Myeloma Forum | Andrea | Friends Activity https://forum.myeloma.org.uk/members/ange/activity/friends/ Activity feed for Andrea's friends. Wed, 15 Apr 2026 05:03:42 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 906ed986ad195877881d05e150c7b62a pauloram replied to the topic SLIM in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/slim-my-soul/page/2/#post-117861 Sun, 31 Aug 2014 11:49:47 +0100 Dear Eve
So sorry hearing this news Slim put up a valiant fight. Our thoughts are with you and please take care of yourself.
Paul & Gayle xxxx

]]> d0541cea28a88149e81c9f9e58e1c4c7 pauloram replied to the topic Lenalidomide & Maintenance in the forum Related conditions http://www.myeloma.org.uk/forums/topic/lenalidomide-maintenance/#post-117859 Sun, 31 Aug 2014 11:23:35 +0100 Hi
Pauls been on maintenance Rev this is his second month, He is on 15 mg daily 21 days and 7 days off. He is taking it along with soluble aspirin for the blood clots. So far hes ok. Hes had 6 courses of CRD feb – July of 25 mg so his system was used to it. He hasn’t had any problems so far except very dry skin. He will be on it as long as his…[Read more]

]]> 37d1b78e2882e25a38d0b1601afd118b pauloram replied to the topic Partial Remission in the forum General http://www.myeloma.org.uk/forums/topic/partial-remission-2/#post-112791 Tue, 11 Feb 2014 11:28:15 +0000 Hi Stephen
No-one has the same response to treatment as others so I just go with the flow. My pps went up to 49 when I originally had CRT and then when I had my SCT and my pps stayed at 5 and never zero. That lasted 18 months and then went on velcade last Jan 2013 3 cycles and my pp went down to 7 from 48. That lasted 6 months before rising…[Read more]

]]> b0795432b2b0088e739fe2bda96d4e82 Kerry Dowell replied to the topic Salford Triathlon Sunday 18th August in the forum Off topic http://www.myeloma.org.uk/forums/topic/salford-triathlon-sunday-18th-august/#post-52248 Wed, 21 Aug 2013 15:34:35 +0100 TEST

]]> 87c873159cb995967a79786c69e03c6e pauloram replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102476 Sun, 19 May 2013 23:51:23 +0100 Hi Sarah & Scott
It is a good place for info isn't it? I too am in a delicate situation.I relapsed in Jan had Velcade & dex till April but suffered so much with pn that they stopped it and had one course of rev & dex.My pps went from 49 to 5 so on 7th May went into hospital for the chemo priming for second sct. Had 8 gcsf injections but on Sun…[Read more]

]]> 30fa27678d8c3e2f54be80422012d4b1 SarahWitherspoon replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102469 Thu, 09 May 2013 14:30:22 +0100 Thanks Vicki
I was warned it could fail – didn't realise it could fail twice! I now everything crossed for June. I know my CD34 was 3 and they could only do transplant when it was 8-10, so I was way off. Shame they can't do a test before you have to go through priming chemo/injections.

The funniest thing was it wasn't my head hair that I…[Read more]

]]> 2f03c55e87fe4ee43f8006d47f55f92b SarahWitherspoon replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102470 Thu, 09 May 2013 14:23:26 +0100 Thanks Tom, will also save me lots of money on haircuts/shampoos etc 🙂
Although I am now spending money on scarves and hats – and suncream for my head – a new novelty
xx

]]> e9e82f4a2c5e35a053a58b6c4d78c081 SarahWitherspoon replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102471 Thu, 09 May 2013 14:20:52 +0100 rebeccaR

Harvesting for a rainy day sounds like a good idea, if I'd known I could of done that I would of. I was on Cyclophosphomide through my cycles – I was always told hair may stay/thin/fall out, but it stayed. I think the priming CYC is 4 times stronger which is why mine fell out over a few weeks, I also pulled/brushed it out, ironically I…[Read more]

]]> a560615917fd35c443a285c90de8e2a3 SarahWitherspoon replied to the topic Second attempt at Stem Cell Harvest in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest#post-102465 Thu, 09 May 2013 14:09:21 +0100 Thanks Ange, sorry things are progressing – but at least you are being closely monitored. xx

