ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 1 month ago
Yes I agree! It is all very complicated but I think I know quite a lot now and know which scary websites to avoid!
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 1 month ago
Hi All
I was quite surprised today at clinic that my pp has fallen from 37.1 to 34.5. Is it common to fluctuate like this? The downside was that my hb is falling each time and is now 10.3. I am still being kept on 4 weekly follow up.
Andrea x
ange replied to the topic RE: Newcomer… in the forum Newcomers 12 years, 2 months ago
Hi Jennifer
I understand completely how you feel. I am also 51 and just been diagnosed with SMM and will have 4 weekly blood tests to monitor the paraprotein. Mine is around 37 now but luckily I have no symptoms yet. If you are unsure about whether the monotoring is enough I would ask the consultant or nurse at the clinic.
I wish you both…[Read more]
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Jenny
Thank you for your message and kind invitation. I would love to come to one of your meetings soon. It would be great to meet up with local people.
Many thanks
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Ali
Thank you for your lovely message. It's good there are so many people here to share experiences.
love
Andea xx
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Carol
Nice to meet you too. Thank you for your kind message. This whole journey is going to be alot easier with other people to talk to here.
With best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Vicki
Thank you for your kind message and good luck to you and Colin with the stem cell transplant.
Best wishes
Andrea x
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Ted
Excellent news, glad all okay for you and hope the x-ray is alright too.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Ted
That is encouraging to know, good luck with your appointment and thank you for the information.
All the best
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Mavis
Thank you for your message, it is a strange thing to get my head around but yes, hopefully I won't need treatment too soon.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Ozzy
Nice to hear from someone in South Wales! Yes, I go to the Royal Gwent Hospital. Glad to hear you are doing so well! Thank you for your kind message.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Jean
Thank you for your message, I can see that everyone here is so kind and helpful which is very reassuring. Wishing you and your husband all the best.
Love
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Kevin
Sorry to hear you were diagnosed too. Good luck with your treatment. For me it is a waiting game until I need treatment and I have no idea how long that will be! On the positive side I have some time to prepare and am thankful I was diagnosed so quickly.
All the best
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Tom
Thank you for your kind message, I am from Newport, South Wales and go to RGH so would be interested if anyone else is from this area.
Best wishes
Andrea
ange replied to the topic Diagnosed this week in the forum Newcomers 12 years, 2 months ago
Hi Eva
Thank you for your kind message. It is helpful to know that I can contact you and great to hear how well you are doing.
With best wishes
Ange
ange started the topic Diagnosed this week. in the forum Newcomers 12 years, 2 months ago
Hi, I am 51 years old and was diagnosed with asymptomatic myeloma this week after abnormal blood tests for an unrelated GP visit. My paraprotein level is 37.1 and my bone marrrow biopsy showed 12% plasma cells, skeletal survey was fine. I will be having 4 weekly blood tests and clinic appts and was told that I will be started on chemotherapy when…[Read more]