Hi Polly
Sorry you have to start treatment. I started mine just over a year ago and have been through several different treatments but one thing has remained a constant that is the injections. I self inject tinzaparin daily to prevent blood clots I have from day one of my treatments. It's not too difficult and only sometimes a little bit painful…[Read more]

Hi Ali
We're pretty boring when we go to Greece we go to the same place, Kefalonia, same hotel, eat at the same restaurant and just laze by the pool reading whilst catching some sun! We used to go for long walks too but my back damage has put paid to that. Holiday insurance is a bit steep but necessary and planes are a good place to pick up…[Read more]

Hi Keith.
Good news about your blood tests. Now all you need is your platelets to continue climbing. Then you'll be back to stabbing yourself again 😉
Good luck Keith
All the best
Andy

Hi Vicki & Colin
My paraproteins are at their lowest level since diagnosis they are now at 24 – well they were that was the news we received when we returned from Greece – that's a fall of 8 from my previous reading of 32! Not a great fall or reading but it's going in the right direction. Fingers crossed for last Fridays blood test! Oh I found…[Read more]

Dear Rachel

I was shocked and saddened by the untimely death of Paul. We where having a similar MM journey struggling to get to SCT as the medics tried to find the right drugs. I went through the DTPace regime before Paul and again it failed me. I must admit when DTpace worked for Paul I was a touch jealous but also pleased when it worked for…[Read more]

Hi Vicki and Chris.
They do like putting hurdles in your way. Considering what you've both been through to get to this stage I think this latest blip will be a piece of cake and those cells will be back where they belong in no time at all.
Sorry I haven't posted for a while been fighting of a few infections.
Good luck with the transplant…[Read more]

Hi Pat
I got my blue badge through my local council and found it straight forward. I have the higher rate DLA so I qualified automatically. I was also entitled to a bus pass as well. I'm 54 😉
Good luck with your application.
All the best
Andy x

Hi Helen.
Sorry to hear your still having trouble with your chest but at least you now know the cause. I'm just getting over a cough and cold and a couple of infections I arrived home with after our lovely holiday. I'm starting to feel normal again now – well as normal as I get to feel on RCD. I've been taken off the cyclophosphamide for the…[Read more]

Hi Vicki & Colin
I'd just like to add my congratulations. It's been a uphill struggle but your up there now. Let's hope it's all down hill to a successful sct and on to full remission.
Wishing you all the luck in the world
Andy & Steph xx

Hi Vicki & Colin
Hoping everything is going well.
All the best from Andy & Steph lazing in the Greek sunshine xxx

Hi all
Whoops I forgot to say we're on the lovely island of Kefalonia. Thanks David for the reminder 😉
Tom I'm not rubbing it in 😉 just the sun cream and lots of it because it's very sunny here. How's the weather in sun scummy?
:-0
I'm keeping well hydrated with the local brew and the occasional bottle of water.

Take…[Read more]

Hi Mari & Steve
Good luck with Steves SCT I hope everything goes smoothly and a long remission is achieved.
Wishing you well.
All the best.
Andy xx

Hi Helen
What a waste of time! Prof Jackson was at a conference and we saw one of his underlings who knew nothing about my case. So was sent on our way with a you'll probably receive a new appointment in the post! Not good.
Hope your chest infection is improving.
All the best
Andy xx

Hi Vicki, Colin & Tom.
Weather update – woke up this morning to thick fog! I think the sun is avoiding us.
Hope you all have a sunny weekend whilst we hide out in the pubs 😉
All the best
Andy xx

Hi Vicki & Colin.
Another day draws to a close in the lakes and we've had no real rain! We. Actually saw the sun for a few minutes today 😉 Anyway we've had a good day. Did a little walking and a bit of sitting on our way round tarn hows and then had a beer and a bite at coniston. I'm now tired out. Hopefully the sun will shine a bit longer…[Read more]

Hi Vicki & Colin.
I really hope you get the prelixalor funded and it does the job. I've been told my bone marrow is not up to producing enough stem cells for a sct due to the battering it has taken through all the different chemo drugs I've tried. If I remember right Colin has only had one type of chemo so hopefully his bone marrow won't be too…[Read more]

Hiya.
I think you'll find we all struggle with sleep at times. I'm not working so I can nap during the day if need be. Fatigue is also a side effect of mm and you need to listen to your body and rest up when it tells you. Steroids are especially hard on sleep. You need the support of family, friends and work to help through the difficult mm…[Read more]