]]> 6468c2c578d3796d39f41ac01b03c35a pauloram replied to the topic Keith Hindmarch in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/keith-hindmarch1367593561#post-108241 Sat, 04 May 2013 15:55:23 +0100 Dear Sue
Our thoughts are with you at this sad time, you have wonderful memories of the good times, Keith will be sadly missed.
You take care of yourself
Paul & Gayle x

]]> fa063c2d8d4d4bb0e5a8baa5d7e5a7cf SarahWitherspoon started the topic Second attempt at Stem Cell Harvest. in the forum Treatment http://www.myeloma.org.uk/forums/topic/second-attempt-at-stem-cell-harvest Fri, 03 May 2013 15:14:19 +0100 Been off line for a while, trying to 'have a break and enjoy myself' as my nurse told me.

After 5 cycles of REV I progressed to priming and stem cell harvest, but it wasn't to be, even after 10 days of GCSF injections my levels were still too low. It seems that this can happen to patients on Revlimid and although I was warned I had everything…[Read more]

]]> 1d2e5fe8444f1428e3b0c145713ab89a pauloram replied to the topic My Velcade Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/my-velcade-journey#post-102384 Fri, 19 Apr 2013 23:42:16 +0100 Hiya David
I hope the Velcade works well for you. It got my pp's down from 49 to 5 in 12 injections but unfortunately I have had to stop it as the pn got so bad I couldn't stand it.I have been off it for two weeks and my feet havent come back to normal yet. I am now on Revlamid & dex and waiting to go in for a second sct.
Good luck
Ozzy

]]> dd1348f13b7177e66ee0ba5fc86b1162 pauloram replied to the topic Running out of options in the forum Treatment http://www.myeloma.org.uk/forums/topic/running-out-of-options#post-102328 Sun, 14 Apr 2013 18:53:03 +0100 Hiya Eve
Dont know how to private email you so answered question by here. I don't know if I am on any trials but treatment was Velcade and Dex. They hit the pps down from 49 to 5 but the pn is so bad this week they have stopped this treatment. My feet have suffered and I cant sleep with them tingling and aching. My consultant is contacting the…[Read more]

]]> dc9e33d5dde3665a2053a8cc8c7eb419 pauloram replied to the topic Two and a half years in the forum General http://www.myeloma.org.uk/forums/topic/two-and-a-half-years/page/2/#post-94745 Sun, 07 Apr 2013 14:58:31 +0100 Dear Eve
Its gutting when the remission is over and the myeloma comes back I know because I am in the same boat as Slim. If the Velcade worked the 1st time it might do the same again. It seems to be working so far for me and it has hit the pps from 49 down to 5 so dont give up hope.
Ozzy x

]]> 00af8ca631a6e04bbeadaab5721395f6 pauloram replied to the topic Shaving head in the forum General http://www.myeloma.org.uk/forums/topic/shaving-head#post-94614 Mon, 18 Mar 2013 19:51:08 +0000 Hi Jean
My hair was coming out everywhere and it was all over my pillow I mentioned it to the nurse and she shaved it all off – I looked like Kojak and when Gayle came to visit that night she screamed. It soon started growing back and by 2 months later I looked like I had a curly perm and thick with it.
Best wishes
Ozzy

]]> f422b1c95e95ba96c544b3d264b1c52c pauloram replied to the topic Velcade..............ups and downs !!! in the forum General http://www.myeloma.org.uk/forums/topic/velcadeups-and-downs-#post-94617 Mon, 18 Mar 2013 19:37:04 +0000 Hi Trish & Peter
I have had 8 injections of Velcade and start my 3rd course tomorrow. I had a very dicky start and have had a cold since January and am now on my 3rd course of antibiotics. I also take Dex and has your doc given Peter anti- viral tabs I have been taking these from the start.I have found that I have a temperature either the night…[Read more]

]]> 472b867c79b410e603c98e0171366b13 SarahWitherspoon started the topic RCD Cycle 6 cancelled, SCT prep starts on monday. in the forum Treatment http://www.myeloma.org.uk/forums/topic/rcd-cycle-6-cancelled-sct-prep-starts-on-monday Tue, 12 Mar 2013 15:52:12 +0000 After a PP of 2 for the last 3 cycles it's been decided to move onto SCT. Having spent 5 months on all those meds its strange having 1 week off (just anti viral meds) before the next stage begins.

