tom replied to the topic Information/Experience on relapse and velcade in the forum General 11 years, 8 months ago
Hi Dan
Well you are doing a great Job for such a Young man and am sure evry one is proud of the way you cope, but as others have said ask for help and use it you need space and time away from all of this MM stuff every now and then.
Such a lot to do and sitting exams also wow I am proud of you as well 😎 but ask and take the help as much…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Hi Dai
Am pleased to read your Temp is dropping, I think its a MM thing ?? I get hot high ish temp every now and again but feel well in myself 😀 and am on Nothing and all bloods are good he tells me Lol.
Stay fit and be Cool Dai 😎
Tom Onwards and upwards x
tom replied to the topic Franks SCT take 2 in the forum Treatment 11 years, 8 months ago
Hey Jean
Frank sounds like me (but not the footy lol) I never used to ask I just let them get on with it 🙂 if My Mans Happy am Happy
Let frank sleep its going good Honest.
Love to you both
Tom an Elaine Onwards and Upwards xxx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Helen and Garry
Your both welcome, the sickness and trots was with me for a couple of months post SCT so not too much of a problem as long as you drink plenty Garry ???????????????????????? it will work out .
Stay well not be long now ????
Tom Onwards and Upwards x
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Hi Dai
Good Luck with this one 😀 and am plesed the net found you albeit Late :-S , I went on Zometa in 2010 after my 100 day BMB after Sct and had them for two years.
As for the Fatigue well I have sort of starting to put mine down::
1) being less active since diagnosis
2) Just plain old getting Older :-S Lol
Dai its Ok to…[Read more]
tom replied to the topic Zometa 'flu' in the forum Side-effects 11 years, 8 months ago
Hi John and Dai
John you have been on Zometa for a fair bit?, I was only on it for two years in 2010 after my SCT in 2009 and was told thats enough ?
Dai yes i had flu symptoms for a few of the sessions it soon went, But i also would keep an eye out for your temp as it has been a bit of a problem for you.
Hope your all Ok
Tom Onwards…[Read more]
tom replied to the topic Nottingham Patient Info Day in the forum General 11 years, 8 months ago
Hi Jet Well done and good Luck 😀 and if you need something for your slide show to make people realy Laugh go on my Face book and nick some photos of me Lol.
All The best and am sure you will do a cracking job
Love Tom Onwards and Upwards xx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 8 months ago
Hi Vicki and Colin
Am pleased you get a smile from my posts and that makes me Happy ????and it's just common old nuts am afraid ????
Love Tom Onwards and Upwards xx
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
hey no tracking am here :::::: tom.lappin.5
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
Aww I cant remember if i was cold and shivery? to be fair Jean but I do remember my room being cold all the time anyways 😀
But if Elaine (the young bride) woke me up for Football I would kill her (sorry Elaine xx lol) am sure you can tell I dont do footy 😛
Its started now Jean one day at a time dont worry too much just both Relax and let…[Read more]
tom replied to the topic Mum developed Sepsis after just two courses of chemo! in the forum General 11 years, 8 months ago
Hi Sandie
Sorry your Mum is going through a rough time, I cant help on this one am afraid just wanted to send My Good Vibes.
Love Tom Onwards and upwards xx
tom replied to the topic Disability Living Allowance in the forum General 11 years, 8 months ago
Hi Eve
Yes you are correct and am sure you know i have heard the word NO many a time Lol
Yes and Pension people do give you more if you are ill and let them know.
6 til 2 is what i have done all my working life and prefer that shift more than the others 🙂
I will give it another think about it.
Many Thanks for all your Input's its been…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 8 months ago
Hi Dai
Baby steps is good if its working no need to rush it and cause more side effects?
As for you feeling Weak and Weary well I will be same on thursday but am putting it down to cold weather 🙁 roll on Spring 😎
Stay Steady
Love to you and janet
Tom Onwards and Upwards xx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Helen and Garry
I was told that I should not have my dog and My Parrot (African Grey) and that was so as not to get in contact with the Poo from either 🙁 so Elaine took over cleaning Sam's Cage but in the end we gave him away to a lovely lady who says we can go and visit anytime we want (Both are well happy) still got dog cos Poo is…[Read more]
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 8 months ago
Hi Jean and Frank
Hope (am sure it will) SCT goes in nice and smooth 😀 dont forget when you see frank to mouthwash as much as he can.
Frank you will soon be dabbing with the soft loo rolls.
I was out on Day 16 go and beat that one Frank 🙂
Tom Onwards and Upwards x
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Now Girls dont pick on the simple ones leave tom alone lol 😀
Eve My Friend you have a great sense of humour it brightens my bad days up to bloomin good uns 😀 and i am same see it say it I cant bite my tongue as it makes it bleed lol.
Jane trust me girl i have been called worse (aint i Eve Lol xx) its good to chat and for our sins Eve and…[Read more]
tom replied to the topic New to this in the forum Newcomers 11 years, 8 months ago
Hi Jane
Well you have met Eve now Tut Tut Tut your life will never be the same am pleased to tell you that young lady is that near the knuckle I have no skin on them and am on light Dutie's lol.
You add what you feel to end your posts.
Take Care and stay well
Love Tom Onwards and Upwards xxx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise I have Lol real loud here as in one of my posts I asked your dad's name???:-S and just noticed the post is ::::Garry's SCT journey so I have now concluded your Dad's name is Garry 😛
Gosh am a silly billy lol xxx
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 8 months ago
Hi Louise
Well that smell differs with people My Eldest Son said it was a fish and chip smell and when he went home after the visit he phoned me and said he though the was still with me as he was in a Fish and Chip Shop lol.
Good Luck to your dad and remind him to mouth wash as often as he can
Tom Onwards and upwards xx
tom replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
Hi Jane
Sorry you are having a "Downer" you will have a few of those am sure :-S I do and i find (even as a mere male) that its better to cry in the shower :-0 , Yes i cry and yes i do it in shower its good for me so it might be good for you??
Its a rough rough road you are going down I have done that road and had a few bumpy bits but it has…[Read more]