tom replied to the topic Nearing the End? in the forum End of Life and Grief 12 years, 3 months ago
Hey Gill
Denial is Ok but am pleased the 14 specialist are not in denial and are on it, but what did they say??
As for the temper thing I also am like Stephen I genually dont have one BUT have told The Young Bride (Elaine) that as and if it comes to me losing the plot so to speak I certanly dont mean what I say.
I also cant give you that…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 4 months ago
Dai what is it with you and week ends? Bless it always happens at w/ends.
Hope it soon settles before the 5pm mark? and that aint long now??
Good Luck Dai
Tom "Onwards and upwards" x
tom replied to the topic charity night in the forum General 12 years, 4 months ago
Hi Nicola
Good Luck for your Charity Event am not sure if I am Local as I dont know where it is going to happen??
Love
Tom xxx
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 4 months ago
Hi Carol
Am Pleased that on both things 1) you are doing great after your SCT and 2) you know that you cant do as much as you used to, and i think that is the hardest thing "the not being able to"?.
And Happy New Hair Brush 😎
Stay fit and well Carol.
Love
Tom"Onwards and Upwards" xxx
tom replied to the topic 2 Months past SCT in the forum General 12 years, 4 months ago
Hi Eve and Slim
Am pleased to read Slim is getting better, and trust me you never stop the worry when you have been told you have MM Eve its something that we all have to cope with these days.
Slim will be better when the line is removed less to get infected so thats good 😎
Hope Slim is up to going on the train to London as it will make…[Read more]
tom replied to the topic My Mums SCT in the forum Treatment 12 years, 4 months ago
Hi Ali
Good Luck to your Mum on the road to Remission, its a hard rough ride but one that is well worth it.
Advice?? well I think Helen has covered a lot of it and I say take the Mouth wash every time your Mum nips to the loo or just feels like she has nothing to do the more mouthwash used the less problems (it was for me anyways) and the…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 4 months ago
Hi Charlie
I think you know I was on CDT then the SCT I had in Dec 09 and its some time down the road and I am now Drug free so trust me Charlie the trip is worth it its hard its long but its worth it stick with it and no sooner said than done.
Re the "Hick Ups" our Land Lady at our pub sorts all of those out by "Getting you to fill your…[Read more]
tom replied to the topic Kappa Light Chains on the Up in the forum General 12 years, 4 months ago
Hi Wendy
Well your Nurse is correct, I am told that the tests over a period of time go up/down (no wonder am confused) but your Nurse is wrong in saying "tests were expensive and cant be too frequent when not on treatment." well am sure if it needs treatment the sooner the better.
I would get in touch with the Top Man and ask if you can have…[Read more]
tom replied to the topic Second opinion in the forum General 12 years, 4 months ago
Hi Andy
Well Done M8 and am sure that Tuesday will soon be here (I hate waiting)
And never worry about it yet excited is better 😎
fingers crossed for you
Tom "Onwards and Upwards" x
tom replied to the topic Lost in the forum End of Life and Grief 12 years, 4 months ago
Dear Teresa and Judy
I am so sorry to read you have both lost your loved ones to this dreaded MM. I send my Love and Cyber Hugs to you both at this very sad time.
Love and Loads of Hugs
Tom xxxx
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 4 months ago
Aww bloomin Ummm… on your behalf Dai, Bless I bet you both have got your heads spinning am I aint I Ummm… again.
Its strange though the more folk you talk to (even none MM folks) seem to get ill during the night/w,end whn its harder to contact the People we need:-S
Am pleased it is the best you have felt for a few weeks Dai lets hope that…[Read more]
tom replied to the topic Proper Fed Up Mark III in the forum Side-effects 12 years, 4 months ago
Hi Dai
Well am sorry to read about your still not "Just Right" and being Just not right is wearing and a bloomin nuisance to say the least.
I hope you are soon sorted and dont forget you can collect the "Stool Sample" at home 😀 , and you can cough in here all you want my Friend to clear your chest 😎
Hope you are soon proper better :-D…[Read more]
tom replied to the topic My first Stem Cell Collection Tomorrow! in the forum Treatment 12 years, 4 months ago
Hi Chris
Sorry to read the injections didn't throw enough of those pesky cells out into the blood stream 🙁 Lets hope you get the pesky devils out in morning 🙂
Tom "Onwards and Upwards"
tom replied to the topic Bit of good news in the forum Off topic 12 years, 4 months ago
and Congratulations to you Dai,Janet and you Son and Daughter In Law on your forthcoming Grandchild.
From Old Father time Lol xx
tom replied to the topic 2 Months past SCT in the forum General 12 years, 4 months ago
Hi Eve and Slim
Great to hear you are turning the corner Slim 😀
I had things that felt like MM but was told all clear its just an old/new ache so I got on with it but still nip off to Doc's when I feel different 😀
Have a great Time looking and Booking your Holls.
Love Tom "Onwards and Upwards" xxx
tom replied to the topic Bit of good news in the forum Off topic 12 years, 4 months ago
Hi Jean
Congratulations all round thats great news, its better when you are nearer and can watch the baby grow. soon to be Five Grandchildren you will soon be catching My Young Bride and I up in the grandkids stake lol.
Give my best to your youngest and his partner/wife. dont forget to take plenty of photo's as the baby grows prior to birth…[Read more]
tom replied to the topic Just Diagnosed in the forum Newcomers 12 years, 4 months ago
Hi all
Andy I had someone from dhss help me fill mine in at Castle Hill Hospital and i wernt too good at that point but still dint get any and now I am fit(ish) cant see me geting anything now??.
Tom "Onwards and upwards" xx
tom replied to the topic My first Stem Cell Collection Tomorrow! in the forum Treatment 12 years, 4 months ago
Morning Chris
I am pleased you have been doing Good with your CDT I also did good with that apart from being tired and having to go on sick?
Good Luck with your Harvest and if you do same as I it will all be over in one day 😎
Tom"Onwards and Upwards" x
tom replied to the topic Colin the sequel SCT in the forum Treatment 12 years, 4 months ago
Morning Vicki and Colin
I hope you both slept well? Four Injections per day sounds good enough.
Hope all goes well stay strong.
Love to you both
Tom "Onwards and Upwards" xxxx
tom replied to the topic Colin the sequel SCT in the forum Treatment 12 years, 4 months ago
Hi Vicki and Colin
Sorry its still not worked out and I do feel for you and Colin, we all want it to happen yesterday when we try and Mobilize the cells and not drag on longer 🙁
When I had my GCSF's I had two injections every morning is Colin having two injections or just the one??
Sending Love and Hugs for you both.
Love
Tom…[Read more]