On a good note I didn't find RCD too bad, I've managed to work every day, except for 2 days after each 4 day block of DEX when I took to the sofa…[Read more]

]]> 1e0ea9d71053ef2c57786e1ffc64a9ad pauloram replied to the topic Good response to Velcade in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-response-to-velcade#post-101995 Sun, 03 Mar 2013 12:10:03 +0000 Hiya

Thanks all.I did start having the dreaded PN , very odd feeling-difficult to explain my hands felt things as hot whilst my arm would feel it as cold and tingling in the tips of my fingers. I had 4 velcades in the first two weeks and had a week off and then they reduced it to one a week and this week will be my 4th of this session. I don't…[Read more]

]]> f8933a5bab5cbdb1962b47051da2bfcd pauloram started the topic Good response to Velcade. in the forum Treatment http://www.myeloma.org.uk/forums/topic/good-response-to-velcade Fri, 01 Mar 2013 12:49:39 +0000 Hiya all
Well after a very dicky start on the Velcade and dex I went yesterday for another treatment and the consultant gave me the brill news that after 7 treatments my pp's have dropped from 48 to 10.I don't know how may more I am going to have and when I will have the 2nd sct but I was soooo happy I booked a short stay on Friday to Morecombe…[Read more]

]]> d301181c699caee6160aa534181abd2c pauloram replied to the topic Michael in the forum End of Life and Grief http://www.myeloma.org.uk/forums/topic/michael/page/2/#post-108095 Wed, 27 Feb 2013 19:45:00 +0000 Dear Sue
Thinking of you and your family at this sad time.Hope all goes well on Friday – a celebration of Michaels life. Your take care of yourself.
Love from Paul & Gayle xx

]]> f3c91900a363e2a54cc73476b473a474 pauloram replied to the topic Three little words...... in the forum General http://www.myeloma.org.uk/forums/topic/three-little-words/page/2/#post-94467 Wed, 27 Feb 2013 19:35:44 +0000 Lovely news congratulations.
Ozzy

]]> d83aa49d4b85df3350707105e46bcae2 pauloram replied to the topic just been diagnoised in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-been-diagnoised/page/2/#post-87270 Mon, 18 Feb 2013 20:19:17 +0000 Hiya
I find it useful when I am going out where there are lots of people or especially when I fly I spray cold defense spray up my nose(I buy Boots make but there is probably other makes out there). It seems to work for me and on the one time I forgot I caught a cold so maybe its worth trying.
Good health all
Ozzy

]]> 2fb5cb1d5ccf989bcc637db70a133555 pauloram replied to the topic Sam has relapsed. in the forum General http://www.myeloma.org.uk/forums/topic/sam-has-relapsed#post-94424 Mon, 18 Feb 2013 20:18:17 +0000 Hiya
So sorry to hear about your relapse, my sct lasted only 21 months. I am now on Velcade & Dex.
Hope your treatment works well for you.
Best wishes
Ozzy

]]> 60b1a4965ba199838bd794050585f5a9 pauloram replied to the topic Peter has relapsed / info needed on Velcade in the forum General http://www.myeloma.org.uk/forums/topic/peter-has-relapsed-info-needed-on-velcade#post-94348 Mon, 11 Feb 2013 17:10:02 +0000 Hiya Trish & Peter
I also relapsed in January, my sct lasted nearly 2 years. I am now on Velcade and dex. I had 2 injections x 2 weeks and am now on a 1 week break. I had a high temp 38.7 on the 2nd injection and was admitted to hospital. I have had bad constipation had to take meds and then had the reverse last weekend with added sickness(losing…[Read more]

]]> dd53823b1cf97a5488e951dd8241e135 pauloram replied to the topic new arrival in the forum Off topic http://www.myeloma.org.uk/forums/topic/new-arrival1359543044/page/2/#post-110659 Sat, 02 Feb 2013 12:42:28 +0000 Congratulations to all you new grandparents. I hope one day I will join your happy gang!!
Ozzy

