Hi Vanessa
Welcome to the forum.
When I was first diagnosed my PP's where 49 and I was told a 50% reduction was the minimum needed before a SCT could be contemplated. Unfortunately it took me a year and lots of different treatments, CDT, PAD, DTPace and now RCD, before I achieved the minimum required resulting in my bone marrow being well and…[Read more]

Hi Grayham
Welcome to the forum. Although none of us wants to be members you'll find it's a very friendly and welcoming forum. No question is too daft or trivial – so just ask away.
My history is I was diagnosed in October 2011 after approx 18 months of back pain. Unfortunately my MM has proven to be a challenge to the medics and the drugs. My…[Read more]

Hi Keith it was good to catch up with you yesterday. It's always good to see you. Though obviously I'd prefer it to be somewhere other than the day case unit. I hope your transfusion went ok and your energy levels start to pick up a bit.
Patrick was having trouble keeping his HB's up and he like you was having regular transfusions. I hope his…[Read more]

Hi Vicki & Colin..
Hope you both had a good Xmas and New Years.
Glad to see Colin is recovering nicely post SCT but don't let him do too much. Obviously I don't speak from experience but from what I've read 😉
We really hope this year will be great for you both and you get to enjoy yourselves. Holidays, parties let the good times roll :-D…[Read more]

Hi Helen.
Just seen the photo you posted 😀 looking good.
Hopefully you are feeling good too and had a good Christmas and new year.
I see you are having trouble with food re Revlamid I don't find it a problem. I have a problem with cyclophosphamide putting me off food and making me feel nauseous. I have 3 courses of cyclo. per cycle and my…[Read more]

Hi all
I can't add much to the zometa flu debate other than say to date I haven't experienced any problems after my infusion. I have it infused over 15 mins.

Take care
Andy

Hi Dai
Well you just escaped in time! Steph and I arrived in Nottingham earlier – Saturday afternoon – only a 10min walk from city hospital. Steph said "Dai's in city hospital message him to see if its ok to visit" but when I came on here I saw you went home Friday. Never mind – it's good your home.
Hmmm Dave and Top Gear that's what I was…[Read more]

Hi Keith.
It was good to see you at the day case unit Friday. Sorry I couldn't stay longer for a catch up. We were having windows replaced! Your platelets are very low but at least your neutrophils are good – I thought I was doing well with my neutrophils at 1.9 My potassium is low again so I've got those awful tablets to take again. Well I…[Read more]

Hi David.
Good news your going to be drug free over Christmas and for your birthday. I seem to get another new drug every time I see my consultant my latest addition is an antiviral.
Have a happy Christmas a healthy new year and a wonderful birthday David

All the best
Andy

Hi Dai.
That C.diff is really hanging around causing you problems. Really glad that your starting to feel better. Glad that you can start the bendamustine after Christmas and your birthday. Hopefully you'll be home in time to enjoy Christmas, I was discharged last Xmas eve, and your birthday.
Take care Dai.
All the best to you and Janet…[Read more]

Hi folks.
Thanks for all the replies.
It does help boost morale that you all take time out of your own personal battles to read and reply. I read the posts all the time but sometimes find it difficult to post my news or give my insights when there's so much good news going around and so many new members on here with me being a difficult case.…[Read more]

Hi Sarah Jane.
I'm on RCD though not on the trial. I'm on cycle 10 🙂 and my PP's are only creeping down at 21 last reading. I've been on treatment for 14 months now! and that's the lowest count I've achieved.
Whoops I've gone off course of what I wanted to say lol. I've found it's the cyclophosphamide that causes the nausea with me. I've been…[Read more]

Hi Keith.
You sure are going through it at the moment! It shows how careful we have to be and to monitor our temperatures regularly. Things can go down hill really fast – NEW MEMBERS PLEASE NOTE – and it's important to ring in with ANY worries.
I'm glad your back at home now and hope you can stay home over the Christmas and New Year period. I…[Read more]

Hi Helen
Good news that you've reached the second anniversary and everything is going well. If only you could get rid of the last of your cough.
I had to read your second post twice, I thought you were calling the Prof. A hobbit lol 😎 I blame it on the steroids I'm on!

We hope you have a good Christmas and a happy new year Helen

Lots of…[Read more]

Hi all.
I had my zometa today errrr yesterday which was administered with the usual effiency. Then we had our meeting with my consultant. My paraproteins have drop slightly again from 23 to 21 – not brilliant but moving in the right direction. So I'm putting it down as good news – we haven't had much to cheer about since diagnosis Oct 2011. She…[Read more]

Hi everyone.
Many thanks for your posts and kind words. Yesterday was a blow but my journey from the start has been one disappointment followed by another so we're getting used to it.

Dai the reason I was given why I can't have an auto sct is my bone marrow has been battered by so many drugs that I wouldn't produce enough stem cells. My last…[Read more]

Hi Vicki & Colin.
What great news having Colin home. Vicki tie him to the chair we don't want him to wander off back to the hospital any time soon. I know you'll be keeping a close eye on Colin Vicki make sure he doesn't try to run before he can walk. You must have mixed emotions having home elation and worry but I'm sure the worry will fade…[Read more]