Hi Karen

Sorry to hear you are a bit down 🙁 and am sure it will get better as time nips along I have neen in your position and after a few years and many a black day I am now "Spot On" stick with it Girl its going to be worth it 😎

I dont have your request on Face Book ? you will know its me my photo is of me in red dickie bow 😎 one…[Read more]

Vicki and Colin

Has Colin still got hnis Line in?? as sometimes that is the cause of infection and High Temp, Hope its all sorted and you both are back at home am sure its bloody hard work for you both so am sending you BOTH some of my Cyber Hugs (((((Hugs)))) (((Hugs)))) and trust me these work 😀

Love and Hugs with the Hugs

Tom…[Read more]

Hey Tina
Its not a moan Girl its an observation that you cant do what you did before and or want to do now, you have undergone "Major Surgery" I know we have no large scars no gaping wound and no stitches to show off but it is Major op we have had.

Being weepy doesnt make you week it will make you better tears are a good release for us.
As…[Read more]

Hi Sarah and Mum

As for needing someone at home after my SCT ? I asked my young bride (Elaine) and she says that she went to work but left me a flask of coffee and a pack up (just like work lol) after feeding me breakfast and said i stayed in bed till she got home for the first week and she also said that the first time i went out was Xmas Eve…[Read more]

Hi Karen

Yep it looks like its going the correct way 😀 and as for the Chemo brain hey am a mere male I have had that for years (or so am told lol)
Am sure the MRI will be fine i have had a cough for years i think and it varies in degree of roughness he he.

I am doing great thanks, but I have always tried to beat it andnot bother too…[Read more]

Just to let you know Eve is still here stalking me 😎 and will set off for her jaunt on Sunday I think, am sure Eve will be along soon.
Have a good Un Eve am gonna miss you 😎

Iccle ole Tom "Onwards and Upwards" xxx

Lol Eve
Well I have to say with all our Kids (three handsome Men now) I got Morning sickness with each one so I knew the young bride was pregnant 😀
and you are corect I soon forgot about that.
My Glass is always half full so it all works for me 😎

Love Iccle ole Me "Onwards and upwards" xxx

Hi Vicki & Colin

Well That devil likes hospital food?? or is it a pretty nurse?? Lol
Tell That Colin yes he has had it rougher than I can recall my time but he will get through it, keep the fluid level topped up and all being well it will keep him healthy.
The IV drip will soon have it sorted and soon be home but ask for a few plates of…[Read more]

Hi Ann and pete

Its not a bother at all.

so here goes,I had my Blast of Chemo a couple of Months prior to my harvest (my consultant sent wrong patiant??) But I went in one Monday Morning and was sent up to X Ray Dept to have my Femoral Line inserted (no pain no discomfort )

the Tues I was up early breakfast then a Transport car takes…[Read more]

Hi Sarah and Mum

A warm welcome to the forum, get comfy and ask away.

First I am ???? 57 and was told i had MM in Jan 2009 done the CTD (that made me go on sick) had the SCT in December 2009, was in Hospital 16 days but 5 of those were lost in sleep :-0
Now I cant give you advice on what yous Mum should do all I can say is that if I came…[Read more]

Hi Karen

I was on CTD had five cycles of it leading up to SCT in dec 2009.
When I was on CTD I had the cough(still got the bugger lol) and as for the wishy washy brain I was told its "Chemo Brain" and it will come back???? but I think I got Chemo brain then straight into Old age lol

Few of us on here have F/B think am here…[Read more]

Hi Jill and Mum
I hope the new treatment for your Mum works, I am not sure why they stop treatment ? when its known to cause problems??

Good Luck to you and your Mum in the road to remission.

Love Tom "Onwards and Upwards" xxxx

Hi Jean and Frank

Well I was on CTD and I was taking "Granisetron" twice a day evry seven days, I cant recall feeling Sick while going through MY CTD but was felt it after SCT and did for over a month so get the anti sick tabs for Yourself Frank when you get sent home.

I would check for a sickness bug ? lot of it going around, so get well…[Read more]

Morning Keith

I also hope the Bendamustine works for you with little or no side effects (as if :-S ) lets hope it kicks its butt and give you a long long remission.

Tom "Onwards and upwards" xx

Hi Liz and Kev

Am sorry to read you both are having a bad time with the Bloomin MM 🙁

And hey Liz a tear here and their is good for you trust me been done tee shirted an all, am sure it will only be a matter of time before they get a comination that will work.

Stay strong you two its the best way hard at times i know like all of us here…[Read more]

Morning Chris and Lena

Yes the ward was a comfort as much as we wanted to get out and home 😀 a strange strange feeling :-S but when home for that day and a bit it all falls into place.

I was like you Chris 5 (ish) days when I was a bit too bad not wanting the young bride (Elaine) to visit as I spent most of it asleep, the nurses used to…[Read more]

Hi Chris

Well a warm welcome home and long may it continue 😀

As for me I was a wee bit scared when I was at home at the start ie not having a proper nurse on call and if it will keep n keeping better it worked and still is so you my Friend enjoy that Cuddle its a good healer 😉

Love to you both
Tom "Onwards and upwards" xx

Hi Karen

And a warm welcome to you, you have had some great advise from the group and I hope it has helped?

As you have read some peopls have placed the MM rthingie in box's shoved it in a cupoard under the stairs I have placed mine on my left shoulder in a imaginery brick box (with Lid 😉 ) and leave it alone(as best i can) for as long…[Read more]

Wendy Lovely Post very moving, I aslo am sad that we lose so many in a year and wonder why I am still here and in comparative good health.
Many Thanks for the Link, stray well and strong

Love Tom "Onwards and upwards" xxx

Well Done Ali's Mum 😀 Thats great news Ali, and yes its a hard year or tow to getting back to near normal but as your Mum health and strenth improves thats when you will say "Well that was worth it" and I hope thats not too far away now 😎

The "Onwards and Upwards" is not mine to give 🙁 but its certanly yours and your Mums to take 8-)…[Read more]