]]> 144a0ce60f77598d6505cd6d9cbbc9b2 pauloram replied to the topic Croaky/husky voice on Dex in the forum Side-effects http://www.myeloma.org.uk/forums/topic/croakyhusky-voice-on-dex#post-105112 Sat, 02 Feb 2013 12:26:43 +0000 Hiya all
Thankyou all for replying. I had the dex two weeks ago and my voice still hasn't come back to normal.I restart the damn stuff on Monday again. At least Gayle will be happy as I wont be able to speak to moan!!!

Good health
Ozzy

]]> 51239e3aed1b86ab18329fed685a2366 pauloram replied to the topic Here We Go Again in the forum Treatment http://www.myeloma.org.uk/forums/topic/here-we-go-again1359065333#post-101555 Sat, 02 Feb 2013 12:21:38 +0000 Hi Keith
You really are going through it but I'm sure the docs will sort you out.I tollerated CDT far better and with good results so hoping will do the same for you.
Ozzy

]]> 3ed4f9a1f77d2f2a435871877114a188 pauloram replied to the topic So far, so... in the forum Treatment http://www.myeloma.org.uk/forums/topic/so-far-so#post-101612 Sat, 02 Feb 2013 12:13:00 +0000 Hi Dai
So glad things are looking up for you, you've had quite a time of it.
Best wishes
Ozzy

]]> 57e5f124c85536280908d9a16cd47e6f pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94177 Sat, 02 Feb 2013 12:10:26 +0000 Hiya all
So glad your trip to India is still on. Thanks to you all for your good wishes. I have had four velcade's in the past two weeks and I am finding it really hard. I had an overnight stay in a& e last Sunday(no beds slept on a trolley!!!!) as temp 38.7. Had another one yesterday and temp rising again. I have been sick and have terrible…[Read more]

]]> 9e120fde1bbfead97a67f878e3c82261 pauloram started the topic Croaky/husky voice on Dex. in the forum Side-effects http://www.myeloma.org.uk/forums/topic/croakyhusky-voice-on-dex Wed, 23 Jan 2013 17:40:20 +0000 Hiya all
Has anyone else suffered with their voice when on Dex? Mines croaky husky and nearly gone. The same thing happened before when I was on CDT.
Thanks all
Ozzy

]]> a944c62b902dd30964d6c5a3f9c7d6d8 pauloram replied to the topic LUMBAR KYPHOPLASTY in the forum General http://www.myeloma.org.uk/forums/topic/lumbar-kyphoplasty#post-92165 Wed, 23 Jan 2013 17:19:32 +0000 Dear Jacqui

So sorry to hear this news – this awful disease takes no prisoners,Please be strong and take care of yourself.You are in our thoughts.
Best wishes
Ozzy & gayle

]]> 06ede2e3e903400381abee230cfaa234 pauloram replied to the topic Velcade in the forum Treatment http://www.myeloma.org.uk/forums/topic/velcade1357981492#post-101480 Mon, 21 Jan 2013 21:02:33 +0000 Hiya Maureen
I have started Velade and Dex today but like you Dai the old way with the canula my hospital doesnt do it yet with the injection in the stomach/side. I had 6 courses of CDT originally took poorly on the 2nd course and had pneumonia so I must admit to be a bit nervy this time round. I have a cold and cough already so that worries me.…[Read more]

]]> 47c352d782e097816a319ae26867513d pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94170 Mon, 21 Jan 2013 20:43:37 +0000 Hiya Wendy
That's my way of thinking too with the second sct and I dont know whether I really want to go through another.I feel like you fed up that my transplant didnt last long and what the future holds for me. I was hoping to go to Canada this year but there will be no way now. Your holiday is in March so you should be able to make it. When I…[Read more]

]]> 407ce159ac87defc5e9693f8cfe93c2c pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94166 Sun, 20 Jan 2013 17:22:23 +0000 Hiya Ange
I tried to reply to your email Ange but it came back. We will also try to attend in March -health permitting. Well I have relapsed and will be starting Velcade tomorrow. I have picked up a cold and have a cough so I dont know what they will do and I'm not sure how they give this Velcade.Hope the snow is not too bad for your farm.
Hi…[Read more]

