tom replied to the topic Michael in the forum End of Life and Grief 11 years, 9 months ago
My Dear Sue
I am so sorry for your loss as your loss is now our loss.
Please Take Strenth on the Good Times and push this Myeloma to the back of your mind.
Although its very sad when Michael passed away he is in no pain now and I hope you all feel better with Michael passing away at home.
I wish I lived near you Sue as am sure you need…[Read more]
tom replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Hi Jean and frank
Good Luck with it all
It will be worth it in the end the results far way out the bad bits, let Frank determine how his body feels each day and go with the flow.
Love and hugs to you both xxx
Onwards and upwards xxx
tom replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
went in wrong place so here it is again Lol
Tom
RE: Got call at las
20-02-2013 at 9:16 PM
Jean sent you a PM xxx
tom replied to the topic Got call at las in the forum Treatment 11 years, 9 months ago
Jean sent you a PM 🙂 xxx
tom replied to the topic Platelets will not rise in the forum Treatment 11 years, 9 months ago
Hi Keith
If one thing My Friend you are a fighter keep it going Keith and as for the Dr at your hospital not being contactable ?? well I must be very fortunate as I can get hold of my Dr at hospital and if he is busy he phoned me back.
Stay strong Keith and hope you have a better time with it as I know you deserve it.
Fingers crossed Tom…[Read more]
tom replied to the topic Chemo brain, chemo fog in the forum Side-effects 11 years, 9 months ago
Hi Lorry
Well let me tell you I was told I had "Chemo Brain" after my SCT ?? asked the Q's when i had your problem :-/ and was told Chemo Brain :-0 now I had my SCT in December 2009 am now drug free and in remission or platued whatever??: Age 57 (born 1955) I was told it will recover ?? am still waiting Lol 😛 :-S
Hope your soon…[Read more]
tom replied to the topic A hip operation during CTD? in the forum Treatment 11 years, 9 months ago
Hi Marina
Sorry you had to join after your Husband diagnosis with MM you have come to the correct place.
I am sorry you two have had a bit of a rough time with it of late and sorry I cant help you this time but am sure some one will pop along and give you the Good advice you need.
Tom Onwards and upwards x
tom replied to the topic Three little words…… in the forum General 11 years, 9 months ago
Hey Rock and Roll Hey Rock and Roll 😀
Hey Vicki and Colin
A Well Done a very Well Done, you dont need me to tell you how good it feels now do you 😀
Now I will have a Drink of beer for you both tonight, Great news well done you two.
From one Onwards and upwards to another Onwards and Upwards xxxx
Am well chuffed 🙂 x
tom replied to the topic So Alone 2 in the forum End of Life and Grief 11 years, 9 months ago
Dear Sue
How I feel for you all at this difficult time, I send you all a Cyber hug and i hope that helps, its no good me saying you must rest as you need to keep your strenth up as am sure you cant sleep.
Will you do it again I say yes as though we have not met I know you are a very strong lady, stay strong throu out this difficult…[Read more]
tom replied to the topic sct looming but pp plateau at 14 in the forum Treatment 11 years, 9 months ago
Morning Peter
Yep Early Days and you are doing good, Moth will soon get better as will your will to eat, My young Bride (Elaine gave me mine food on a small plate so as not to overface me so to speak (it worked am now back to being fat ha ha)
All the Best Peter now am off to work 😎
tom replied to the topic Melphalan in the forum Treatment 11 years, 9 months ago
Hi Gina
Well I dont think you are getting what you and os your Mum Deserve?, its shocking to hear you only have such a short time with the Consultant, Now i am one of those that say "If the Dr Smiles am Happy" but I do know as and when I need to know anything nothing is too much bother from him or his team, am sure i am not the only one that has…[Read more]
tom replied to the topic Article and stuff!! in the forum General 11 years, 9 months ago
Hi Chell
Well done just been and had a look at your "New" Facebook Page, now am going over to add you on my Twitter 🙂
Love Tom Onwards and upwards xxx
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Babs
Thanks and Yes I hope it gives strenth to others that have and are going through the same.
Stay well
Love tom Onwards and Upwards xx
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 9 months ago
Hi Sandie
Ha ha I know what you mean no exercise and too many Chocs 😀 I am a Devil for Nuts/crisps and sausage rolls lol, and i dont do Pilates, But I have Charlie our Yorkie to walk three four times a day 😎
Hope your both doing well.
Love Tom Onwards and Upwards xx
tom replied to the topic More Positive News. in the forum Treatment 11 years, 9 months ago
Hi Babs
Great News Girl, nest visit to Kings 2014 that is great news 😀
Keep up the Great work am as pleased as punch for you Both.
I have a Bus/Train pass but its only for me 🙁 the young bride (Elaine) has to pay lol.
Enjoy your Holls and stay well
Love Tom Onwards and upwrds xx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki and Sam
So sorry to hear about your breakdown, I do hope your getting some help with it? and that also means trying to get help for both of you its a hard slog going through it all and being a Carer (hate that word??) its harder than being the patient I have been both (now the MM'er)
Its rough that Sam has relapsed but I hear…[Read more]
tom replied to the topic Melphalan in the forum Treatment 11 years, 9 months ago
Hi Gina
I am like most I had mine prior to SCT so cant help.
Its a Shame and a disgrace that the consultant is on his own but that should not detract from the fact that without proper consultations and discussions a decision cant be made.
I would Email/Phone the Nurse on here as am sure you cant be forced into this with not knowing the…[Read more]
tom replied to the topic Question…..maintenance treatment in the forum General 11 years, 9 months ago
Hi Vicki and colin
Well as you know I cant add to this post as I have only had CDT then SCT (i say only ?? lol)
But want to wish you good luck with whatever you Both Choose, and to let you both know we are all behind you to help you get through it and achieve the Remission that we all crave.
As for the "Hangover" I honestly dont know what one…[Read more]
tom replied to the topic I was at Hospital Today and consultant said in the forum Treatment 11 years, 9 months ago
Hi Phil and Megan
Thank You its good all the way 😀 am pleased to say, and i washed the Car good and proper yesterday and am still fit today ha ha.
Hi Tina
Thanks it is good as you know when we get good news 😉 I have heard about long term Zometa, I came off mine after two years, but to be fair I was pleased as they found it harder to find…[Read more]
tom replied to the topic CTD Dosage in the forum Treatment 11 years, 9 months ago
Hi Peter
Well you know you and i are 16 dayer's as i was in Castle Hill for 16 days and as they say the rest is history, Keep up the Good work and am sure your Man is gonna be happy for Many a year to come 😎
Hi Maureen
Its a great Day Today we have had three Grandchildren who after staying the nite are now out in the (cold) Sun waking…[Read more]