tom replied to the topic Releasing stress in the forum Off topic 12 years, 1 month ago
Na then Mary and Charlie
Yep we all get it more than we care to let on to be fair 🙁 yep I went to have a bit of counceling 😀 wouls i advise people to go ?? too true i would, I didnt think I (a big hairy ass docker) but yep it was just one of the things i needed and if I felt the need i would go again 😎
Now let me see Scream hell yes…[Read more]
tom replied to the topic Hello everyone………….. in the forum General 12 years, 1 month ago
Hi Marian
Sorry for the Late reply.
Sory I cant help you with this as i have never done a trial nor been asked to do any research, Just wanted to welcome you to our little group and wish you well on your road to remission.
Tom "Onwards and upwards" xx
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Hi Chris
Looking Great My Friend 😀 its not started yet I dont think as and when you cant drink ask for the drip to be put back (I did) its bloomin hard to drink as much as you need and i found it better to use the line for mine for a day or two 😀 Just dont forget to unplug it before you get that need to dash to the loo ha ha I did many a…[Read more]
tom replied to the topic Swollen feet in the forum Side-effects 12 years, 1 month ago
Hi Jean and Frank
The CTD was not good for me it forced me on to the sick 🙁
Yes I had swollen feet and legs, Kids used to laugh when I showed them the ring around my sock top lol, Elaine got me new socks with no elastic in them real loos at top and that helped :-), the feet/legs will go down but my feet and fingers aint too good lol I still…[Read more]
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Morning Chris
Hope those stems flow in nice and easy and are kind to you during the grafting and growing, hope ur counts shoot up fast.
Tom "Onwards and Upwards" oh my SCT seems years annd years ago 😎
tom replied to the topic Low Blood Counts in the forum Treatment 12 years, 1 month ago
Ur welcome Keith 😀
I am pleased ur Doc is pleased with you and is keeping an eye on ur Platelets 😎
As you know I am spot on thanks
You Keep getting fitter and soon all will be sorted for you.
Tom "Onwards and Upwards" x
tom replied to the topic Any advise about organizing a fundraising event…. in the forum General 12 years, 1 month ago
Hi Kerry
Good Luck on that and I dont envy you doing it as am told its a lot of hard work that takes up any spare and unspare time that you have/dont have? i dont want to put you off by the way.
But we have had a few on here that are and have done things for Myeloma Uk and its worked and will for those that are still being done be a great…[Read more]
tom replied to the topic Recently diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mike
No problem re the reply time as and when thats what this group is all about 🙂
Yes My SCT went great (little uphill) and well worth it, would I do it again?? Too True I would now doing good and drug free, you my friend will be the same.
Good Luck
Tom "Onwards and Upwards"
tom replied to the topic REVVING UP FOR SCT! in the forum Treatment 12 years, 1 month ago
Hi Chris
Good Luck My Friend and hope its a smooth one.
Keep well and healthy
Tom "Onwards and Upwards"
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Hi Vicki and Colin
And a Lovely Looking Couple if you dont mind me sauing 😀
Am sure you will cope with the flurry lord you have been doing it for long enough now He he. I hope its a printing error but ad give them a ring to make sure its not this thursday I would hate you to miss the day after all this time, I used to love Krypton Factor so…[Read more]
tom replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago
Hey Kerry That my Girl Is Normal, I am the one with MM so am being looked after by my lovely wife Elaine (the young bride) I was told in Jan 2009 that I had Myeloma, done the CTD then the SCT (all good now) BUT Prior to my MM Elaine (the young bride) was told in Jan 2008 (yep one year prior to mine to the day near as) that she had breast cancer…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 12 years, 1 month ago
Wow are we seeing new photo's here 😀 all looking great.
Keep strong you all looks like winter is dragging itself closer for us 🙁
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Two hospitals in one day in the forum Treatment 12 years, 1 month ago
Hey Andy and Steph
Well you are avin to give this a good fight M8 🙁 but I know you can both do it 😀
Its an Uphill battle this MM when it runs smooth so I do feel for you two, I hope you get a good Match near home.
Keep strong you two
Tom "Onwards and Upwards" x
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 1 month ago
Hi Mary and Charlie
Am sure the Drug free will come to you two also mine was over two and a half years before I stopped taking them :-/ but well worth the journey 😀
Good luck for tomorrow 😎
Love Tom "Onwards and Upwards" xxxx and the odd glass of Vodka xxx;-)
tom replied to the topic We lost our dad. in the forum End of Life and Grief 12 years, 1 month ago
Hi Vicky
Your More than welcome and I hope you are all going through this as well as you can yes I still think about you all after your Loss.
Take Care and be strong.
Love Tom xxx
tom replied to the topic starting treatment in the forum Newcomers 12 years, 1 month ago
Hi Polly
Sorry you had to start treatment 🙁 but my advice would be "Take one Day at a time,rest when your body tells you, and more important use this site to ask complain and have that moan that I know you will have from time to time" but its well worth it.
Keep well and stay strong
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Low Blood Counts in the forum Treatment 12 years, 1 month ago
Way to go Keith, Keep well and stay strong 😎
Tom "Onwards and Upwards"
tom replied to the topic Myeloma XI Trial (MXI) in the forum Treatment 12 years, 1 month ago
Hi Amanda and Bob
Well I dint have any trails but I was on CTD in Feb 09 for 5 cycles (28 day) then SCT in December 09, now drug free and doing well 😎
Its all doable Amanda, but it has its bad bits am afraid but in the end it works out OK :-D, so four years this next Jan since I started my road to remission and that has been achieved 😎 and…[Read more]
tom replied to the topic live life in the forum End of Life and Grief 12 years, 1 month ago
Dear Ann
I am sorry to read about The loss of John in his hard fought battle with MM.
Love and Hugs to you and your Family at this sad Time
Tom xxx
tom replied to the topic So What Magic Happened Here? – Wedding Poem for Becky & Liz in the forum Off topic 12 years, 1 month ago
Dai Why oh Why do you seem to do it most of the time????? Yep I had a tear in one of my eyes you burgar 😎 its great dai and much too good to be spoilt by adding my name to it.
I Know you will be well for the big day and am sure every one will loove it.
Tom xx