Hi all and Happy New Year! Glad everyone is keeping okay. That’s great Dawn, a good response so long may that continue! Ten cycles seem a lot Ian, good that you are coping with it. How long can you stay on that? Nice for you to be treatment free Peter and good that the paraproteins are not causing any trouble. My paraproteins 2 months ago were…[Read more]

Hi Dawn, so pleased to hear that you are doing so well, I was very sick too but did have nasogastric feeding which made me put on weight! The most scary think was trying not to be sick with it in! It took a long time before I could eat ice cream again. I found Diflan was the best mouth rinse and still use it occasionally. It took me a long time…[Read more]

Dear Vicki

So sorry to hear the sad news, thinking of you Andrea xxxxxx

Hi All

Dawn, I hope you managed to complete your stem cell harvest. I deferred my transplant till after my sons wedding after my harvest which I am very grateful for. At my last appointments my pp was 11.7 and 10.2. It was 12.8 before transplant so doesn’t seemed to have budged much! I seem to be around the same level as you Peter. My white cell…[Read more]

Hi Peter, Ian, Dawn, Polly and all

Peter, well done! So glad that the SCT has gone smoothly for you. Just take care of yourself now and hopefully you won’t get any complications. Remember to listen to your body and rest when you need to.

Sorry I haven’t been on here for a while. I have been to hospital twice recently. The first time I was…[Read more]

Hi Peter, Ian, Dawn and all,

I am now 4 months post SCT doing well and feeling alot stronger. Only problem I have is ongoing carpel tunnel syndrome which is annoying, also quite achey in general but I am trying to improve my fitness level which helps. My paraprotein last time was 11.7 and before that was 10.7 so it seems to be stable. I have put…[Read more]

That’s great news, hope all goes smoothly for you both now. Andrea xx

Hi Maureen and Ian

Good luck,I hope all goes well for you. It’s not easy going through SCT but I found the fantastic staff and support from family and friends made it easier. It’s 11 weeks since my transplant and thankfully I am doing well.

Best wishes

Andrea xx

Hi Peter, Ian, Dawn and all

Glad you are coping well and that you are getting a good response Dawn. Keep at it and look after yourself and take it easy. Hopefully we will get some nice summer weather which helps!

I don’t think everyone has a cytogenetic test but I had asked because I was interested! As for decimal places I have always been…[Read more]

Hi Ian,

Thanks for your kind message, I was very happy at yesterday’s clinic appointment to be told that that my paraprotein had dropped from 12.1 to 10.6 so my consultant was pleased with that. She said it may not drop much below 10 but it is more important that it stays down. I looked at the Mayo Clinics sMART classification and that was…[Read more]

Hi Peter, Ian and Dawn

I am now 6 weeks post SCT and starting to feel alot better. If I go back to bed after breakfast and doing the essential household chores I read my book and then get up about 12 pm, go for a walk and then I am fine for the rest of the day. My youngest daughter is revising for her GCSE’s so it is lovely to have time home with…[Read more]

Hi Maureen

Sorry to hear that Ian’s SCT is delayed. Hopefully the hospital dentist can sort out the dental work quickly. It must be worrying for you but as I keep telling myself – one day at a time!

Hope all goes well

Andrea xx

Hi Dawn

Sorry you have had to start treatment but glad to hear you have got through the first cycle! I had CDT and it did take a while longer before the full effects kicked in with me and I had to give up work and driving etc. You will know you feel and adjust to give yourself the best chance of the treatment working. Good luck and hopefully you…[Read more]

Hi All

I am happy to say that my first clinic visit went well and bloods were fine. Thanks Peter and Matt for your kind messages. Thanks for the advice Graeme, since coming home I have hardly been able to do anything as it’s so much effort! It was quite a challenge to get ready and go to clinic and I certainly won’t be going out for a while…[Read more]

Hi All

Thank you for all your kind messages and support. I am actually home now, earlier than expected! I did take all the advice given here and it certainly helped. I think I have been extremely lucky so far. I had the expected side effects from the Melphalan, mainly sickness and a slight sore throat but apart from that I am fine! The care I…[Read more]

Thanks Vicki and Colin. I have a double room and bathroom to myself, wifi sorted and central line put in. All good so far!

Best wishes
Andrea

Thanks Michele and Suzi, I feel alot better with these tips! All I have to do is ring tomorrow morning to check there is a bed available!

Best wishes

Andrea

Thanks Rebecca, I have bought a nice fleece blanket and also a fluffy warm bed jacket. My daughter is going to make a countdown calender I like that idea! I have lots of books so hope I will be up to reading. That’s really good you are enjoying your remission,long may that continue!

Best wishes

Andrea