relapsed with the first indication being blurred vision again. This is continuing in my…[Read more]

]]> 50477ca2ad4f3beb76dc63f768641db0 http://www.myeloma.org.uk/forums/topic/velcade-dex-continues/ Tue, 16 Sep 2014 10:46:03 +0100 My 4th Velcade injection comes on Friday with a weeks rest before seeing my consultant. Not finding this regime too bad although the steroid ‘downer’ gets worse with every cycle. My back pains seem to move around my lower back, no 2 days the same (today I can hardly walk.) I was told last week that as my blood count was so low I may need a second…[Read more]

]]> 0bad96bf403768f26d32d0dde6f6cb70 http://www.myeloma.org.uk/forums/topic/remission-no-1-is-over/ Mon, 18 Aug 2014 14:11:41 +0100 Just back from seeing my consultant with the news that MM is back after 10 months remission.
Not what I wanted to hear but it is what I expected as I had noticed a lump in my skull getting larger and vey quickly. My eyesight has also been blurredd, which is where I started when first diagnosed in May 2013.
What do I expect from my second phase of…[Read more]

]]> 3bc3bb59139253fc31e6a219c22c474c http://www.myeloma.org.uk/forums/topic/living-with-myeloma-book-your-hints-and-tips/#post-114268 Fri, 04 Apr 2014 10:57:55 +0100 Great idea; we do feel alone at times and people who do not use this forum must feel even worse.
Having completed (almost) the intial CTDa treatment I am in my 5th month of ‘remission.’
The worst thing for me is that I often feel very depressed that I have lost the ‘me’ that I knew and will never get him back.
I feel unwell for most of the time…[Read more]

]]> 1207b85ce9901208cd52af7581311e74 http://www.myeloma.org.uk/forums/topic/peripheral-neuropathy1384707699/#post-114266 Fri, 04 Apr 2014 10:46:18 +0100 Like many others I suffer from PN in m y feet with the same feelings as others have described. I do find that bed socks help at night.
I also suffer from very cold hands which I suspect is also PN.
All not very pleasant but better than some side effects.

]]> 567b35365131c6e6ef484b54c17d5bd2 http://www.myeloma.org.uk/forums/topic/continuing-side-effects/ Fri, 04 Apr 2014 10:43:07 +0100 I am now in my 5th month of remission after an initial set of CTDa, but still have a number of side effects that may be of some interest to others.
I still get a lot of pain in my legs and lower back for which I take a low dose of Zomorph, after the initial Oramorph made me very nauseous. However the Zomorph ‘zonks’ me out in a morning (don’t…[Read more]

]]> 36fe27a872b2eb8c2ef0b35f7f9ed747 http://www.myeloma.org.uk/forums/topic/zometa1380806545/#post-111607 Mon, 23 Dec 2013 15:03:06 +0000 I have read on another MM Forum about the side effects from Zometa and it appears that patients in USA get more information and warnings about these than I did.
I have been on Zometa for 7 months now and have only received the Macmillan leaflet which seems to me to treat the dangers lightly.
I have told my dentist that I am on Zometa and will…[Read more]

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