Kazzam2 replied to the topic Being Thankful! in the forum General 11 years, 6 months ago
Hi Mavis,
I am new on here and still having a look round. Had to reply to this and say here here, to being thankful!:-)
Take care
Karen
x
Kazzam2 replied to the topic Dr Brian Durie discusses diet for people with Myeloma in the forum General 11 years, 6 months ago
Good read, I would like to hear the interview.
Good news about Red wine 😀
Kazzam2 replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Eve and everyone,
I agree, the failings are definitely in the GPs. I was having treatment for some months at a private osteopath based in my surgery. He said something was amiss with my back and went to see my GP to recommend he send me for a scan. My GP refused and just kept plying me with painkillers. All this happened approx a year…[Read more]
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
I was in the cell directly facing the kitchen. I think I was green cups, (chemo brain me!)
On the 6th June, I am on a clinic/consultant. at 11.25! But I am at the lower level.
My infusion is 23rd May. (day ward). The day ward staff are really nice, but is it me or does it sometimes seem a bit chaotic?
Take care
Karen
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi Jean,
Thanks for a lovely welcome, I'm just about to put kettle on. Milk and sugar?:-D
Very nice to meet you, hope to share stories and rants in the years to come.
I have been on here all night, well a long time for me anyway>:-) .
See you soon
Regards
Karen
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
ps I was offered the maintenance drugs on my last visit by Dave, it was a bit out of the blue, and I declined as I want to give my body a rest as it has been battered.
Not sure if i have done the right thing though.
Regards
Karen
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi TonyF,
I had my SCT on 11th Jan 2013, i was admitted on the 9th Jan> . I was discharched on the 28th Jan, we missed each other by a day. I know Drs Chapman and Barton, but my main consultant is Dr Garg, I seen her a lot when i went for my vertebroplasty to the Spire hospital (husbands cover through work), Dr Rennie did op, it went very…[Read more]
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Hi TonyF,
Thanks for the welcome. Nice to meet you.:-) (bit of a smiley monster)
I hope there may be times when I can somehow help or support.
Regards
Karen
Kazzam2 replied to the topic Hello, I am new to this. 10 months since diagnosis in the forum Newcomers 11 years, 6 months ago
Thanks Etta,
I can tell already that people are friendly.
I put my story on my profile but will copy to here.
Thanks again Etta, nice to meet you. Karen 🙂
I am a 51 year old married mother of 2 teenage girls. Diagnosed aged 50 in July 2012, with Multiple Myeloma. Changed all our lives forever. We live in Rutland, but our nearest…[Read more]
Kazzam2 started the topic Hello, I am new to this. 10 months since diagnosis. in the forum Newcomers 11 years, 6 months ago
🙂
Hi my name is Karen, I was diagnosed with multiple myeloma last July after over 2 years of bad back pain. In the end it was a duty doctor that suspected something more sinister than backache and bloatedness.
I need to have a look round on here and check you all out (8-)). I suspect this could be the site I have been looking for.
tom replied to the topic Counselling for Henry in the forum General 11 years, 6 months ago
Hi Sarah and Henry
Its a bugger these chest problems I seem to have too many and I don't bloomin smoke now??.
Now I understand how Henry feels, we had a councillor at the hospital in hull where I had my SCT I used that and he was pretty good 😀 dint even kn ow I was having it till I started to get a bit weepy 🙁 but Hey it worked 8-)…[Read more]
tom replied to the topic Well – we got around it! in the forum Off topic 11 years, 6 months ago
Hi David
Well that's a shame I could have used your contacts for a discount Ha ha, great hotel group is the Marriott 😀
I bet you make them jump when you go into them lol.
Stay well and hope the weather soon picks up for us all
Tom Onwards and Upwards
tom replied to the topic My brother. in the forum Newcomers 11 years, 6 months ago
Hi Nicki
I am so sorry to hear of your loss, My condolences to you and Adrian's family and friends.
Am sure it wasn't easy for you all and am sure you need answers to the why and hows.
Stay strong
Love Tom x
tom replied to the topic Well – we got around it! in the forum Off topic 11 years, 6 months ago
Hi David
Am pleased you had a great time, and am sure the "My Old Lady" was pleased you done it looks like you had good weather 😎
Dads grave you look like you are lifting it up to have a look inside? great stone. just one Q ?? are you related to the Marriott Hotel chain ??.
Great Photo's David and well done I bet it was hard work at…[Read more]
tom replied to the topic Velcade/Melphalan/Prednisolone in the forum Newcomers 11 years, 6 months ago
Hi Maureen
welcome to the site and am sorry to hear about your partner, unfortunately I cant help with this one as all I have had is CTD leading up to a SCT in 2009.
Am sure someone will be along pretty soon and give you the help and advice you need.
Good Luck to you both in the Journey to remission.
Tom Onwards and Upwards
tom replied to the topic Three steps back and thumbs up? in the forum Treatment 11 years, 6 months ago
Hi Dai
Well you are doing well and am sure you and Janet are well pleased you can now have and do visits :-D.
Am well sure your gonna crack it this time and to help you my fingers are well crossed 😎 , its good to see you getting a chance and hope that something else is on the use list soon.
Stay Well My Friend and am sure summer is just…[Read more]
tom replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Eve and you all
Eve "Tom you surprise me,I thought you would think doctor know,s best ,learning new things about you,takes something to question a doctor or 2 doctors opinions."
I did and the reason is I knew it wasn't a bruised rib nor a pulled Muscle as I have had both of those many a time 🙁 (rough pubs and a cheeky grin dunt help…[Read more]
tom replied to the topic Mum in the forum Newcomers 11 years, 6 months ago
Dear Hawkeye
I am so sorry your Mum has passed away, condolence to you and your Mums Family and friends.
Just remember the good time before MM came through the door.
Tom xx
tom replied to the topic Complaint to NHS re late diagnosis in the forum General 11 years, 6 months ago
Hi Maureen
Well I was told I had a pulled muscle or a bruised rib when I went to GP, and before I left her I had another Dr brought into the room as I wanted. Second opinion as I knew it want one of those.
And after a bit of a fall out with both Drs I was given a chest X-ray , and as they say the rest is history.
Good Luck with it all…[Read more]
tom replied to the topic Goodbye Keith in the forum End of Life and Grief 11 years, 6 months ago
Andy and Steph
Am sure it was a great service, and am pleased He had a good send off.
Thanks for posting this Andy.
RIP Keith sadly missed