Kazzam2 replied to the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 3 months ago
Thanks Tony,
I will say hi if I see her, never seem to get the same consultant twice in a row nowadays. Although I heard from Dr Garg recently, (emails) regarding holidays. She gave thumbs up as I am in remission! ;-).
Regards
Karen H
x
Kazzam2 started the topic Bloods for 3 monthly clinic, what if???? in the forum General 10 years, 3 months ago
Hi all,
just been for my bloods prior to my 3 month check and Zometta on Thursday, just to share the feeling of dread and what if’s. Yesterday was 19th months since SCT, I am well (apart from ongoing back pain, and a sore on back that won’t heal), but knowing how quickly thisawful thing can change can get one down sometimes!
So now I have said my…[Read more]
tom replied to the topic Tom? in the forum Off topic 10 years, 3 months ago
Hi David and all you others.
Yep am still here lol, and I wasnt an SCN ha ha.
Hope your doing good David as we are at this sunny end 🙂 yes as Jean says bloods taken last Friday and results today:-)
Bit of an update on me seen as am on the forum.
Myeloma came back December last year (i got four years remission from SCT #1) was put on Velcade…[Read more]
Kazzam2 replied to the topic Baby Injections. in the forum Off topic 10 years, 4 months ago
Hi again Tony, I am on the trial too, and go up to the Hope clinic, I agree it is much better, and seem to get seen to much quicker! One day we may bump into each other again. I know what you mean about getting tired. Keep well.
Karen x
Kazzam2 replied to the topic Baby Injections. in the forum Off topic 10 years, 4 months ago
ps, sorry I typed in the tag box, hope I have no mucked up your thread! K x
Kazzam2 replied to the topic Baby Injections. in the forum Off topic 10 years, 4 months ago
Hi Tony, I am 19 months post SCT, I had my last baby injections at begining of July, and I am on 3 monthly clinic visits, mine is 14th August. So we are pretty much the same stage. I still have morphine for back, and 6 weekly Zometta. But I drove for the first time since diagnosis the other day! There are more positives than negatives post SCT…[Read more]
Kazzam2 and 
kp are now friends 10 years, 4 months ago
Kazzam2 and 
dickb are now friends 10 years, 4 months ago
Kazzam2 replied to the topic High Myeloma Incidence in the forum Off topic 10 years, 4 months ago
Hi All, not been on for a while and have only just stumbled on this. Very interesting! I live in Oakham, 9 miles (ish) from Melton Mowbray. We live a 2 minute walk from a plastic engineering factory. Twenty years ago I worked for 5 years (North West of England) for Nuclear Electric, catering for workers, labs etc. So I could take my pick from a…[Read more]
davefletcher and Kazzam2 are now friends 10 years, 4 months ago
Hi Karen, thanks for your welcome to the site it really helps reading other stories. Its a bit daunting I am smouldering at the minute I have had steroids for pain in my legs .I had a second bone marrow biopsy and was told that 60% of my marrow was effected anemia levels are down to 11.2 they have told me to expect treatment within the next 6…[Read more]
davefletcher and 
andyg are now friends 10 years, 4 months ago
davefletcher posted an update 10 years, 4 months ago
Hi All
I am new to this forum just trying to get my head around forum and myeloma , Reading all your posts. so much to learn and take in as every case is different.
davefletcher and 
tonyf are now friends 10 years, 4 months ago
davefletcher and kp are now friends 10 years, 4 months ago
davefletcher posted an update 10 years, 4 months ago
hi I have recently being diagnosed with myeloma, I have had steroids for bone pain in my legs and arms, but doctor was not sure if the pain was due to myeloma I get tired a lot more than I used to and have had a couple of chest infections, I had a mri scan on my legs that came back clear, just had a blood test and my anemia was low again. just…[Read more]
tom replied to the topic multiple myeloma relapsed – treat with Velcade need your advise in the forum Treatment 10 years, 4 months ago
Hi Marge
well I have been on the Velcad for 5 months now, it stopped working on month three so i have had Cyclophosamide to the mix side effects ?? am tired and weary more so as the other one was added,apart from that Not much else as yet, to be fair its ben kind to me 🙂
Good Luck with it
Tom Onwards and Upwards xx
tom replied to the topic Stem cell transplant booked for Wednesday 9th July 2014 in the forum Treatment 10 years, 4 months ago
Hi Deborah
I had mine in 2009, got four years out of it and that was great, yes I was bloomin cold in the room should have taken my throw in 🙂
Mouth wash now I used bottles of it every time i went to the loo, walked past it thought about the loo I mouth washed (they will give you more lol) , cant emphasise enough to use moth wash as often as…[Read more]
tom replied to the topic My Stem Cell Transplant Journey in the forum Treatment 10 years, 6 months ago
Hi Keith
Well done you 🙂 and you can be forgiven about memory loss after what you have gone through
Stay well my fiend its all Onwards and Upwards now
Tom Onwards and Upwards x
tom replied to the topic Worried about Dad in the forum Treatment 10 years, 6 months ago
Hi Clover
well I think its all ben covered by the great posts above.
Its a roller coaster of a ride for your Dad am sorry to say but he will get through it, you all will, you dont say how old your Dad is ? nor how old you are ?
Good Luck to your Dad on his road to remission.
Tom Onwards and Upwards xx
tom replied to the topic Graham is in full remission in the forum Treatment 10 years, 6 months ago
Congratulations to you Both am well chuffed for you both.
its what we all aim for,I hope Graham is now drug free for many a years its a great feeling I had four years drug free remission, we went and done what we wanted to do with no restrictions.
Get out their now and enjoy Life, once again well done and have a great time.
Love Tom Onwards and…[Read more]
