[andygParticipant]

Hi Teresa
No not in the lake district till the end of next month. I've not been posting but I have been reading. I've been up and down with my moods – I'm blaming the dex effect. I've had my blood tests again today potassium is low again but everything else was ok. Dreading the result of my PP levels and the bone marrow test. It's about time I got some good news.
Hope you are well.

Love Andy xx

[andygParticipant]

Hi Keith.
Hopefully it's just a blip and not a relapse. My last PP reading was 41! I've never been below 36 🙁 I too have the dreaded BMB Tuesday might see you at the day unit. Hopefully we'll both get some good news.

Take care.
Andy

[andygParticipant]

Hiya everyone.
Went for my regular blood test on Friday and everything was ok again – oh except my potassium was low. So I've had to take some extra tablets to boost my potassium – I'm also eating bananas. I finish my second cycle of rev/dex on Saturday and have been given an appointment for my zometa infusion and a bone marrow test next Tuesday. Hopefully the pain of the bone marrow test will be compensated by some good news in the results. Fingers crossed.
I've been feeling ok since my stay in hospital with a high temperature just had the usual dex ups and downs – started my last 4 day course today. I wonder if I'll sleep tonight?
Anyway that's my latest news for now.
I'll probably get a bit anxious nearer bone marrow test results time :-/
Till then lets all stay positive and fight MM into submission 🙂
Take care all
Andy x

[andygParticipant]

Hi Eve and Slim.
I hope everything goes well for you both this week and Sunday is the start of good times for you both. Keep us posted.

Best wishes
Andy x

[andygParticipant]

Hi Dai.
You sound like you went through a similar experience as I did a couple of weeks ago – though my temperature topped out at 38.9 Glad your on the mend now.

Take care
Andy

[andygParticipant]

Hi Vicki.
A warm welcome to the forum. I have MM myself diagnosed October last year. There's not much I can add that hasn't been said already. Just remember everyone's journey through MM is different. Treatments vary some get bad side effects some get very few side effect etc etc. but whichever way the journey takes Colin keep the us informed and you can be sure any question or doubts you have will get an answer. We are a friendly and supportive bunch 😉

Take care
Andy x

[andygParticipant]

Hi Gail.
Welcome to the forum. I was diagnosed with MM October 2011 – 3 days before my wedding so my wife has been a carer since we married. Not a nice start to married life! I think it can be easier for the suffer than the carer at times.
Feel free to ask ANY questions on here come along for a moan a shout a scream! You'll always find an ear or two and lots of support.

Take care
Andy xx

[andygParticipant]

Hi Rosie.
Welcome at last to the forum. I was diagnosed October 2011 so you've been on the MM journey a lot longer than me. I haven't had a sct yet as the medics are struggling to get my paraproteins down. I have been told sct can be quite difficult for some but not having been through it myself I can't offer an opinion on whether going for a second is worth the side effects. There are others on here who have been through 2 sct's who will be better placed to guide you. Good luck with whatever you decide and keep us posted.

Take care
Andy

[andygParticipant]

Hi Teresa
My sleep patern is all over the place some nights I sleep right through and others it takes a bit to drift off. I'm back on my dex for the next 4 days so I'll be needing my iPhone fully charged.
On the beer front I prefer the double brewed beers though the triples are good too. My wife Steph enjoys the fruit beers though she's a red wine drinker mainly.
As I told Helen I'll try and find a with hair photo to put online though it'll be a very young me 😉
When we go to the lake district we stay at Bowness on Windermere it's not too far from where we live an approx 2 hour drive cross country. We live near the north/east coast in a town called Billingham.
Enjoy your trip to the brew pub and have a great time – I know I would.

Love Andy xx

[andygParticipant]

Hi Helen
My hair "style" has been the same for a long time 🙁 My brother and I used to be called Phil and Grant when we went out together! Aka the Mitchell brothers 😉 I can't remember the last time I paid to have my hair styled. I started to lose it in my early 20's. I'll look around for a picture of me with hair. It'll take some uploading as it'll be from well before digital photos probably pre computers lol.

Love Andy

[andygParticipant]

Hi Teresa.
I'm feeling good now thanks. Just got in from a night out with my wife, brother and sister inlaw. I had a few beers, probably the most I've drunk since I was diagnosed.
I'm not going to comment on hair colour or style since I don't have either lol and that was before chemotherapy took its toll on me.
My wife and I have a few days away planned for next month, we are going to the lake district for a few days – don't know if you know the area – but it's a lovely place. Hopefully it'll of stopped raining by then and warmed up a bit.
When you visit the brew pub check out the Belgian beers I know you don't drink them but Belgian beers should be appreciated 😉
Oops just seen the time 2am guess I should get some sleep. We've got a christening to go to later.

Night night Teresa thinking of you and Peter.

Love Andy xx

[andygParticipant]

Hi Carol.
I'm on DEX time 😉 and also on facebook. So I've spent some time sending out friend requests. I'm on as Andrew Godfrey – same photo I think. So if anyone gets a strange friend request it could be me 😉

Take care all
Andy x

[andygParticipant]

Hi Lexi.
I have multiple myeloma and my paraprotein level was 41 at last test! I started at 50 in oct 2011 and my paraproteins have proved a challenge to my medical team and I. The main thing to remember is everyone has a different journey and reacts differently to treatment. The target for me is to get below 10 and have a stem cell transplant but that seems a long way off for me at the moment – with others they get there quite quickly. Like you'll be told over and over everyone's journey is different.
Oh sorry forgot to welcome you to the forum 😉 it is very supportive, infomative and friendly.

Take care
Andy x

[andygParticipant]

Hi Tina.
A warm welcome to the world of DEX. I've had my 4th round of DEX for my 2nd cycle of rev/dex therapy. It's 3:30am and I'm wide awake! I know I'll be sleepy all afternoon but as Tom says its worth tfe side effects for the good it does. I get chubby rosey cheeks too.

Take care
Andy xx

[andygParticipant]

Hi Teresa
CDT is usually the first line treatment of MM – well it was for me – and is cyclophosphamide, dexamethasone and thalidomide.
Hope your coping ok.

Love Andy xx

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