]]> 55aeb626aefa4c5031c6387d6567d0e7 SarahWitherspoon replied to the topic Question about blood test results in the forum Treatment http://www.myeloma.org.uk/forums/topic/question-about-blood-test-results/page/2/#post-101448 Sat, 19 Jan 2013 20:10:13 +0000 Thank you all for all your tips on blood results. Consultant was more than happy to give me past results and as her printer wasn't linked up I sat there and scribbled them down, still some blanks still to fill next time but a good start.

Start of Cycle 2. 3. 4.
Haem: 12.9 13.1. 12.7
WBC: 4.1 3.6 2.7
Plate: 215 124…[Read more]

]]> a9db23e9056a03e2214801c3a44a2301 pauloram replied to the topic Relapsing in the forum General http://www.myeloma.org.uk/forums/topic/relapsing/page/2/#post-94163 Mon, 14 Jan 2013 16:44:34 +0000 Hiya
I too are in the same position my pp have shot up to 48. I had sct in January 2011 and it only lasted 21 months. I have had another BM biopsy last wed and full skeleton xrays. I am seeing the Prof at the hospital tomorrow and last week my consultant mentioned starting Velcade and dex. I will find out my fate tomorrow. What a start to the new…[Read more]

]]> a8458462c95c2aaa466ac3bd06035b05 SarahWitherspoon replied to the topic Question about blood test results in the forum Treatment http://www.myeloma.org.uk/forums/topic/question-about-blood-test-results#post-101443 Thu, 10 Jan 2013 21:09:31 +0000 Thanks Mavis. I always get pp a month later at next appointment, bit of a pain, tomorrow I finish Cycle 3, but get pp results for Cycle 2 at appointment.

Will see if consultant is happy to give me a printout 🙂

]]> ae95e9c6dd81a5b8379f8a415e3ed52c SarahWitherspoon replied to the topic Question about blood test results in the forum Treatment http://www.myeloma.org.uk/forums/topic/question-about-blood-test-results#post-101439 Tue, 08 Jan 2013 21:02:51 +0000 Chris, Brilliant, have it somewhere, or will download it,

Jean, no I don't have it but will call them tomorrow, always useful

Peter, I always see it on her computer screen, with numbers in red (guess these are the numbers misbehaving!), will see if she'll print it out for me 🙂

Thank you

]]> 17513e2286871a5ff98d014b5a23964c KerryDowell replied to the topic Just got a diagnosis in the forum Newcomers http://www.myeloma.org.uk/forums/topic/just-got-a-diagnosis#post-87077 Tue, 08 Jan 2013 18:50:00 +0000 Hiya there..

I am really sorry to hear of your diagnosis but please don't lose faith. My name is Kerry, it's my partner Melv that has Myeloma. He is 39 years old.

Myeloma seems so complicated doesn't it? So hard to get your head around but there is so many treatment options as I'm sure that you have found today.

How did your appointment…[Read more]

]]> a6e5444e4c7daa4ca009ceedd2be93e2 SarahWitherspoon started the topic Question about blood test results. in the forum Treatment http://www.myeloma.org.uk/forums/topic/question-about-blood-test-results Tue, 08 Jan 2013 11:01:21 +0000 I am due to see my consultant on friday (plus get another carrier bag of pills for Cycle 4)

Up till now I have only been bothered about my PP levels. I was wondering what other results in my blood test are also worth keeping an eye on? I always ask if I'm anemic and get told know, but I'd like to keep a record of other useful indicators.

