Yes Richard , we did think that too.  Quite a big difference that little 0 that means nothing to some but much to me.

Hi Everyone

Just a little puzzler perhaps someone out there has experienced the same.  I have had a count of 2000 in the light chain serum test, that has been the same for a few months now.  This test was done at Canterbury.  On a visit to Kings Hospital I had to have a blood test to get my latest reading of light chain serum and it came back at…[Read more]

I read your comments with interest.  I have light chain readings of 4000 to 2000 .  on velcade with dex.  This result wasn’t enough to put me into remission with a lower reading.  I needed to be at around 25 to 100.  I am just about to start another course of velcade with thalidomide to try to get the reading down.  I am disappointed to hear your…[Read more]

Hy Cygnet

I have just noticed your comment on looking for a specialist.

I am in KENT AND CANTERBURY .  I have been under them since last March.  Things have been quite slow in progress.  I asked for a referral to the Royal Marsden by my GP and Kings in London.  I have had both referrals now. The Marsden was spot on and really have got a sli…[Read more]

Thank you Dorothy.  That was a kind thought you put out to everyone, you keep well too and hope that you are getting plenty of support. Amanda.

Hi Jan

Thank you for your account .  Everything has become so much easier now that I can see the unknown .  It was quite daunting talking with the consultant as everything seemed so drastic, but I now can see that it possibly could be so very different to what could happen.  I am pleased to learn that you are in remission and so far with the ac…[Read more]

Good morning Keith

Thank you very much for your account and story.  It made me laugh in a few places as I could imagine myself being high as a kite as I only have to have a sniff at a glass of wine and I am rolling about .   Having said that so far everything I have heard from people so far has been very different from the consultant telling th…[Read more]

Hi Tony

Thank you for your account .  I will remain positive , I have up till now , especially for the family as I don’t want any of them upset. Today I had a wobbly moment but your story has put me back on the map .

It was great to hear that you are still having a good life and enjoying yourself , and feeling well with it.  Wow well done.  Goo…[Read more]

Hi Tony

Thank you so much for taking the time to tell me how it was for you.  I feel reassured that I am doing the right thing , as you quite rightly pointed out the doctors tell you all the possible effects and it starts to sound unbelievably scary and almost unreal.  I am really pleased to hear that you have been there and done it and sounds a…[Read more]