And a Good Morning to you also Pat 😀

Do you know thats the way I think of it when I was having treatment, treatment all finished now but I tell everyone that I have built a little shed on my left shoulder and shoved the pesky MM in that and shoved a lid on it 😀 and yes I talk to it:-S and yes I tap the top of the Lid :-/ but hey ho it…[Read more]

Hey Tina Good Luck with it all and if I remember well Nightie is faster for lifting than jim jams are for lowering and I prefer the fastest way (not that I wear Nightie's though)
As Eve says During SCT its a throw away Culture you need to have, dont bother with Posh (bless)

Love Tom "Onwards and Upwards " xxx

Hey you two

Aint you BOTH done well you and your team have and are working wonders 😎

Great Post for the Newbie's and those that are having a rough ride, now all can see it CAN and WILL be sorted just takes longer for some ?
Onwards and Upwards now you two Great Post

Love and Hugs from Us Lappin's in Scunny "Onwards and upwards"…

Hi Joanne

Sorry your Dad was poorly but am pleased he is getting better and in his own home (you cant beat it) its all about rest and recuperation now for you and your dad (yep I bet you forgot about your self??)

Hope Velcade is started soon, and please no need to apologize for not being on for some time as this site is for when you have…[Read more]

Thats great news David and a well done to you and your team 😀

I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.

Am sure am due this month some time?? but hey ho am sure My Doc will be smiling 😀

And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week…[Read more]

Hi Mary and Charlie

Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all…[Read more]

Hi Mary and Charlie

I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.

Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM…[Read more]

Hey Tina

Well Girl now is the time 😀 and am sure you will look great wig or no wig (I never used one lol)

Wishing you a fast and trouble free Transplant.

Dont forget Tina The mouth wash please use it every time you pass or go to the loo and even when you think you might want to go to the loo, the more often you use it it am sure the…[Read more]

Hi Ann

Re swollen ankles yep I got those, numb toes well let me tell you I have in the past the most sensative toes ever, that bad i could not cut my onwn toe nails so my young bride used to cut them and had to sit on my legs so i didn't pull away Lol, but during CTD toes went numbe (still are) to me it feels like my socks have slipped down and…[Read more]

Hey Vicki and Colin

Am sure you will find the resolve to get that Moral breakthrough we all need at the time of treatment Clin is going through, I found it and am sure Colin will, As for the head/chins up if thats a wee bit hard at this time I would go with a head down and a good "Shoulder Charge" it works just as good I aslo had to use that…[Read more]

am on that same stage as you Ali letting the two of them knmow i also am thinking about them 🙂

Love that Onwards Man Lol xxxxx

Hi Pia

And a warm welcome to the site, sorry to hear about your Mum am sorry I cant help with the treatment as all I have had was CTD then SCT.

Just wanted to wish your Mum well in her road to remission.

Love
Tom "Onwards and Upwards" xx

your more than Welcome its a hard time for anyone thats told they have MM and worst for those that are on the the sidelines watching Us MM'ers going through what needs to be done to get into Remission 😎 its a dooable but its uphill am afraid, but you now know where we all are 😎
Ask away and if you feel like a rant well tis is the place 8-)…[Read more]

Hi Nicola and Dad

I am fortunate enough to have No bone damage but I was having Zometa infusions every four weeks 😀
As for the exhaustion I suffer that and am not on treatment so I put it down to having MM and change my life style.

Give your Dad a big Hug from me and tell him to rest and not fight the tiredness sleap when his body tells…[Read more]

Hi Alan
And a warm welcome to you, as for the "Twitter" I am on it and as for Face Book am also like a few more on her On it 🙂 so go on Alan you have got this far Ha ha.

I am on No treatment now 🙂 but I got a Rash after My SCT that was soon sorted, but I suffer bad skin prior to MM and used E45 and had to rush up stairs and wash it off as…[Read more]

Hi Nicola and Dad ?

Welcome to you Both, and it will get better I was on CTD in 2009 then SCT dec 09 now am drug free and doing Good, I want be as fit and as well as i was Prior to getting MM but its good enough for the moment (I am now 57 years young) still working and blessed that my company have gave me a light duty job and am still on it…[Read more]

Hi Ian
And a welcome from me, and Lurk and ask anything you feel you need to, pull up the chair and get comfy.

Tom "Onwards and Upwards"

Aww Andy and Steph you two are Nawty telling us all how Hot it is and how cold the bears are 😀 Its been Persistant here in Sunny (thats a laugh) for a few days and no hope of a let up. Why oh Why dint we go with you Lol.

Have a great time and dont worry you will soon be home Lol

One Cold "Onwards and Upwards" Tom xx

Hi Mari

Well av done that stage also he he it aint good ? but trust me you can get a few laughs out of it when Steve is better, Pleased the rash is calmer (thats a bugger) Steve if like me will get to the stage where he wont care if he gets anyone to visit as he (I did) will sleep most of the time.

Tell Steve to try and eat a little bit as…[Read more]

Hi all

Am sure you jave no rush to be using it David Lol but the postcard bit those that cant attend could send a postcard that is stuck on and you can read it at the other sided (pearly Gate End) 😎

Now this rent thing I just might google that tonight 😛

Tom (not ready Yet) "Onwards and Upwards" x