Any…[Read more]

]]> 5e226be3c9824973df43d1d63404a20c pauloram replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/3/#post-101275 Wed, 26 Dec 2012 13:26:29 +0000 Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

]]> bf5497054514552a0ed2eb1eafb15862 pauloram replied to the topic Phil's SCT Journey in the forum Treatment http://www.myeloma.org.uk/forums/topic/phils-sct-journey/page/3/#post-101274 Wed, 26 Dec 2012 13:25:29 +0000 Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

]]> dbf26cab76b6182a04e5d32d31945d28 SarahWitherspoon started the topic Been a bit quiet but just started Cycle 3 RCD Myeloma XI Trial. in the forum General http://www.myeloma.org.uk/forums/topic/been-a-bit-quiet-but-just-started-cycle-3-rcd-myeloma-xi-trial Tue, 18 Dec 2012 16:17:32 +0000 Just wanted to thank you for all the replies I have had to various posts over the last few months. I went a bit quiet just trying to concentrate on the pills, more pills and more pills!

But I have had some good news, after Cycle 1 my PP went down from 38 to 7! I couldn't believe it – I really didn't think it would drop so far so quickly. But my…[Read more]

]]> 99f0f275fe1bc90a4bf273bbc80be718 pauloram replied to the topic SCT - Franks turn in the forum Treatment http://www.myeloma.org.uk/forums/topic/sct-franks-turn/page/2/#post-101137 Sat, 08 Dec 2012 15:14:27 +0000 Hiya Jean
I had my harvest early November 2010 but didn't have my transplant until 8th January 2011 so you might make that footie match after all.
With the sct I stayed in isolation until 29Th Jan and was then went home. I know that I had a clean diet for another month and Gayle banned all visitors until my blood recovered. Every morning she…[Read more]

]]> 6aab63f097c30dc7c8a6c6296dbc36dd pauloram replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93797 Wed, 28 Nov 2012 20:54:30 +0000 Hiya Ange & Jenny
It was lovely to meet you both at the info day. We too found it very interesting and informative and was encouraged by the positivity. Keep in touch.
Paul & Gayle

]]> 6ab48215816f8f1beeba266cf0e867fa pauloram replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93794 Tue, 20 Nov 2012 18:27:31 +0000 Hi Jenny & Ange
I've been to the GP today about the back and he thinks its muscular.I'm waiting for another MRI scan so hopefully by Sat things will calm down. Hope to meet you both there.
Paul & Gayle

]]> 72c921dad260419d3ed488ed0bb2111a pauloram replied to the topic Cardiff Information Day in the forum General http://www.myeloma.org.uk/forums/topic/cardiff-information-day#post-93791 Sun, 18 Nov 2012 20:08:24 +0000 Hiya Ange
We have booked to attend the 24th at the Village Cardiff. I had my sct at the Heath Hospital January 2011 and Dr Keith Wilson is speaking there. I hope we can still go because at the minute I am not feeling too good with backache. Keep a lookout for us we would be pleased to meet you.
Paul & Gayle

]]> 435b4f7e79965dd23d8ca2ff9d0a147f KerryDowell replied to the topic hospital again..... in the forum Under 50s http://www.myeloma.org.uk/forums/topic/hospital-again1352321101#post-107048 Fri, 09 Nov 2012 20:18:58 +0000 Hi guys – Thank you so much for your messages. It really is overwhelming receiving encouraging messages from you all. Thank you – I am so glad I have joined this site.

I hope this finds you all well – lots of love and best wishes.

Take care Love Kerry xxx

]]> 9b7494e2e039c5b1da0e454a011fdbc9 KerryDowell replied to the topic Hospital again...... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hospital-again#post-86893 Fri, 09 Nov 2012 20:10:26 +0000 Hiya Wink… Thank you for your message.

You are right, it is the damage that MM causes that is the really problem! I always say that if Melv just had Cancer to accept without the disabilities that it has caused, he approach it with determination and fight with everything he had. However, as he is slowly losing 'who he is' due to no longer…[Read more]

]]> 4fec91fdb35d5f2a9c358ff24b1817a3 KerryDowell replied to the topic Hospital again...... in the forum Newcomers http://www.myeloma.org.uk/forums/topic/hospital-again#post-86891 Fri, 09 Nov 2012 20:03:25 +0000 Hi Megan – Thank you for your message.

It sounds like you have both have it tough too. I'm sorry.

I understand what you are saying about the beg of the MM journey and we are so happy and positive regarding the PP levels, it's fantastic and a step in the right direction regarding the Myeloma. However, the damage that the Myeloma has caused…[Read more]

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