keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Thank you Bridget,
I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]
keznmel replied to the topic Scared…everything is happening! in the forum Newcomers 12 years, 9 months ago
Hi Mavis…Sorry for late reply.
Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]
keznmel started the topic Scared…everything is happening!. in the forum Newcomers 12 years, 9 months ago
Hi there…
My name is Kerry and I'm 36 years old. My partner of 16 years, Melvin was diagnosed with Multiple Myeloma in December 2012. In December 2010 he had a plasmacytoma of the l4 vertabrae. He is currently in hospital with pathological fractures to the ribs and a blood clot on the lung and is in terrible pain. We are waiting to hear what…[Read more]
ozzy replied to the topic Is there anyone here from South Wales/poss link between prostate cancer & MM? in the forum Treatment 12 years, 10 months ago
Hadn't heard about this link before but had read somewhere that people who worked with chemicals such as farmers MM was quite common. I worked in a plating factory and worked with many acids and other chemicals such as cadmium so I often wonder if this is how I ended up with this dreaded disease.
ozzy replied to the topic Another new kid in the forum Newcomers 12 years, 10 months ago
I was diagnosed in January 2010, had 6 months CDT and my pp level went from 42 down to 5. I had a stem cell transplant in January 2011 a year almost today. I was working until I had a blip in my treatment in the June 2010, spent 3 weeks in ITU and didn't return back to work June 2011 5 months after transplant. It was my goal to get back to work…[Read more]
ozzy replied to the topic Alternative to Aredia? in the forum Treatment 13 years, 2 months ago
I take sodium clodranate "Bonefos" 2 tablets twice daily as I am unable to have monthly transfusion due to my gums.
I do not have any problems with these and have been taking these for 18 months.
Good luck
ozzy replied to the topic Work – when is it enough? in the forum General 13 years, 2 months ago
I had stem cell transplant in Jan 11 and returned to work 1st June. I find I am very tired even though I am still on reduced hours. I think there has to be a happy medium and I am seriously considering going part-time if the work can accommodate me. I am 57 now and feel too young to retire and I like the banter at work and can forget about cancer…[Read more]
ozzy started the topic achy legs. in the forum Newcomers 13 years, 3 months ago
Hiya all
I had a stem cell transplant in January 2011 and returned back to work part time in June. The only meds I am taking now is Bonefos and Septrin 2 tabs x 2 twice weekly. I feel well but tired in the pm especially after work but I do suffer from aching legs especially at the thighs, groin & thigh. Does anyone else suffer with this. I have…[Read more]
ozzy replied to the topic Hello New Arrival To MM Club in the forum Newcomers 13 years, 8 months ago
I'm 57 diagnosed jan10 when I was 56.No symptoms whatsover and problem found in an annual routine blood test in Nov 2009. My pp level was 22 at diagnosis and I started CTD treatment in May 2010 when the level reached 42. I had 6 courses of treatment and had a sct in Jan this year. My level is now 4.I have a son 25 & a daughter 20 who took the…[Read more]
ozzy replied to the topic How long for normality after SCT in the forum Newcomers 13 years, 8 months ago
Hiya Gill
Hope to hear good news next time. Good luck to Stephen for his second SCT.
ozzy replied to the topic How long for normality after SCT in the forum Newcomers 13 years, 8 months ago
Thanks for replying so hopefully in a few weeks time perhaps I'll be released for good behaviour and allowed back to the pub!
ozzy replied to the topic How long for normality after SCT in the forum Newcomers 13 years, 8 months ago
Hiya thanks for replying.
I know when I get the ok I can return to work on a phased return I never thought I would be looking forward to work!I can't wait for a holiday either I feel that I've been serving a prison sentance stuck in the house.
Regards Ozzy
ozzy started the topic How long for normality after SCT. in the forum Newcomers 13 years, 8 months ago
Hello all my name is Paul-Ozzy to my friends and I was diagnosed with MM in Jan 2010.I started CTD in May had a hicup in June with PCP Pneumonia 2 weeks on a ventalor and thank god I am still here to tell the tale!Completed the 6 courses and harvested stem cells in Nov and had my 1st SCT on Jan 14th this year. What I would like to know is how long…[Read more]