Hello Vanessa and Philip.

Welcome to the forum. We are all friends here.

Sorry I can't help you with your question. I was only diagnosed October last year and haven't reached a stage for a sct yet. I'm sure you'll receive an answer from someone who has had a similar experience as Philip soon. If not you could give Ellen a call on the…[Read more]

Hiya Ann and Pete.
Welcome to the forum, none of us want to be here, but it's a friendly, supportive and informative forum.
Sorry for the delay in welcoming you but I was in hospital last week and have only just recovered.
I was diagnosed with mm oct 2011 after approx. 18 months of back trouble.
If you have any questions ask away, either…[Read more]

Hi Eve
My blood tests came back good – hopefully when they check my paraproteins next week we'll see some downward movement – however I'd been feeling a bit under the weather since Monday and my temp has been rising. It was 38.2 today so after my zometa they did all sorts of tests to find the source of the infection. They think it could be my…[Read more]

Hi Teresa
I hope the hospital visit goes/went well. I was. At hospital today hmm yesterday now for blood tests. They came back ok. Though I did have a raised temperature – more pills to take.
I enjoyed reading your son in laws brewery website it's well set up and informative.
I'm happy to see he's brewing Belgian beers they are a particular…[Read more]

Hi Tony
Welcome to the group. You'll find out most things you need to know from your friends on this forum. Everyone's story is different and everyone's journey is also different. If you get stuck for advice then there's the helpline.
I myself was diagnosed in oct 2011 so I've not long started my journey. It's been a bit bumpy so far for me.…[Read more]

Hi Eve
I take my DEX just after breakfast – not that it makes much difference because some nights I'm wide awake and others I crash out. Today I was like a zombie all day just wanted to lie on the sofa with my eyes closed! Now I'm in bed I'm wide awake 🙁 Hopefully as soon as I put my phone down I'll nod off.
Tomorrow is blood test day – with…[Read more]

Hi Teresa
I am indeed a beer drinker [url=http://www.freesmileys.org/smileys.php][img]http://www.freesmileys.org/smileys/smiley-eatdrink005.gif[/img][/url]
Having a son inlaw with a micro brewery sounds like heaven to me. We've been out again tonight for a couple of beers with my brother and his wife. Not that I drink much nowadays. Is Peter a…[Read more]

Hi Teresa.
"feeling alright" = ok. I'm sure I would feel a lot better if it weren't for the drug but the drugs are a necessary evil :-/
I've had a busy few days with Easter ( going out having a few drinks 😉 ) and yesterday being my wife's birthday more drinks and a meal. Today I've been tired out!
I've been on a steep learning curve since…[Read more]

Hi Mavis
Sorry to read about your troubles. Hopefully the medics will get things sorted soon and you will be able to go home.
Love and best wishes
Andy xx

Hi Dai
Just thought I'd add a newbies perspective.
Since I've only been a member a few weeks I can't comment much on the history of the forum however since I plucked up the courage to post I have got nothing but praise for the forum. The support, advice and kindness from my friends that I have gained on this forum has humbled me. I now have…[Read more]

Hi Teresa
DT PACE well the DT part of it is the usual dexamethasone and thalidomide (tablets). The rest was Cisplatin , Cyclophosphamide , Etoposide and Doxorubicin all given as an infusion 24hrs/day. Not sure how it equates as "pace" but there you are.
I've enjoyed Easter thanks – we've been out and even had a few drinks…[Read more]

Hi Teresa.
I was diagnosed Oct 2011 but I think my symptoms started 18 months previous. The usual back pain treated by the doctor with pain killers and Physio.
On diagnosis my paraproteins measured 50 after 4 cycles of CDT my readings only dropped to the mid 30's. I was then moved onto PADS (Velcade). I had 2 cycles of that with no movement in…[Read more]

Hi Teresa
Just caught up with your posts – I've not been posting long myself but have learned a lot from the wonderful and supportive members of this forum. I was diagnosed October 2011 but recently my treatment has stalled a bit. Hopefully I'll get to a sct stage soon.
Anyway a belated welcome to the forum
Andy xx

Hi David
It's great to hear your good news it gives everyone a lift. Especially me as I seem to be stuck in a bit of limbo at the moment. I hope you cough soon passes and you can get out and about again. Though the weather we're having here is good indoors weather.
Let's hope for more good news posts
All the best
Andy

Hiya Neelie.
First of all welcome to the forum. Not that it's a forum that one would choose to be a member of but we are where we are. You'll find it's a good supportive group with good advice.
I had to wait 18 months for diagnosis from first going to the doctors with back problems. Nearly a year spent going back and forth for pain killers and…[Read more]

Hi Helen
I feel fine thanks. If it wasn't for my back I wouldn't know I was ill!
I started my first REV – DEX cycle yesterday so I'm on DEX time. Feel tired during the day and wide awake at night lol. What's you excuse being awake so late?

Andy xx

Hi Dai
The beer festival is held at Nottingham castle mid October last year it was a week after Steph and I got married and 10 days after my diagnosis. This years dates are October 11th – 13th inc. They're aiming for a thousand different beers this year :-0
Hopefully I'll be fit enough to go 😉 I've been a member of CAMRA a few years now.…[Read more]

Hiya Susie
Sorry to have to welcome you to the war on myeloma. You will find loads of support and advice from the happy band that makes up this forum. I was diagnosed October 2011 after 18 months of back trouble when my paraproteins were 50. I'm down to the mid 30's now but it is proving difficult to get them lower. My consultant wants me below…[Read more]

Hi Kay
Thanks for your reply it has given me a lift knowing your pp's where high and you still got a decent result from sct.
I haven't actually drank hardly anything since Christmas and I can't say I've missed it. It was good to go out Saturday just to feel "normal" for awhile.

Cheers 😉
Andy xxx